Zomwe Zimamvekera Kukhala ndi IPF

Zamkati

• Chuck Boetsch, yemwe adapezeka mu 2013
• George Tiffany, yemwe adapezeka mu 2010
• Maggie Bonatakis, yemwe adapezeka mu 2003

Ndi kangati mwamvapo wina akunena kuti, "Sizingakhale zoyipa chonchi"? Kwa iwo omwe ali ndi idiopathic pulmonary fibrosis (IPF), kumva izi kuchokera kwa abale awo kapena abwenzi - ngakhale atakhala kuti akutanthauza bwino - zitha kukhala zokhumudwitsa.

IPF ndi matenda osowa koma oopsa omwe amachititsa kuti mapapu anu awume, zomwe zimapangitsa kuti zikhale zovuta kulowetsa mpweya ndikupuma mokwanira. IPF ikhoza kukhala yodziwika bwino monga COPD ndi matenda ena am'mapapo, koma sizikutanthauza kuti simuyenera kutenga njira yolankhulira ndikuyankhula za izi.

Umu ndi m'mene anthu atatu - omwe adapezeka atapitilira zaka 10 - amafotokozera za matendawa, komanso zomwe akufuna kufotokozera ena.

Chuck Boetsch, yemwe adapezeka mu 2013

Ndizovuta kukhala ndimaganizo omwe amafuna kuchita zinthu zomwe thupi silingathe kuzichita mosavuta, ndikuyenera kusintha moyo wanga kuthupi langa latsopano. Pali zina zomwe ndimakonda kuchita zomwe sindingathe kuzichita ndisanapezeke ndikuphatikizapo kusuta, kukwera mapiri, kuthamanga, ndi zina zambiri, ngakhale zina zitha kuchitidwa ndikugwiritsa ntchito mpweya wowonjezera.

Kuphatikiza apo, sindimapita kukacheza ndi anzanga pafupipafupi, chifukwa ndimatopa msanga ndipo ndimayenera kupewa kukhala pagulu lalikulu la anthu omwe atha kudwala.

Komabe, pamalingaliro akulu azinthu, izi ndizovuta zazing'ono poyerekeza ndi zomwe ena olumala amakhala nazo tsiku lililonse. … Zimakhalanso zovuta kukhala ndi moyo wotsimikiza kuti ichi ndi matenda opita patsogolo, ndikuti ndikhoza kungoyenda mopanda kuzindikira. Popanda mankhwala, kupatula kumuika m'mapapu, izi zimabweretsa nkhawa zambiri. Ndi kusintha kovuta kuti musaganize za kupuma ndikuganiza za mpweya uliwonse.

Pamapeto pake, ndimayesetsa kukhala moyo tsiku limodzi ndikusangalala ndi chilichonse chozungulira. Ngakhale sindingathe kuchita zomwe ndimachita zaka zitatu zapitazo, ndine wodala ndikuthokoza chifukwa chothandizidwa ndi abale anga, abwenzi, komanso gulu lazachipatala.

George Tiffany, yemwe adapezeka mu 2010

Wina akafunsa za IPF, ndimakonda kumuyankha mwachidule kuti ndi matenda am'mapapo momwe zimapumira komanso kupuma movutikira pakapita nthawi. Ngati munthuyo ali ndi chidwi, ndimayesetsa kufotokoza kuti matendawa ali ndi zifukwa zosadziwika ndipo amaphatikizapo zipsera zam'mapapo.

Anthu omwe ali ndi IPF amakhala ndi zovuta pakuchita zovuta zina monga kukweza kapena kunyamula katundu. Mapiri ndi masitepe akhoza kukhala ovuta kwambiri. Zomwe zimachitika mukamayesera kuchita chilichonse mwazimenezi mumakhala ndi mphepo, kupuma, ndikumverera ngati kuti simungapeze mpweya wokwanira m'mapapu anu.

Mwina gawo lovuta kwambiri la matendawa ndi pamene mupezedwa ndikuuzidwa kuti mwatsala ndi zaka zitatu kapena zisanu kuti mukhale ndi moyo. Kwa ena, nkhaniyi ndi yodabwitsa, yowawonongera, komanso yotopetsa. Zanga, okondedwa atha kukhala ovuta monga wodwalayo.

Za ine ndekha, ndikumva kuti ndakhala ndi moyo wabwino komanso wabwino, ndipo ngakhale ndikufuna kuti upitilize, ndine wokonzeka kuthana ndi chilichonse chomwe chingabwere.

Maggie Bonatakis, yemwe adapezeka mu 2003

Kukhala ndi IPF ndi kovuta. Zimandipangitsa kuti ndizipuma komanso ndikatopa mosavuta. Ndimagwiritsanso ntchito mpweya wowonjezera, ndipo izi zakhudza zomwe ndimatha kuchita tsiku lililonse.

Zitha kukhalanso zosungulumwa nthawi zina: Nditapezeka ndi IPF, sindinathenso kupita maulendo anga kukachezera zidzukulu zanga, zomwe zinali zovuta kwambiri chifukwa ndimakonda kuyenda kukawaona nthawi zonse!

Ndikukumbukira kuti nditapimidwa koyamba, ndinachita mantha chifukwa cha matendawa. Ngakhale pali masiku ovuta, banja langa - komanso nthabwala zanga - zimandithandiza kukhalabe ndi chiyembekezo! Ndatsimikiza kuti ndikambirana bwino ndi madotolo anga zamankhwala anga komanso kufunika kopita kukonzanso mapapu. Kukhala ndi mankhwala omwe amachepetsa kupititsa patsogolo kwa IPF ndikuchita nawo gawo pothana ndi matendawa kumandipatsa mphamvu.