Momwe Mungalankhulire ndi Ena Zokhudza Kuzindikira Kwa MS

Zamkati

• Ubwino ndi kuipa kouza anthu za MS
• Ubwino
• Kuipa
• Kuuza banja
• Kuuza ana anu
• Kuuza anzanga
• Kuuza olemba anzawo ntchito komanso anzawo
• Kuuza tsiku lanu
• Tengera kwina

Chidule

Zili kwa inu ngati mukufuna kuuza ena za matenda anu a sclerosis (MS).

Dziwani kuti aliyense atha kumva mosiyana ndi nkhani, chifukwa chake khalani ndi nthawi yoganizira momwe mungalankhulire ndi abale anu, abwenzi, ana, ndi ogwira nawo ntchito.

Kuwongolera uku kukuthandizani kumvetsetsa omwe muyenera kuwauza, momwe mungawafotokozere, komanso zomwe mungayembekezere pochita izi.

Ubwino ndi kuipa kouza anthu za MS

Muyenera kukonzekera mayankho osiyanasiyana mukamauza anthu za matenda anu atsopanowa. Ganizirani zabwino komanso zoyipa zouza munthu aliyense zisanachitike.

Mukakhala okonzeka kuwauza, yesetsani kupewa kuthamangira kukambirana. Atha kukhala ndi mafunso ambiri, ndipo ndikofunikira kuti achoke pamachezawa kuti adziwe zambiri za MS komanso tanthauzo lake kwa inu.

Ubwino

• Mungamve ngati cholemetsa chachikulu chachotsedwa, ndipo mwina mudzamvanso bwino.
• Mutha kufunsa anzanu ndi abale anu kuti akuthandizeni tsopano kudziwa zomwe zikuchitika.
• Mukhala ndi mwayi wophunzitsa anthu za MS.
• Achibale ndi abwenzi atha kukopeka kwambiri mukamaphunzira za matenda anu a MS.
• Kuuza anzanu akuntchito kudzawathandiza kumvetsetsa chifukwa chomwe mungatope kapena kulephera kugwira ntchito.
• Anthu omwe atha kukhala ndi lingaliro loti china chake chalakwika sadzayerekeza. Kuwauza kumapewa kukhala nawo ndikupanga malingaliro olakwika.

Kuipa

• Anthu ena sangakukhulupirireni kapena angaganize kuti mukufuna chidwi.
• Anthu ena akhoza kukupewa chifukwa sakudziwa choti anene.
• Anthu ena adzautenga ngati mwayi wopereka uphungu wosafunsidwa kapena kukankhira njira zosavomerezeka kapena zochiritsira.
• Anthu tsopano akhoza kukuwonani osalimba kapena ofooka ndikusiya kukuitanani kuzinthu.

Kuuza banja

Achibale apafupi, kuphatikizapo makolo anu, mkazi wanu, ndi abale anu, atha kuganiza kale kuti china chake sichili bwino. Ndi bwino kuwauza posachedwa.

Kumbukirani kuti atha kudabwa ndikuwopani poyamba. Zingatenge nthawi kuti akonze zatsopano. Osangokhala chete osasamala. Akangotha ​​kuthana ndi vuto loyambalo, banja lanu lidzakhalapo kuti likuthandizireni kupezedwa kwatsopano.

Kuuza ana anu

Ngati muli ndi ana, zingakhale zovuta kuneneratu momwe iwo adzachitire mukadzapezeka ndi matenda anu. Pachifukwa ichi, makolo ena amasankha kudikirira mpaka ana awo atakula ndikukula kuti akambirane.

Ngakhale chisankhocho chili kwa inu, ndikofunikira kudziwa kuti kafukufuku akuwonetsa kuti ana omwe sadziwa zambiri za matenda a MS a makolo awo amakhala ndi nkhawa zochepa kuposa omwe amadziwitsidwa bwino.

Pakafukufuku waposachedwa, ofufuza adazindikira kuti kulola madotolo kukambirana za MS mwachindunji ndi ana a wodwalayo kumathandizira kukhazikitsa maziko oti banja lonse lipirire vutoli.

Kuphatikiza apo, makolo akadziwitsidwa bwino za MS, zimatha kukulitsa mkhalidwe womwe ana saopa kufunsa mafunso.

Mukawauza ana anu za MS yanu, olemba phunziroli amalimbikitsa kuti ana anu apitilize kulandira zidziwitso zachizolowezi kuchokera kwa omwe amakupatsani zaumoyo.

Makolo amalimbikitsidwanso kuti akambirane za MS ndi ana awo ndikuwabweretsera nthawi yoonana ndi dokotala.

Sungani S'myelin, magazini yosangalatsa ana kuchokera ku National MS Society, ndi chinthu china chabwino. Zimaphatikizapo masewera, nkhani, zoyankhulana, ndi zochitika pamitu yambiri yokhudzana ndi MS.

Kuuza anzanga

Palibe chifukwa chouza anzanu onse m'malemba ambiri. Ganizirani kuyambira ndi anzanu apamtima - omwe mumawakhulupirira kwambiri.

Khalani okonzekera mayankho osiyanasiyana.

Anzathu ambiri amathandiza kwambiri ndikupereka thandizo nthawi yomweyo. Ena atembenuka ndikufunika nthawi kuti akonze zatsopano. Yesetsani kuti musatenge izi. Tsindikani kwa iwo kuti mudakali munthu yemweyo yemwe mudali musanadziwike.

Mwinanso mungafune kuwongolera anthu kumawebusayiti amaphunziro kuti athe kuphunzira zambiri za momwe MS ingakukhudzireni pakapita nthawi.

Kuuza olemba anzawo ntchito komanso anzawo

Kufotokozera za matenda a MS kuntchito kwanu sikuyenera kukhala kusankha mopupuluma. Ndikofunika kuyeza ubwino ndi kuipa kouza abwana anu musanachite chilichonse.

Anthu ambiri omwe ali ndi MS amapitilizabe kugwira ntchito kwa nthawi yayitali ngakhale atawapeza, pomwe ena amasankha kusiya ntchito nthawi yomweyo.

Izi zimadalira pazinthu zambiri, kuphatikiza zaka zanu, ntchito yanu, ndi ntchito yanu. Mwachitsanzo, anthu omwe amayendetsa zonyamula kapena zonyamula anthu angafunike kuuza abwana awo posachedwa, makamaka ngati zizindikiritso zawo zingakhudze chitetezo chawo komanso magwiridwe antchito.

Musanauze abwana anu za matenda anu, fufuzani za ufulu wanu pansi pa America ndi Disability Act. Pali njira zovomerezeka zantchito zomwe zingakutetezeni kuti musasiyidwe kapena kusalidwa chifukwa cha chilema.

Zina zomwe mungachite ndi izi:

• kuyimbira mzere wazidziwitso wa ADA, woyendetsedwa ndi department of Justice, womwe umapereka chidziwitso chazofunikira za ADA
• kuphunzira za maubwino olumala kuchokera ku Social Security Administration (SSA)
• kumvetsetsa ufulu wanu kudzera ku US Equal Employment Opportunity Commission (EEOC)

Mukamvetsetsa ufulu wanu, simukuyenera kuuza abwana anu nthawi yomweyo pokhapokha ngati mukufuna. Ngati pakadali pano mukuyambiranso, mutha kusankha kugwiritsa ntchito masiku anu odwala kapena masiku atchuthi.

Kuulula zambiri zamankhwala kwa abwana anu kumafunika pazochitika zina. Mwachitsanzo, muyenera kudziwitsa abwana anu kuti mugwiritse ntchito tchuthi chamankhwala kapena malo ogona pansi pa Family and Medical Leave Act (FMLA) komanso zomwe America ndi Disability Act (ADA) imapereka.

Muyenera kuuza abwana anu kuti mukudwala komanso kuti mupereke kalata ya dokotala yonena choncho. Simuyenera kuwauza mwachindunji kuti muli ndi MS.

Komabe, kuwulula kwathunthu kungakhale mwayi wophunzitsira abwana anu za MS ndipo kungakupatseni thandizo ndi thandizo lomwe mukufuna.

Kuuza tsiku lanu

Kuzindikira kwa MS sikuyenera kukhala mutu wazokambirana tsiku loyamba kapena lachiwiri. Komabe, kusunga zinsinsi sikuthandizira kukulitsa ubale wolimba.

Zinthu zikayamba kukhala zovuta, nkofunika kuti mumudziwitse mnzanu watsopano za matenda anu. Mutha kuwona kuti kumakupangitsani kuyandikana.

Tengera kwina

Kuuza anthu m'moyo wanu za matenda anu a MS kumakhala kovuta. Mutha kukhala ndi nkhawa zamomwe anzanu angakuchitireni kapena kuchita mantha kuti muwulule kwa omwe mumagwira nawo ntchito. Zomwe mumanena komanso mukauza anthu zili ndi inu.

Koma pomalizira pake, kufotokoza za matenda anu kungakuthandizeni kudziwitsa ena za MS ndikuwongolera ubale wolimba, wothandizana ndi okondedwa anu.