Njira 7 Zomwe Ndazolowera Matenda Aakulu Ndikupitilizabe ndi Moyo Wanga

Zamkati

• 1. Ine sindinatero, kwenikweni - koma izo nzabwino
• 2. Ndinayamba chizolowezi chosasintha
• 3. Ndinapeza zinthu zambiri zosintha pa moyo wanga
• 4. Ndinalumikizana ndi anthu am'dera lathu
• 5. Ndinabwerera kuchokera kumagulu ochezera pa intaneti pomwe ndimafunikira
• 6. Ndimakhazikitsa malire ndi okondedwa anga
• 7.Ndidapempha thandizo (ndikuvomera!)

Nditangopezeka ndi matendawa, ndinali pamalo amdima. Ndinadziwa kuti sizinali njira zokhalira pamenepo.

Nditapezeka ndi matenda a hypermobile Ehlers-Danlos (hEDS) mu 2018, khomo la moyo wanga wakale lidatsekedwa. Ngakhale ndinabadwa ndi EDS, sindinali wolumala kwenikweni chifukwa cha zizindikirazo mpaka nditakwanitsa zaka 30, monga momwe zimakhalira ndi ziwalo zolumikizira, autoimmune, ndi matenda ena osachiritsika.

Mwanjira ina? Tsiku lina ndinu "wabwinobwino" ndiyeno mwadzidzidzi, mukudwala.

Ndidakhala zaka zambiri za 2018 m'malo amdima mwamalingaliro, ndikukonza zakusazindikira kwa moyo wanga wonse ndikukhumudwitsa zina mwa ntchito komanso maloto amoyo omwe ndidakakamizidwa kusiya. Wovutika maganizo komanso wopweteka nthawi zonse, ndinapempha chilimbikitso ndi chitsogozo chokhala ndi moyo wodwala.

Tsoka ilo, zambiri zomwe ndidapeza m'magulu ndi ma forum a EDS pa intaneti zinali zokhumudwitsa. Zikuwoneka kuti matupi ena onse komanso miyoyo ikugwa ngati yanga.

Ndinkafuna buku lotsogolera lomwe lingandilangize zomwe ndingachite pamoyo wanga. Ndipo ngakhale kuti sindinapezepo bukuli, pang'onopang'ono ndinalumikizana pamodzi ndi upangiri ndi njira zomwe zimandithandizira.

Ndipo tsopano, ngakhale moyo wanga ulidi wosiyana ndi momwe udakhalira, ndiwokhutiritsanso, wachuma, komanso wokangalika. Icho chokha si chiganizo chomwe ine ndimaganiza kuti ndidzakhoza kulemba kachiwiri.

Ndiye mungafunse kuti, Kodi ndinazolowera bwanji kukhala ndi matenda osachiritsika osalola kuti azilamulira moyo wanga?

1. Ine sindinatero, kwenikweni - koma izo nzabwino

Kumene zinandilanda moyo wanga! Ndinali ndi madotolo ambiri oti ndiwawone ndikuyesa kuti nditsimikizidwe. Ndinali ndi mafunso ambiri, nkhawa, mantha.

Dzipatseni chilolezo kuti musochere pakuwunika - ndimawona kuti zimathandiza kukhazikitsa nthawi yokwanira (miyezi 3 mpaka 6). Mudzalira kwambiri ndipo mudzakhala ndi zopinga. Landirani komwe muli ndipo muyembekezere kuti izi zisintha kwambiri.

Mukakhala okonzeka, mutha kugwira ntchito yosintha moyo wanu.

2. Ndinayamba chizolowezi chosasintha

Popeza ndimagwirira ntchito kunyumba ndikumva kuwawa kwambiri, padalibe chilichonse chomwe chimandilimbikitsa kuti ndichoke panyumba (kapena pabedi langa). Izi zidadzetsa kukhumudwa ndikumva kuwawa, kukulitsa kusowa kwa dzuwa komanso anthu ena.

Masiku ano, ndimakhala ndi chizolowezi m'mawa, ndipo ndimakondwera ndi gawo lililonse: Kuphika kadzutsa, kutsuka mbale, kutsuka mano, kusamba nkhope, zotchinga dzuwa, ndiyeno, nthawi iliyonse yomwe ndingathe, ndimakhala ndimiyendo yolimbitsa thupi yanga (zonse zanyamula wanga wodekha corgi ndikulira).

Ndondomeko yokhazikika imandidzutsa pabedi mofulumira komanso mosasinthasintha. Ngakhale m'masiku oyipa pomwe sindingathe kukwera mapiri, ndimatha kupanga kadzutsa ndikukhala ndi ukhondo, ndipo zimandithandiza kuti ndizimva ngati munthu.

Nchiyani chingakuthandizeni kudzuka tsiku lililonse? Ndi kachitidwe kakang'ono kotani kamene kangakuthandizeni kumva kuti ndinu munthu?

3. Ndinapeza zinthu zambiri zosintha pa moyo wanga

Ayi, kudya nyama yambiri sikuchiza matenda anu (pepani!). Kusintha kwa moyo si chipolopolo chamatsenga, koma kuthekera kokulitsa moyo wanu.

Ndi matenda osachiritsika, thanzi lanu ndi thupi lanu ndizofooka pang'ono kuposa zambiri. Tiyenera kukhala osamala kwambiri ndi momwe timachitira ndi matupi athu.

Poganizira izi, kuyankhula zenizeni, nthawi yolangiza osasangalatsa: Sakani zosintha zomwe mungachite zomwe zingakuthandizeni. Malingaliro ena: Siyani kusuta fodya, pewani mankhwala osokoneza bongo, kugona mokwanira, ndikupeza chizolowezi cholimbitsa thupi chomwe mungatsatire chomwe sichikukuvulazani.

Ndikudziwa, ndi malangizo osasangalatsa komanso osasangalatsa. Zimatha kumva ngati zonyoza pomwe sungathe ngakhale kutuluka pabedi. Koma ndi zoona: Zinthu zing'onozing'ono zimawonjezera.

Kodi kusintha kosintha kwa moyo wanu kumawoneka bwanji kwa inu? Mwachitsanzo, ngati mumathera nthawi yochuluka pabedi, fufuzani zochitika zina zolimbitsa thupi zomwe zingachitike pabedi (iwo ali kunja uko!).

Unikani moyo wanu mwachifundo koma moyenera, osaganiza chilichonse. Kodi ndi pang'ono kapena kusintha kotani komwe mungayesere lero komwe kungasinthe zinthu? Zolinga zanu za sabata ino ndi ziti? Sabata lamawa? Miyezi isanu ndi umodzi kuchokera pano?

4. Ndinalumikizana ndi anthu am'dera lathu

Ndakhala ndikudalira kwambiri anzanga ena omwe ali ndi EDS, makamaka ndikakhala wopanda chiyembekezo. Mwayi wake, mutha kupeza osachepera munthu m'modzi yemwe ali ndi matenda anu omwe akukhala moyo womwe mukufuna.

Mnzanga Michelle anali chitsanzo changa cha EDS. Anamupeza kale ine ndisanabadwe ndipo anali wanzeru komanso womvetsa chisoni pamavuto anga apano. Amakhalanso badass yemwe amagwira ntchito yanthawi zonse, amapanga zaluso zokongola, ndipo amakhala ndi moyo wathanzi.

Anandipatsa chiyembekezo chomwe ndimafuna kwambiri. Gwiritsani ntchito magulu othandizira pa intaneti komanso malo ochezera pa intaneti osati kungopeza upangiri, koma kupeza anzanu ndikumanga gulu.

5. Ndinabwerera kuchokera kumagulu ochezera pa intaneti pomwe ndimafunikira

Inde, magulu ochezera pa intaneti atha kukhala othandiza kwambiri! Koma amathanso kukhala owopsa ndikuwononga moyo.

Moyo wanga sikuti umangokhala za EDS, ngakhale zinali zowona ngati miyezi 6 mpaka 8 yoyamba mutapezeka. Malingaliro anga anali ozungulira, ululu womwe umakhalapo nthawi zonse unkandikumbutsa kuti ndili nawo, ndipo kupezeka kwanga pafupipafupi m'maguluwa kumangolimbikitsa chidwi changa nthawi zina.

Tsopano ndi gawo za moyo wanga, osati moyo wanga wonse. Magulu apaintaneti ndi chinthu chofunikira, kutsimikiza, koma musalole kuti chikhale chosintha chomwe chimakulepheretsani kukhala moyo wanu.

6. Ndimakhazikitsa malire ndi okondedwa anga

Thupi langa litayamba kuchepa ndipo ululu wanga udakulirakulira mu 2016, ndidayamba kufafaniza anthu mochulukira. Poyamba, zidandipangitsa kuti ndizimva ngati flake komanso bwenzi loyipa - ndipo ndiyenera kuphunzira kusiyana pakati pakudziyendetsa ndikudzisamalira ndekha, zomwe sizimveka bwino nthawi zonse monga mungaganizire.

Ndikadwala kwambiri, sindinkakonda kucheza ndi anthu. Nditatero, ndinawachenjeza kuti ndiyenera kusiya mphindi yomaliza chifukwa kupweteka kwanga kunali kosayembekezereka. Ngati sakanakhala ozizira ndi izi, palibe vuto, sindinkaika patsogolo maubwenzi amenewo m'moyo wanga.

Ndaphunzira kuti ndibwino kuti anzanu adziwe zomwe angayembekezere kuchokera kwa ine, ndikuika patsogolo thanzi langa patsogolo. Bonasi: Zimapangitsanso kuwonekera bwino kuti abwenzi anu enieni ndi ndani.

7.Ndidapempha thandizo (ndikuvomera!)

Izi zikuwoneka ngati zosavuta, komabe pakuchita, zitha kukhala zovuta kwambiri.

Koma mverani: Ngati wina akufuna kukuthandizani, khulupirirani kuti zomwe akupatsani ndi zowona, ndipo vomerezani ngati mukufuna.

Ndidadzivulaza kambiri chaka chatha chifukwa ndinali wamanyazi kupempha amuna anga kuti akweze chinthu chimodzi za ine. Zimenezo zinali zopusa: Ali ndi mphamvu, sindine. Ndinayenera kusiya kunyada ndikudzikumbutsa kuti anthu omwe amasamala za ine akufuna kundithandiza.

Ngakhale matenda osachiritsika atha kukhala olemetsa, chonde kumbukirani kuti inu - munthu wokhala ndi phindu komanso ofunika - motsimikiza simuli. Chifukwa chake, pemphani thandizo pomwe mukufuna, ndipo mulandireni mukalandira.

Muli ndi izi.

Ash Fisher ndi wolemba komanso woseketsa yemwe amakhala ndi matenda a hypermobile Ehlers-Danlos. Pamene sakhala ndi tsiku logwedezeka-mwana-nswala, akuyenda ndi corgi yake, Vincent. Amakhala ku Oakland. Dziwani zambiri za iye patsamba lake.