Momwe Victoria Arlen Adadziperekera Kuti Akhale Wopunduka Kuti Akhale Paralympian

Zamkati

• Matenda Omwe Akukula Posachedwa, Osamvetsetseka
• Kutsutsa Zovuta ndi Madokotala Ake
• Kupezanso Mphamvu Zake
• Kukankhira Malire
• Takonzeka Kuthamanga
• Kuyang'ana Zamtsogolo
• Onaninso za

Kwa zaka zinayi zazitali, Victoria Arlen sankatha kuyenda, kulankhula, kapena kusuntha minofu ya m’thupi lake. Koma, osadziwika kwa iwo omuzungulira, amatha kumva ndikuganiza - ndipo atha, akuyembekeza. Kugwiritsa ntchito chiyembekezo chimenecho ndi komwe kumamupangitsa kuti athane ndi zovuta zomwe zimawoneka ngati zosatheka ndikubwezeretsanso thanzi ndi moyo.

Matenda Omwe Akukula Posachedwa, Osamvetsetseka

Mu 2006, ali ndi zaka 11, Arlen adadwala matenda owopsa kwambiri a myelitis, matenda omwe amayambitsa kutupa kwa msana, komanso acute disseminated encephalomyelitis (ADEM), matenda otupa a ubongo ndi msana - kuphatikiza izi. mikhalidwe iwiri ingakhale yakupha ikasiyidwa.

Tsoka ilo, sizinadutse mpaka atadwala koyamba pomwe Arlen pamapeto pake adalandira izi. Kuchedwako kungasinthe njira ya moyo wake kosatha. (Zokhudzana: Madokotala Ananyalanyaza Zizindikiro Zanga Kwa Zaka Zitatu Ndisanandipeze Ndi Gawo 4 Lymphoma)

Zomwe zimayamba ngati kupweteka pafupi ndi msana ndi m'mbali mwake zidakula mpaka kupweteka kwam'mimba, zomwe zidapangitsa kuti pakhale kupweteka kutulukira. Koma atamuchita opaleshoniyi, matenda ake amangopitilira kukula. Kenako, Arlen akuti phazi lake limodzi lidayamba kunyinyirika ndikukoka, kenako adataya mphamvu ndikugwira ntchito m'miyendo yonse iwiri. Posakhalitsa, anagonekedwa m’chipatala. Anayamba kutaya ntchito m'manja ndi m'manja, komanso kumeza bwino. Ankavutika kupeza mawu akafuna kulankhula. Ndipo zinali pamenepo, miyezi itatu yokha kuyambira pomwe matenda ake adayamba, pomwe akuti "zonse zidayamba kuda."

Arlen adakhala zaka zinayi zotsatira ali wolumala ndipo pazomwe iye ndi madotolo ake amatcha "dziko lamasamba" - osatha kudya, kulankhula, kapena ngakhale kusuntha minofu pankhope pake. Adakodwa mkati mwamthupi lomwe samatha kuyenda, ndi liwu lomwe sakanatha kuligwiritsa ntchito. (Tiyenera kudziwa kuti azachipatala adasiya mawu akuti vegetative state chifukwa cha zomwe ena anganene kuti ndi nthawi yofooketsa, m'malo mwake amangokhala ndi vuto losagalamuka.)

Dokotala aliyense makolo a Arlen omwe adafunsidwa sanapereke chiyembekezo chilichonse kubanjali. Arlen anati: “Ndinayamba kumva zokambitsirana zomwe sindikanachita kapena kuti ndidzakhala chonchi kwa moyo wanga wonse. (Zokhudzana: Ndinapezeka ndi Khunyu Osadziwa Ngakhale Kuti Ndimakomoka)

Ngakhale palibe amene anali kudziwa, Arlen akhoza amve zonse - anali akadali pamenepo, samangolankhula kapena kusuntha. "Ndinayesa kukuwa kuti andithandize ndikulankhula ndi anthu ndikusuntha ndikudzuka pabedi, ndipo palibe amene amandiyankha," akutero. Arlen akufotokoza zochitikazo kukhala "zotsekedwa mkati" ubongo ndi thupi lake; anadziwa kuti chinachake chinali cholakwika, koma sakanatha kuchita kalikonse.

Kutsutsa Zovuta ndi Madokotala Ake

Koma motsutsana ndi zovuta komanso kulosera kopanda chiyembekezo kwa akatswiri, Arlen adalumikizana ndi amayi ake mu Disembala 2009 - gulu lomwe lingatsimikizire ulendo wopita kuchipatala. (M'mbuyomu, akamatsegula maso amakhala ndi mawonekedwe opanda kanthu.)

Kubwerera kumeneku sikunali kokha chozizwitsa chachipatala: Mwiniwake, kuchira kwathunthu ku transversion myelitis sikungatheke ngati kupita patsogolo sikunachitike m'miyezi itatu mpaka isanu ndi umodzi yoyambirira, ndipo kuyambiranso kwa zizindikilo (monga Arlen adadziwira) kumangofooketsa izi kulosera, malinga ndi National Institutes of Health (NIH). Kuphatikiza apo, anali akumenyanabe ndi AEDM, yomwe imatha kuyambitsa "kufooka pang'ono mpaka pang'ono" pamavuto akulu monga a Arlen.

“Akatswiri anga [akali pano] anati, ‘Kodi muli ndi moyo bwanji? Anthu satuluka m’zimenezi!

Ngakhale atayambanso kusuntha - kukhala tsonga, kudya yekha - amafunikirabe chikuku pa moyo watsiku ndi tsiku ndipo madotolo anali kukayikira kuti atha kuyendanso.

Pamene Arlen anali wamoyo ndi maso, vutolo linasiya thupi ndi maganizo ake ndi zotsatira zokhalitsa. Kuwonongeka kwakukulu kwaubongo wake ndi msana kumatanthauza kuti Arlen sanathenso kufooka koma samatha kuyenda m'miyendo yake, zomwe zimapangitsa kuti zikhale zovuta kutumiza zikwangwani kuchokera kuubongo wake kumiyendo yake kuti ayambe kuchitapo kanthu. (Zokhudzana: Kukhala ndi Matenda Ofooketsa Anandiphunzitsa Kuyamikira Thupi Langa)

Kupezanso Mphamvu Zake

Kukula ndi abale atatu komanso banja lamasewera, Arlen amakonda masewera - makamaka kusambira, yomwe inali "nthawi yapadera" ndi amayi ake (wosambira mwakhama yekha). Ali ndi zaka zisanu, adauza mayi ake kuti apambana mendulo yagolide tsiku lina. Choncho ngakhale kuti anali ndi vuto linalake, Arlen ananena kuti ankangoika maganizo ake pa zimene iyeyo anali kuchita akhoza chitani ndi thupi lake, komanso ndi chilimbikitso cha banja lake, adayambiranso kusambira mu 2010.

Chimene poyamba chinayamba ngati chithandizo chamankhwala, chinayambitsanso kukonda kwake masewerawo. Sanali kuyenda koma amatha kusambira - ndipo bwino. Chifukwa chake Arlen adayamba kufunitsitsa kusambira kwake chaka chotsatira. Posakhalitsa, chifukwa cha maphunziro odziperekawa, adakwanitsa kuchita nawo Masewera a 2012 London Paralympic.

Adawona kutsimikiza mtima komanso khama likuwonekera pomwe amasambira ku Team USA ndikupambana mamendulo asiliva atatu - kuphatikiza kutenga golide mumpikisano wamamita 100.

Kukankhira Malire

Pambuyo pake, Arlen sanakhale ndi malingaliro oti angomangirira mendulo zake kuti apumule. Anagwirapo ntchito ndi Project Walk, malo ochiritsira anthu olumala omwe ali ku Carlsbad, CA, panthawi yomwe anali kuchira, ndipo akuti adakhala ndi mwayi wothandizidwa ndi akatswiri. Adafuna kubwezera mwanjira ina ndikupeza cholinga pa zowawa zake. Chifukwa chake, mu 2014, iye ndi banja lake adatsegula malo a Project Walk ku Boston komwe akapitilize kuphunzitsa ndikupatsanso malo okonzanso kwa ena omwe amafunikira.

Kenako, pophunzira chaka chotsatira, zosayembekezereka zidachitika: Arlen adamva china chake m'miyendo. Zinali minofu, ndipo amakhoza kumva kuti "kuyatsa," akufotokoza - zomwe sanamvepo kuyambira pomwe adafa ziwalo. Chifukwa cha kudzipereka kwake pakuchita masewera olimbitsa thupi, kusuntha kwa minofu kumodzi kunakhala chothandizira, ndipo pofika February 2016, Arlen anachita zomwe madokotala ake sanaganizirepo: Anachitapo kanthu. Patatha miyezi ingapo, amayenda molumikizana ndi ndodo popanda ndodo, ndipo abwera 2017, Arlen adayamba kugwira nkhandwe ngati wopikisana naye pa Kuvina ndi Nyenyezi.

Takonzeka Kuthamanga

Ngakhale adapambana pansi pa lamba wake, adawonjezeranso kupambana m'buku lake: Arlen adathamanga Walt Disney World 5K mu Januware 2020 - china chomwe chimamveka ngati loto lamoto pomwe anali atagona osagona pabedi lachipatala opitilira 10 zaka zisanachitike. (Zokhudzana: Momwe Ndinadzipatulira ku Half Marathon - ndikulumikizananso ndi Ine ndekha munjira)

"Mukakhala panjinga kwa zaka khumi, mumaphunzira kukonda kuthamanga!" akutero. Minofu yambiri mthupi lake lakumunsi tsopano yayenda (kwenikweni) chifukwa cha zaka zambiri zophunzitsidwa ndi Project Walk, komabe padakali kupita patsogolo ndi zina zazing'ono, zolimbitsa minofu m'miyendo ndi m'mapazi ake, akufotokoza.

Kuyang'ana Zamtsogolo

Lero, Arlen ndiye wolandila American Ninja Wankhondo Junior komanso mtolankhani wanthawi zonse wa ESPN. Ndi wolemba wolemba - werengani buku lake Kutsekedwa: Kufuna Kupulumuka ndi Kutsimikiza Kukhala Ndi Moyo (Buy It, $ 16, bookshop.org) - komanso woyambitsa Victoria's Victory, maziko omwe cholinga chake ndi kuthandiza ena omwe ali ndi "zovuta zoyenda chifukwa chovulala kapena matenda," powapatsa mwayi wamaphunziro kuti athe kuchira, malinga ndi tsamba la maziko.

"Kuyamikira ndiko komwe kunandithandiza kupitiliza zaka zambiri pomwe zinthu sizinkandiyendera," akutero Arlen. "Chowonadi chakuti ndikhoza kukanda mphuno ndi chozizwitsa. Pamene ndinali nditsekereredwa [thupi langa], ndikukumbukira ndikuganiza kuti 'Ndikadangokanda mphuno yanga tsiku lina ndikanakhala chinthu chachikulu kwambiri padziko lapansi!'" Tsopano, amauza anthu omwe akukumana ndi zovuta, kuti "siyani ndikukanda mphuno zanu" ngati njira yosonyezera momwe kuyenda kosavuta kotere kungatengeredwe mopepuka.

Amanenanso kuti ali ndi ngongole zochuluka kubanja lake. "Sanataye mtima pa ine," akutero. Ngakhale madokotala atamuuza kuti anali munthu wosokonekera, banja lake silinataye mtima. "Adandikankhira. Amakhulupirira ine."

Ngakhale adakumana ndi zonse, Arlen akuti sangasinthe chilichonse. "Zonse zimachitika pazifukwa," akutero. "Ndatha kusintha tsoka ili kukhala chinthu chopambana ndikuthandiza ena panjira."

Onaninso za