Nicholas (Matenda a cell)

Nicholas anapezeka ndi matenda a zenga atangobadwa kumene. Anadwala matenda am'manja pomwe anali khanda ("Ankalira ndikumenyetsa mutu kwambiri chifukwa cha kupweteka m'manja ndi m'mapazi," akukumbukira amayi ake, Bridget) ndipo adachotsedwa ndulu ndi ndulu ali ndi zaka 5. Penicillin, hydroxyurea ndipo mankhwala ena amuthandiza iye ndi banja lake kuthana ndi matendawa komanso zovuta zopweteka zomwe zitha kubweretsa kuchipatala. Tsopano ali 15 komanso wophunzira wolemekezeka kusukulu, Nicholas amakonda "kucheza," akumvera nyimbo, kusewera masewera apakanema, kulimbana ndikuphunzira ku jujitsu waku Brazil.

Nicholas adatenga nawo gawo poyesedwa koyamba zaka zitatu zapitazo. Zinayang'ana ubale womwe ulipo pakati pa zolimbitsa thupi ndi matenda a zenga.

Bridget akukumbukira kuti: "Mmodzi mwa madotolo a chipatala pachipatala chomwe timapita adazindikira kuti Nicholas ndi wodwalayo. “Ali mu masewera, ndipo ndi hydroxyurea sakhala mchipatala monga momwe anali kale. Chifukwa chake adatifunsa ngati tingachite kafukufuku kuti tiwone kupuma kwake. Ndidafunsa, kodi panali zoyipa zina zake? Ndipo choyipa chokha chinali choti amakhoza kupuma, mukudziwa. Chifukwa chake ndidafunsa Nicholas ngati zili bwino ndipo adati inde. Ndipo tidachita nawo. Chilichonse chomwe chingawathandize kuti adziwe zambiri za matendawa, tonse tili nawo. ”

Ngakhale kuti kafukufukuyu sanapangidwe kuti athetse thanzi laomwe akutenga nawo mbali, amayi ndi mwana anali osangalala ndikutenga nawo gawo komanso mwayi wothandizira kupititsa patsogolo chidziwitso cha asayansi za matendawa.

"Kuchita nawo maphunziro, ndikuganiza kuti kumathandiza madotolo kudziwa zambiri za matendawa ndipo, mukudziwa, kutuluka ndi mankhwala ambiri ndikungothandiza aliyense amene ali nawo," akutero a Nicholas. "Chifukwa chake mabanja awo ndi iwonso sadzakhala, ngati mukudziwa, pamavuto akumva kapena kuchipatala."

Pambuyo pazomwe banja lidachita bwino ndi kafukufukuyu, mu 2010 Nicholas adatenga nawo gawo pakuyesedwa kwachiwiri kuchipatala. Ameneyo amaphunzira momwe mapapu amagwirira ntchito kwa achinyamata omwe ali ndi matenda a zenga.

Bridget anati: "Ankakwera njinga pomwe maimidwe ake anali omangirira. "Ndipo amafuna kuti apite mwachangu kenako ndikuchepetsa. Ndipo pitani mwachangu. Ndipo pumani mu chubu. Ndipo adakoka magazi ake kuti amuyese. Thanzi lake silinasinthe, ndimangofuna kuwona momwe munthu yemwe ali ndi khungu la chikwakwa yemwe akugwirira ntchito, mukudziwa, momwe mapapo ake amagwirira ntchito. ”

Zofanana ndi kuyesa koyambirira, phindu lotenga nawo mbali silinakhale la a Nicholas koma kuthandiza madokotala ndi ofufuza kuti adziwe zambiri za matenda a zenga.

Nicholas akuti, "Ndikhulupirira kuti madotolo azindikira momwe angathere pokhudzana ndi khungu la chikwakwa, chifukwa zimangothandiza odwala cellle ndi mabanja awo, mukudziwa, kuti asakhale mchipatala momwemo. Kukhala okhoza kuchita zomwe amachita zochulukirapo, kukhala ndi moyo wanthawi zonse komanso kupitiriza ndi ndandanda zawo m'malo mongopeza tchuthi kuti mupite kuchipatala ndipo, mukudziwa, kudutsa ululu wonsewo, zinthu monga choncho. ”

Bridget ndi Nicholas amakhala otseguka kuti athe kutenga nawo mbali pazithandizo zamankhwala zambiri poganizira zomwe ali bwino monga banja.

"Ndikuganiza kuti anthu ena ayenera kuchita izi [kutenga nawo mbali pakufufuza zamankhwala] bola ngati sangamve kuti pali zovuta zilizonse," akutero. “Ndikutanthauza, bwanji? Ngati zingathandize kuti mahematologists azindikire khungu la zenga munjira ina, ndine wololera. Ndife tonse za izo. Tikufuna adziwe momwe angathere ponena za selo yache. ”

Wopangidwa ndi chilolezo kuchokera ku. NIH sivomereza kapena kuvomereza chilichonse chazogulitsa, ntchito, kapena zidziwitso zomwe zafotokozedwa pano ndi Healthline. Tsamba lomaliza lawunikanso pa Okutobala 20, 2017.