Momwe mungachitire zosintha zoyambitsidwa ndi matenda a Beckwith-Wiedemann

Zamkati

• Kuzindikira kwa matenda a Beckwith-Wiedemann

Chithandizo cha matenda a Beckwith-Wiedemann, omwe ndi matenda obadwa nawo obwerezabwereza omwe amachititsa kuchuluka kwa ziwalo zina za thupi kapena ziwalo, amasiyanasiyana kutengera kusintha kwa matendawa, chifukwa chake, chithandizo chimatsogozedwa ndi gulu la akatswiri azaumoyo omwe Angaphatikizepo dokotala wa ana, katswiri wamtima, dokotala wa mano ndi maopaleshoni angapo, mwachitsanzo.

Chifukwa chake, kutengera zizindikilo ndi zovuta zomwe zimayambitsa matenda a Beckwith-Wiedemann, mitundu yayikulu yamankhwala ndi awa:

• Kuchepetsa shuga m'magazi: jakisoni wa seramu wokhala ndi shuga amapangidwa mwachindunji mumitsempha ndikupewa kusowa kwa shuga komwe kumayambitsa kusintha kwamitsempha;
• Zolemba za umbilical kapena inguinal: chithandizo nthawi zambiri sichofunikira chifukwa hernias ambiri amatha chaka choyamba cha moyo, komabe, ngati chophukacho chikupitilira kukula kapena ngati sichitha mpaka zaka zitatu, kungafunikire kuchitidwa opaleshoni;
• Lilime lalikulu kwambiri: Opaleshoni itha kugwiritsidwa ntchito kukonza kukula kwa lilime, komabe, liyenera kuchitidwa pakatha zaka ziwiri. Mpaka zaka izi, mutha kugwiritsa ntchito mawere a silicone kuthandiza mwana wanu kudya mosavuta;
• Mavuto amtima kapena m'mimba: mankhwala amagwiritsidwa ntchito kuthana ndi vuto lililonse ndipo amayenera kumwa nthawi yonse ya moyo. Milandu yovuta kwambiri, adotolo angavomereze kuchitidwa opaleshoni kuti akonze kusintha kwakukulu pamtima, mwachitsanzo.

Kuphatikiza apo, ana obadwa ndi matenda a Beckwith-Wiedemann amakhala ndi khansa, chifukwa chake ngati kukula kwa chotupa kwadziwika, kungafunikenso kuchitidwa opaleshoni kuti achotse zotupa kapena mankhwala ena monga chemotherapy kapena radiation radiation.

Komabe, atalandira chithandizo, ana ambiri omwe ali ndi matenda a Beckwith-Wiedemann amakula mwanjira yabwinobwino, osakhala ndi mavuto atakula.

Kuzindikira kwa matenda a Beckwith-Wiedemann

Kupezeka kwa matenda a Beckwith-Wiedemann kumatha kuchitika pokhapokha pakuwona zovuta zomwe zimachitika mwanayo atabadwa kapena kudzera mumayeso owunikira, monga m'mimba ultrasound.

Kuphatikiza apo, kuti atsimikizire kuti ali ndi vutoli, adotolo amathanso kuyitanitsa magazi kuti akayezetse majini ndikuwona ngati pali kusintha kwa chromosome 11, popeza ili ndiye vuto lomwe limayambitsa matendawa.

Matenda a Beckwith-Wiedemann amatha kuchokera kwa makolo kupita kwa ana, chifukwa chake ngati kholo lililonse lidakhala ndi matendawa khanda, upangiri wa majini umalimbikitsidwa asanakhale ndi pakati.