Ndinali Wamantha Kuyesa Zida Zosunthira - ndipo Ndidavumbulutsa Kutha Kwanga Pochita Izi

Zamkati

• Chifukwa chake, ndikudzipatsa chilolezo choyesa mayendedwe othandizira popanda lingaliro langa - {textend} zomwe zikundipangitsa kuti ndisasamale za wina aliyense, mwina.
• Ndinafika pa Alinker, yomwe inali yayikulu kwambiri kwa ine, choncho ndinayika ma wedges ndikugunda pamsewu - {textend} kenako ndinayamba kukondana ndi njinga yoyenda yomwe ndi $ 2,000.
• Ndili pa njinga ya olumala, ndimamva ngati ndatsala pang'ono kukulitsa "chilema" changa mdziko lapansi, kuchiika panja kuti aliyense aziwona ndikuweruza.

“Kodi ungakhale ndi njinga ya olumala?”

Ndikadakhala ndi dola nthawi iliyonse ndikamva wina akunena kuti popeza matenda anga angapo a sclerosis (MS) zaka 13 zapitazo, ndikadakhala ndi ndalama zokwanira kugula Alinker. Zambiri pa izi mtsogolo.

Ngakhale panali zaka 13 zaumboni wosadziwika wodziwa anthu ambiri omwe ali ndi MS omwe sagwiritsa ntchito ma wheelchair, anthu wamba nthawi zonse amakhala akuganiza kuti ndipomwe ulendo wonsewu wa MS ukupita.

Ndipo mawu oti "kutha" pa chikuku ndi ocheperako, sichoncho? Monga momwemonso "mumathera" kugwira ntchito zina Lamlungu masana, kapena momwe "mumathera" ndikutaya tayala mutagunda pothole.

Yikes, munthu. Ndizosadabwitsa kuti anthu omwe ali ndi MS, monga inenso, amakhala miyoyo yathu ndi mantha awa atakulungidwa munyozo wokhala ndi chiweruzo zikafika pakuganiza zosowa chida choyendera.

Koma ndikunena izi.

Sindikufuna chida choyenda pakadali pano. Miyendo yanga imagwira ntchito bwino ndipo idakali yolimba, koma ndazindikira kuti, ngati ndigwiritsa ntchito imodzi, zimakhudza kwambiri momwe ndingathere kapena kuti ndingatenge nthawi yayitali bwanji ndikuchita chilichonse chomwe ndikuchita.

Zandipangitsa kuti ndiyambe kuganizira zamagetsi, ngakhale zimamveka ngati icky - {textend} lomwe ndi mawu asayansi pazinthu zomwe anthu amakuphunzitsani kuti muziopa ndikuchita manyazi nazo.

"Ick" ndimamva ndikalingalira momwe kudzidalira kwanga kungakhudzire ngati ndiyamba kugwiritsa ntchito chida choyendera. Kenako imakulitsidwa kuchokera pakulakwa kwanga komwe ndimakhala nako ngakhale kuganiza lingaliro lothekera lotere.

Ndizomvetsa chisoni kuti ngakhale monga wotsutsa ufulu wolumala, sindingathe kuthawa nthawi zonse chidani chokhazikika kwa anthu olumala.

Chifukwa chake, ndikudzipatsa chilolezo choyesa mayendedwe othandizira popanda lingaliro langa - {textend} zomwe zikundipangitsa kuti ndisasamale za wina aliyense, mwina.

Ndizochitika zodabwitsa izi pomwe mumachita zomwe mungafune mtsogolo, kuti muwone momwe zimamvekera mukadali ndi chisankho.

Zomwe zimandibweretsa ku Alinker. Ngati mwakhala mukusunga nkhani za MS, mukudziwa pofika pano kuti Selma Blair ali ndi MS ndipo ali beboppin 'mozungulira tawuni pa Alinker, yomwe ndi njinga yoyendera yomwe ingagwiritsidwe ntchito m'malo mwa njinga ya olumala kapena kuyenda kwa iwo omwe akadali kugwiritsa ntchito kwathunthu miyendo yawo.

Ndizosintha kwathunthu pankhani yothandizira kuyenda. Zimakupatsani mwayi wamaso ndipo zimakuthandizani kuti muchepetse mapazi anu ndi miyendo yanu. Ndinkafunitsitsa ndiyese imodzi, koma ana awa sagulitsidwa m'masitolo. Chifukwa chake, ndidalumikizana ndi Alinker ndikumufunsa momwe nditha kuyesa imodzi.

Ndipo simukudziwa, panali mayi yemwe amakhala kutali ndi ine mphindi 10 yemwe adandilola kuti ndibwereke ndalama zake kwa milungu iwiri. Zikomo, Zachilengedwe, pakupanga ndendende zomwe ndimafuna kuti zichitike, zichitike.

Ndinafika pa Alinker, yomwe inali yayikulu kwambiri kwa ine, choncho ndinayika ma wedges ndikugunda pamsewu - {textend} kenako ndinayamba kukondana ndi njinga yoyenda yomwe ndi $ 2,000.

Ine ndi amuna anga timakonda kuyenda usiku, koma kutengera tsiku lomwe ndakhala nawo, nthawi zina mayendedwe athu amakhala achidule kwambiri kuposa momwe ndimafunira. Pamene ndinali ndi Alinker, miyendo yanga yotopa sinalinso vuto, ndipo ndimatha kuyenda naye malinga ngati tikufuna kuyenda.

Kuyesera kwanga kwa Alinker kunandipangitsa kulingalira: Ndi pati paliponse m'moyo wanga momwe ndingagwiritsire ntchito njira yothandizira kuyenda yomwe ingandithandize kuchita zinthu bwino, ngakhale ndimatha kugwiritsa ntchito miyendo yanga nthawi zonse?

Monga munthu yemwe pakadali pano ali pakati pa olimba ndi olumala, ndimakhala nthawi yambiri ndikuganizira za nthawi yomwe ndidzafunika thandizo lakuthupi - {textend} ndipo mkuntho wamanyazi watsankho umatsatira posachedwa. Ndi nkhani yomwe ndikudziwa kuti ndiyenera kuyitsutsa, koma sizovuta mgulu lomwe lingakhale lodana kwambiri ndi anthu olumala.

Chifukwa chake, ndidaganiza zoyesetsa kuti ndivomere kale ichi chimakhala gawo losatha la moyo wanga. Ndipo izi zikutanthauza kukhala wofunitsitsa kusakhala omasuka ndikamayesa zothandizira kuyenda, ndikumvetsetsa mwayi womwe ndili nawo panthawiyi.

Malo otsatira omwe ndinayesera anali pa eyapoti. Ndinadzipatsa chilolezo chogwiritsa ntchito njinga yamagudumu kupita pachipata changa, chomwe chinali kumapeto kwa dziko lapansi, chipata chakutali kwambiri chachitetezo. Posachedwa ndidawona bwenzi likuchita izi, ndipo ndichinthu chomwe sichidapiteko mumtima mwanga.

Komabe, kuyenda motalika chonchi nthawi zambiri kumandipangitsa kuti ndisakhale wopanda kanthu ndikafika pachipata changa, ndiyeno ndiyenera kuyendanso kaye m'masiku ochepa kuti ndibwere kunyumba. Kuyenda ndikotopetsa momwe ziliri, ndiye ngati kugwiritsa ntchito njinga ya olumala kungathandize, bwanji osayesa?

Kotero ine ndinatero. Ndipo zinathandiza. Koma ndidatsala pang'ono kudzilankhulira ndekha popita ku eyapoti pomwe ndimadikirira kuti anditenge.

Ndili pa njinga ya olumala, ndimamva ngati ndatsala pang'ono kukulitsa "chilema" changa mdziko lapansi, kuchiika panja kuti aliyense aziwona ndikuweruza.

Zili ngati mukaimika pamalo olumala ndipo chachiwiri mutatuluka m'galimoto yanu, mumamva ngati muyenera kuyamba kutsimphina kapena china kuti mutsimikizire kuti mulidi chitani ndikusowa malowa.

M'malo mofuna mwendo wosweka ndekha, ndidakumbukira kuti ndimayeza izi. Uku kunali kusankha kwanga. Ndipo nthawi yomweyo ndidamva kuweruza komwe ndidadziwonetsa m'mutu mwanga kuyamba kukweza.

Ndikosavuta kuganiza za kugwiritsa ntchito chida choyenda ngati kugonja, kapena kusiya. Izi ndichifukwa choti taphunzitsidwa kuti china chilichonse kupatula phazi lanu "sichichepera," sichabwino. Ndipo kuti mphindi yomwe mungafune kuthandizidwa, muwonetsanso kufooka.

Chifukwa chake, tiyeni titenge izi. Tiyeni tichite chidwi ndi zida zosunthira, ngakhale sitifunikira tsiku lililonse.

Ndidakali ndi zaka zingapo patsogolo panga ndisanafunike kulingalira pafupipafupi pogwiritsa ntchito chida choyendera. Koma nditayesa ochepa, ndazindikira kuti simufunikira kuthana ndi miyendo yanu kuti izithandizire. Ndipo zinali zamphamvu kwa ine.

Jackie Zimmerman ndi mlangizi wotsatsa digito yemwe amayang'ana kwambiri zopanda phindu komanso mabungwe okhudzana ndiumoyo. Kudzera pantchito patsamba lake, akuyembekeza kulumikizana ndi mabungwe akulu ndikulimbikitsa odwala. Anayamba kulemba za kukhala ndi multiple sclerosis komanso matenda opweteka m'mimba atangomupeza ngati njira yolumikizirana ndi ena. Jackie wakhala akugwira ntchito yolimbikitsa kwa zaka 12 ndipo wakhala ndi mwayi woyimira madera a MS ndi IBD pamisonkhano yosiyanasiyana, zokambirana zazikulu, komanso zokambirana pagulu.