Mafunso 10 Ofunsa Wofunsa Pulmonologist Wanu za Idiopathic Pulmonary Fibrosis

Zamkati

• 1. Nchiyani chimapangitsa matenda anga kukhala opusa?
• 2. Kodi IPF ndiyofala motani?
• 3. Kodi chingachitike ndi chiyani ndikupuma kwanga pakapita nthawi?
• 4. Ndi chiyani china chomwe chidzachitike mthupi mwanga pakapita nthawi?
• 5. Kodi pali mavuto ena am'mapapo omwe ndingakumane nawo ndi IPF?
• 6. Kodi zolinga za IPF ndi ziti?
• 7. Ndimagwira bwanji IPF?
• Mankhwala
• Kukonzanso kwamapapo
• Thandizo la oxygen
• Kuika mapapo
• 8. Kodi ndingapewe bwanji kuti vutoli lisawonjezeke?
• 9. Kodi ndingasinthe bwanji moyo wanga kuti ndikhale ndi matenda?
• 10. Kodi ndingapeze kuti thandizo la matenda anga?
• Tengera kwina

Chidule

Ngati mwapezeka kuti muli ndi idiopathic pulmonary fibrosis (IPF), mutha kukhala ndi mafunso ambiri pazomwe zidzachitike.

Katswiri wa pulmonologist atha kukuthandizani kudziwa njira yabwino yothandizira. Angakulimbikitseninso pazomwe mungasinthe pamoyo wanu kuti muchepetse zizindikilo zanu ndikukhala ndi moyo wabwino.

Nawa mafunso 10 omwe mungabweretse ku pulmonologist kuti akuthandizeni kumvetsetsa ndikusamalira moyo wanu ndi IPF.

1. Nchiyani chimapangitsa matenda anga kukhala opusa?

Mwinanso mukudziwa bwino za "pulmonary fibrosis". Zimatanthauza mabala am'mapapu. Mawu oti "idiopathic" amafotokoza mtundu wa pulmonary fibrosis pomwe madotolo sangadziwe chomwe chimayambitsa.

IPF imaphatikizapo chikhodzodzo chotchedwa chibayo chotchedwa interstitial chibayo. Ndi mtundu wa matenda am'mapapo osakanikirana. Izi zimayambitsa zilonda zam'mapapo zomwe zimapezeka pakati pamagalimoto anu ndi magazi.

Ngakhale kulibe chifukwa chenicheni cha IPF, pali zifukwa zina zomwe zikukayikiridwa kuti zimayambitsa vutoli. Chimodzi mwaziwopsezozi ndi chibadwa. Ofufuza apeza kuti kusiyanasiyana kwa Zowonjezera jini imakupatsirani chiopsezo cha 30% chokhala ndi vutoli.

Zina mwaziwopsezo za IPF ndizo:

• msinkhu wanu, popeza IPF imapezeka mwa anthu okalamba kuposa 50
• kugonana kwanu, popeza amuna amatha kukhala ndi IPF
• kusuta
• zovuta, monga zodzichitira zokha
• zinthu zachilengedwe

2. Kodi IPF ndiyofala motani?

IPF imakhudza anthu pafupifupi 100,000 aku America, chifukwa chake amadziwika kuti ndi matenda osowa. Chaka chilichonse, madokotala amapeza anthu 15,000 ku United States ali ndi vutoli.

Padziko lonse lapansi, pafupifupi 13 mpaka 20 mwa anthu 100,000 aliwonse ali ndi matendawa.

3. Kodi chingachitike ndi chiyani ndikupuma kwanga pakapita nthawi?

Munthu aliyense amene amalandira matenda a IPF adzakhala ndi vuto lina kupuma koyamba. Mutha kupezeka kuti mukumayambiriro kwa IPF mukangopuma pang'ono panthawi yochita masewera olimbitsa thupi. Kapena, mwina mwakhala mukulengeza kupuma pang'ono kuchokera kuzinthu zatsiku ndi tsiku monga kuyenda kapena kusamba.

Pamene IPF ikupita, mutha kupuma movutikira. Mapapu anu amatha kukulirakulira chifukwa cha zipsera zambiri. Izi zimapangitsa kuti zikhale zovuta kupanga mpweya ndikusunthira m'magazi anu. Pamene vutoli likuipiraipira, mudzawona kuti mumapuma mwamphamvu ngakhale mutapuma.

Maganizo a IPF yanu ndi apadera kwa inu, koma palibe mankhwala pakadali pano. Anthu ambiri amakhala ndi moyo atapezeka ndi IPF. Anthu ena amakhala ndi moyo nthawi yayitali kapena yocheperako, kutengera momwe matendawa amapitilira msanga. Zizindikiro zomwe mungakumane nazo mukamadwala zimasiyana.

4. Ndi chiyani china chomwe chidzachitike mthupi mwanga pakapita nthawi?

Pali zizindikiro zina za IPF. Izi zikuphatikiza:

• chifuwa chosabereka
• kutopa
• kuonda
• kupweteka ndi kusapeza bwino pachifuwa, pamimba, ndi mafupa
• zala ndi zala zakumapazi

Lankhulani ndi dokotala wanu ngati matenda atsopano ayamba kapena akukulirakulira. Pakhoza kukhala mankhwala omwe angathandize kuchepetsa zizindikiro zanu.

5. Kodi pali mavuto ena am'mapapo omwe ndingakumane nawo ndi IPF?

Mutha kukhala pachiwopsezo chokhala ndi kapena kukhala ndi vuto lina lamapapo mukakhala ndi IPF. Izi zikuphatikiza:

• kuundana kwamagazi
• mapapo anakomoka
• Matenda osokoneza bongo
• chibayo
• Matenda oopsa
• matenda obanika kutulo
• khansa ya m'mapapo

Muthanso kukhala pachiwopsezo chokhala ndi zina kapena matenda ena monga gastroesophageal Reflux matenda ndi matenda amtima. Matenda a Reflux am'mimba amakhudzidwa ndi IPF.

6. Kodi zolinga za IPF ndi ziti?

IPF siyichiritsika, chifukwa chake zolinga zamankhwala zimayang'ana kwambiri pakuwongolera zizindikiritso zanu. Madokotala anu amayesetsa kuti mpweya wanu ukhale wolimba kuti mumalize kuchita masewera olimbitsa thupi tsiku lililonse.

7. Ndimagwira bwanji IPF?

Chithandizo cha IPF chiziwunika kwambiri pakuwongolera zizindikiro zanu. Mankhwala a IPF ndi awa:

Mankhwala

US Food and Drug Administration idavomereza mankhwala awiri atsopano mu 2014: nintedanib (Ofev) ndi pirfenidone (Esbriet). Mankhwalawa sangasinthe kuwonongeka kwa mapapu anu, koma amatha kuchepetsa mabala am'mapapo komanso kupita patsogolo kwa IPF.

Kukonzanso kwamapapo

Kukonzanso m'mapapo kumatha kukuthandizani kuti muzitha kupuma bwino. Akatswiri angapo akuphunzitsani momwe mungagwiritsire ntchito IPF.

Kukonzanso m'mapapo kumatha kukuthandizani:

• phunzirani zambiri za matenda anu
• kuchita masewera olimbitsa thupi popanda kukulitsa kupuma kwanu
• idyani chakudya chopatsa thanzi komanso choyenera
• pumulani mosavuta
• sungani mphamvu yanu
• yendetsani zochitika zanu

Thandizo la oxygen

Ndi mankhwala othandizira okosijeni, mudzalandira mpweya wachindunji kudzera m'mphuno mwanu ndi chigoba kapena zotchinga m'mphuno. Izi zingathandize kuchepetsa kupuma kwanu. Kutengera kulimba kwa IPF yanu, dokotala wanu angakulimbikitseni kuti muzivala nthawi zina kapena nthawi zonse.

Kuika mapapo

Nthawi zina IPF, mutha kukhala ofuna kulandira mapapu kuti mutalikitse moyo wanu. Njirayi imangogwiritsidwa ntchito mwa anthu azaka zosakwana 65 popanda zovuta zina zamankhwala.

Njira yolandirira mapapo imatha kutenga miyezi kapena kupitilira apo. Ngati mungalandire, muyenera kumwa mankhwala kuti thupi lanu lisakane chiwalo chatsopanocho.

8. Kodi ndingapewe bwanji kuti vutoli lisawonjezeke?

Pofuna kuti matenda anu asakule kwambiri, muyenera kukhala ndi thanzi labwino. Izi zikuphatikiza:

• kusiya kusuta nthawi yomweyo
• kusamba m'manja nthawi zonse
• kupewa kucheza ndi anthu omwe akudwala
• kupeza katemera wa chimfine ndi chibayo
• kumwa mankhwala pazinthu zina
• kukhala m'malo opanda mpweya wabwino, monga ndege ndi malo okwera kwambiri

9. Kodi ndingasinthe bwanji moyo wanga kuti ndikhale ndi matenda?

Kusintha kwa moyo wanu kumachepetsa zizindikiritso zanu ndikusintha moyo wanu.

Pezani njira zogwirira ntchito ndi IPF. Gulu lanu lokonzanso mapapu lingakulimbikitseni kuchita masewera olimbitsa thupi. Muthanso kuwona kuti kuyenda kapena kugwiritsa ntchito zida zolimbitsa thupi pamalo ochitira masewera olimbitsa thupi kumachepetsa kupsinjika ndipo kumakupatsani mphamvu. Njira ina ndikutuluka pafupipafupi kuti mukachite nawo zosangalatsa kapena magulu am'magulu.

Kudya zakudya zopatsa thanzi kungakupatseninso mphamvu zowonjezera kuti thupi lanu likhale lolimba. Pewani zakudya zopangidwa ndi mafuta, mchere, ndi shuga. Yesetsani kudya zakudya zabwino monga zipatso, ndiwo zamasamba, mbewu zonse, ndi mapuloteni owonda.

IPF ingakhudzenso thanzi lanu, inunso. Yesani kusinkhasinkha kapena njira ina yopumulirako kuti muchepetse thupi lanu. Kugona mokwanira ndi kupumula kumathandizanso thanzi lanu lamaganizidwe. Ngati mukuvutika maganizo kapena kuda nkhawa, lankhulani ndi dokotala wanu kapena mlangizi waluso.

10. Kodi ndingapeze kuti thandizo la matenda anga?

Kupeza netiweki yothandizira ndikofunikira mukapezeka kuti muli ndi IPF. Mutha kufunsa madokotala anu kuti akuthandizeni, kapena mutha kupeza intaneti. Fikiraninso kwa abale ndi abwenzi ndikuwadziwitseni momwe angakuthandizireni.

Magulu othandizira amakuthandizani kuyanjana ndi gulu la anthu omwe akukumana ndi zovuta zomwezi. Mutha kugawana zomwe mwakumana nazo ndi IPF ndikuphunzira za momwe mungazigwiritsire ntchito m'malo achifundo, omvetsetsa.

Tengera kwina

Kukhala ndi IPF kumatha kukhala kovuta, kuthupi komanso kwamaganizidwe. Ndicho chifukwa chake ndikofunikira kuti muwone mwachangu pulmonologist wanu ndi kuwafunsa za njira zabwino zothetsera vuto lanu.

Ngakhale kulibe mankhwala, pali zinthu zingapo zomwe mungachite kuti muchepetse kupita patsogolo kwa IPF ndikukhala ndi moyo wapamwamba.