Zomwe Ndimamulera Mwana Wanga Wamkazi Ndi Cerebral Palsy Zinandiphunzitsa Zokhala Wamphamvu

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Wolemba Christina Smallwood

Anthu ambiri sadziwa ngati angathe kutenga mimba mpaka atayesa. Ndinaphunzira kuti njira yovuta.

Ine ndi mwamuna wanga titayamba kuganiza zokhala ndi mwana, sitinaganizepo momwe zingakhalire zovuta. Zaka zoposa zinatha popanda mwayi, ndipo mu December 2012, banja lathu linakumana ndi tsoka.

Bambo anga anachita ngozi ya njinga yamoto ndipo anakhala chikomokere kwa milungu inayi asanamwalire. Kunena kuti ndinali wodandaula mwakuthupi komanso mwamalingaliro sichinthu chabodza. M'pomveka kuti panali patadutsa miyezi yambiri kuti tikhale ndi mphamvu zoyeseranso kukhala ndi mwana. Tisanadziwe, Marichi adazungulira, ndipo pamapeto pake tidaganiza zoyesa chonde chathu. (Zomwe Ob-Gyns Amalakalaka Akazi Adziwa Zokhudza Kubereka Kwawo)

Zotsatira zake zidabweranso patatha milungu ingapo, ndipo madokotala adandiwuza kuti mlingo wanga wa anti-Müllerian hormone unali wotsika kwambiri, zotsatira zodziwika za kumwa Accutane, zomwe ndidazitenga ndili wachinyamata. Kuchepetsa kwambiri mahomoni oberekera oterewa kunatanthauzanso kuti ndilibe mazira okwanira m'mimba mwanga, zomwe zimandipangitsa kuti ndizibereka mwachilengedwe. Titatenga nthawi kuti tithetse kukhumudwa kumeneku, tinapanga chisankho kuti titengere.

Pambuyo pa miyezi ingapo ndi matani a mapepala ndi kufunsa mafunso, potsirizira pake tinapeza okwatirana amene anali ndi chidwi mwa ife monga makolo olera. Posakhalitsa titakumana nawo, adatiuza ine ndi amuna anga kuti tidzakhala makolo a mwana wamkazi m'miyezi yochepa chabe. Chisangalalo, chisangalalo, ndi kusefukira kwamalingaliro ena omwe tidamva munthawiyo zinali zenizeni.

Patangotha ​​sabata imodzi kuchokera pomwe tidapimidwa kwa sabata la 30 ndi mayi wobereka, adayamba kugwira ntchito asanakwane. Nditalandira lembalo lonena kuti mwana wanga wamkazi wabadwa, ndimamva ngati ndikulephera kale ngati mayi chifukwa ndawaphonya.

Tinathamangira kuchipatala ndipo panali patadutsa maola ochepa kuti timuwone. Panali zolemba zambiri, "tepi yofiira," komanso kutengeka maganizo, kotero kuti pamene ndinalowa m'chipindamo, ndinazindikira kuti sindinapezepo mwayi woganizira za kubadwa kwake msanga. Koma chachiwiri ndinamuyang'ana, chomwe ndimafuna kumukumbatira ndikumuuza kuti ndichita zonse zomwe ndingathe kuti akhale ndi moyo wabwino.

Thayo la kusunga lonjezo limenelo linadziŵika bwino kwambiri pamene patangopita masiku aŵiri okha pambuyo pa kubadwa kwake tinalonjezedwa ndi gulu la akatswiri a minyewa ponena kuti anapeza vuto laling’ono muubongo wake mkati mwa ultrasound yachizoloŵezi. Madotolo ake sanali otsimikiza ngati chitha kukhala chodetsa nkhawa, koma anali kuyang'anira maola angapo aliwonse kuti atsimikizire. Ndipamene msinkhu wake unayamba kutimenya. Koma ngakhale tinakumana ndi zovuta zonse zakulera komanso zovuta mchipatala, sindinaganizepo kuti, "O. Mwina sitiyenera kuchita izi." Apa ndi pamene tinaganiza zomutcha dzina lakuti Finley, kutanthauza "wankhondo wabwino."

Pambuyo pake, tinatha kubweretsa Finley kunyumba, osadziwa kwenikweni kuti kuvulala kwake muubongo kumatanthauza chiyani pa thanzi lake komanso tsogolo lake. Sizinachitike mpaka pomwe adasankhidwa miyezi 15 mu 2014 kuti pamapeto pake amapezeka kuti ali ndi spastic diplegia cerebral palsy. Matendawa amakhudza kwambiri thupi lapansi, ndipo madokotala adanena kuti Finley sadzatha kuyenda yekha.

Monga mayi, nthawi zonse ndinkaganiza kuti tsiku lina ndidzathamangitsa mwana wanga kunyumba, ndipo zinali zowawa kuganiza kuti zimenezo sizidzachitika. Koma amuna anga ndi ine nthawi zonse timakhala ndi chiyembekezo kuti mwana wathu wamkazi azikhala ndi moyo wathunthu, chifukwa chake timatsatira kutsogolera kwake ndikukhala olimba mtima chifukwa cha iye. (Zokhudzana: Trending Twitter Hashtag Imapatsa Mphamvu Anthu Olumala)

Koma titangoyamba kumvetsa tanthauzo la kukhala ndi mwana amene ali ndi “zosowa zapadera” n’kumayesetsa kusintha moyo wathu, mayi a mwamuna wanga anapezeka ndi khansa ya muubongo ndipo kenako anamwalira.

Kumeneko tinabwereranso - timakhala masiku athu ambiri muzipinda zodikirira. Pakati pa abambo anga, Finley, kenako apongozi anga, ndinamva ngati ndimakhala kuchipatala chimenecho ndipo sindinkatha kupuma. Panali pomwe ndinali m'malo amdima aja pomwe ndidaganiza zoyamba kulemba mabulogu pazomwe zandichitikira kudzera mwa Fifi + Mo, kuti ndikhale ndi malo otulutsira mavuto onse ndikukhumudwa komwe ndimamva. Ndikuyembekeza kuti mwina, basi mwina, munthu wina m'modzi angawerenge nkhani yanga ndikupeza mphamvu ndikulimbikitsidwa podziwa kuti sali okha. Ndipo pobwezera, mwina inenso ndikanatero. (Zogwirizana: Upangiri Wopeza Ngakhale Zosintha Zazikulu Kwambiri M'moyo)

Pafupifupi chaka chapitacho, tidamva nkhani zopambana koyamba kwa nthawi yayitali pomwe madokotala adatiuza kuti Finley apanga mwayi woti achite opaleshoni ya dorsal rhizotomy (SDR), njira yomwe ikuyenera kukhala moyo ukusintha kwa ana omwe ali ndi CP spastic. Kupatula, kumene, panali kugwira. Opaleshoniyo imawononga $ 50,000, ndipo inshuwaransi siyimalipira.

Ndi blog yanga ikukulirakulira, tidaganiza zopanga #daretodancechallenge pazama media kuti tiwone ngati zingalimbikitse anthu kupereka ndalama zomwe timafunikira. Poyamba, ndimaganiza kuti ngakhale nditakhala kuti abale ndi abwenzi atenga nawo mbali, zingakhale zabwino. Koma sindinkadziwa kuti lidzakhala lotani m’masabata angapo otsatira. Pamapeto pake, tinapeza ndalama zokwana madola 60,000 m’miyezi iŵiri, zimene zinali zokwanira kulipirira opaleshoni ya Finley ndi kusamalira zoyendera zofunika ndi zogulira zina.

Kuyambira pamenepo, adalandiranso chithandizo cha stem cell chovomerezedwa ndi FDA chomwe chamuthandiza kuti azigwedeza zala zake zala-asanamuchite opaleshoni komanso chithandizochi, sanathe kuzisuntha nkomwe. Amakulitsanso mawu, akumakanda ziwalo za thupi lake zomwe sanachitepo kale, kusiyanitsa china chake "chopweteka" ndi "kuyabwa." Ndipo chofunika kwambiri, iye ali kuthamanga wopanda nsapato mumayendedwe ake. Ndizosangalatsa komanso zolimbikitsa kwambiri kumuwona akumwetulira ndikuseka panthawi yomwe ingakhale yovuta kwambiri komanso yovuta pamoyo wake.

Ngakhale kuti takhala tikuyang'ana kwambiri kupanga moyo wabwino kwa Finley, iye watichitiranso chimodzimodzi. Ndili wokondwa kukhala mayi wake, ndipo kuwonera mwana wanga ali ndi zosowa zapadera kumandisonyeza zomwe zimatanthauza kukhala wamphamvu.

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