Zotsatira za MS: Nkhani Yanga Yodziwa Matenda

Zamkati

• Matthew Walker, yemwe adapezeka mu 2013
• Danielle Acierto, yemwe adapezeka mu 2004
• Valerie Hailey, yemwe adapezeka mu 1984

“Iwe uli ndi MS.” Kaya ananenedwa ndi dokotala wanu wamkulu, dokotala wanu wam'mimba, kapena wina wofunikira, mawu atatu osavuta awa amathandizira moyo wanu wonse.

Kwa anthu omwe ali ndi multiple sclerosis (MS), "tsiku lodziwitsa matenda" ndilosaiwalika. Kwa ena, ndizodabwitsa kumva kuti tsopano akukhala ndi matenda osachiritsika. Kwa ena, ndizosangalatsa kudziwa zomwe zimawachititsa. Koma ziribe kanthu motani kapena zikafika, tsiku lililonse lodziwitsa za MS ndilopadera.

Werengani nkhani za anthu atatu omwe ali ndi MS, ndikuwona momwe adathandizira ndi matenda awo komanso momwe akuchitira lero.

Matthew Walker, yemwe adapezeka mu 2013

"Ndikukumbukira ndikumva 'phokoso loyera' ndikulephera kuyang'ana pazokambirana ndi dokotala wanga," akutero a Matthew Walker. "Ndikukumbukira pang'ono zomwe tidakambirana, koma ndikuganiza kuti ndimangoyang'ana mainchesi pang'ono pankhope pake, ndikupewa kuyang'ana maso ndi amayi anga komanso omwe anali ndi ine. … Izi zidamasulira mchaka changa choyamba ndi MS, ndipo osanditenga. ”

Monga ambiri, Walker amaganiza kuti ali ndi MS, koma sanafune kukumana ndi zowonazo. Tsiku lotsatira atapezeka ndi matendawa, Walker adasamukira kudera lonselo - kuchokera ku Boston, Massachusetts, kupita ku San Francisco, California. Kusunthika kumeneku kunapangitsa Walker kusunga chinsinsi chake.

"Nthawi zonse ndakhala ngati buku lotseguka, chifukwa chake ndimakumbukira chinthu chovuta kwambiri kwa ine chinali kufunitsitsa kuti ndizisunga chinsinsi," akutero. "Ndipo lingaliro," Chifukwa chiyani ndikuda nkhawa kuuza aliyense? Kodi ndi chifukwa chakuti ndi matenda oopsa chonchi? '”

Zinali zakusokonekera miyezi ingapo pambuyo pake zomwe zidamupangitsa kuti ayambe blog ndikulemba kanema wa YouTube wonena za matenda ake. Amachokera kuubwenzi wanthawi yayitali ndipo adawona kufunika kogawana nkhani yake, kuti awulule kuti anali ndi MS.

"Ndikuganiza kuti vuto langa linali kukana," akutero. "Ndikadatha kubwerera m'mbuyo, ndikadayamba kuchita zinthu mosiyana kwambiri ndi moyo."

Masiku ano, amauza ena za MS yake koyambirira, makamaka atsikana omwe akufuna kuti akhale nawo pachibwenzi.

"Ndi chinthu chomwe muyenera kuchita nacho ndipo ndichinthu chovuta kuchita nacho. Koma kwa ine ndekha, zaka zitatu, moyo wanga wasintha kwambiri ndipo kuyambira tsiku lomwe ndidapezeka mpaka pano.Sizimene zingaipitse moyo. Izi zili ndi inu. "

Komabe, akufuna kuti ena omwe ali ndi MS adziwe kuti kuuza ena ndiye chisankho chawo.

"Ndiwe munthu yekhayo amene azikakumana ndi matendawa tsiku lililonse, ndipo ndiwe wekha amene udzayenera kuthana ndi malingaliro ndi malingaliro ako mkati. Chifukwa chake, musadzikakamize kuchita chilichonse chomwe simumva bwino. "

Danielle Acierto, yemwe adapezeka mu 2004

Monga wamkulu pasukulu yasekondale, Danielle Acierto anali ndi malingaliro ambiri atazindikira kuti ali ndi MS. Ali ndi zaka 17, anali asanamvepo za matendawa.

Iye anati: “Ndinkadzimva ngati wotayika. "Koma ndidachigwira, chifukwa bwanji ngati sichinali chinthu choyenera kulira? Ndinayesera kusewera ngati kuti sinali kanthu kwa ine. Anali mawu awiri okha. Sindingalole kuti andifotokozere, makamaka ngati ineyo sindimadziwa tanthauzo la mawu awiriwa. "

Chithandizo chake chinayamba pomwepo ndi jakisoni, zomwe zidamupweteka kwambiri mthupi lake lonse, komanso thukuta usiku ndi kuzizira. Chifukwa cha zotsatirazi, mkulu wake pasukulu adati amatha kuchoka m'mawa tsiku lililonse, koma sizomwe Acierto amafuna.

"Sindinkafuna kuchitiridwa mosiyana kapena ndi chidwi chilichonse," akutero. “Ndinkafuna kuchitiridwa zinthu monga aliyense.”

Pomwe anali kuyesayesa kudziwa zomwe zimachitika ndi thupi lake, abale ake ndi abwenzi anali, nawonso. Amayi ake molakwika adayang'ana "scoliosis,", pomwe abwenzi ake ena adayamba kufananiza ndi khansa.

"Chovuta kwambiri kuuza anthu ndikufotokozera kuti MS ndi chiyani," akutero. "Mwangozi, ku malo ena ogulitsa pafupi ndi ine, adayamba kupereka zibangili za MS. Anzanga onse adagula zibangili kuti zindithandizire, koma samadziwa kuti ndi chiyani. "

Sanawonetse zakunja, koma amangokhalira kumva kuti moyo wake tsopano watsala pang'ono chifukwa cha matenda ake. Lero, akuzindikira kuti sizowona. Upangiri wake kwa odwala omwe angopezedwa kumene sikutaya mtima.

"Musalole kuti zikulepheretseni chifukwa mutha kuchita chilichonse chomwe mukufuna," akutero. "Ndi malingaliro anu okha omwe akukulepheretsani."

Valerie Hailey, yemwe adapezeka mu 1984

Mawu osalankhula. Icho chinali chizindikiro choyamba cha Valerie Hailey cha MS. Madokotala anayamba kunena kuti ali ndi matenda amkati am'makutu, kenako amamuwuza mtundu wina wamatenda asanamupeze kuti ali ndi "MS." Apa n’kuti patatha zaka zitatu ali ndi zaka 19 zokha.

"Nditangopezeka koyamba, [MS] sanalankhulepo ndipo sizinali munkhani," akutero. "Wopanda chidziwitso, umangodziwa miseche yonse yomwe wamva, ndipo zinali zowopsa."

Chifukwa cha izi, Hailey adatenga nthawi yake kuuza ena. Anasunga chinsinsi kwa makolo ake, ndipo amangomuwuza chibwenzi chake chifukwa amaganiza kuti ali ndi ufulu wodziwa.

"Ndinkachita mantha ndi zomwe angaganize ndikabwera pamsewu ndi ndodo yoyera wokutidwa ndi buluu wachifumu, kapena njinga ya olumala yodzikongoletsa yoyera ndi ngale," akutero. "Ndimamupatsa mwayi woti amuthandize ngati sakufuna kuthana ndi mkazi wodwala."

Hailey anali ndi mantha ndi matenda ake, ndipo amawopa kuuza ena chifukwa cha manyazi omwe amapezeka nawo.

“Umataya anzako chifukwa amaganiza kuti,‘ Sangachite izi kapena izo. ’Foni imangosiya kulira pang’onopang’ono. Sizili choncho tsopano. Ndikupita kukachita chilichonse tsopano, koma zimayenera kukhala zaka zosangalatsa. ”

Pambuyo pamavuto obwerezabwereza, Hailey adasiya ntchito yake yamaloto monga katswiri wodziwa zamankhwala komanso wopanga ma laser ku Stanford Hospital ndikupita ku chilema chamuyaya. Anali wokhumudwa komanso wokwiya, koma akuyang'ana kumbuyo, akumva mwayi.

Iye anati: “Chinthu choyipa chimenechi chinandisandutsa dalitso lalikulu kwambiri. “Ndinkasangalala kupezeka ndi ana anga nthawi iliyonse yomwe angafune ine. Kuwawona akukula ndichinthu chomwe ndikadachiphonya ndikadaikidwa m'manda pantchito yanga. "

Amayamikira moyo kwambiri lero kuposa kale, ndipo amauza odwala ena omwe apezeka posachedwa kuti nthawi zonse pamakhala mbali yowala - ngakhale simukuyembekezera.