Zinthu 6 Zofunsa Dotolo Wanu Ngati Chithandizo Chanu cha AHP Sichikugwira Ntchito

Zamkati

• Nkaambo nzi ncotweelede kuzumanana kusyomeka?
• Kodi ndiyenera kupita kuchipatala?
• Ndi mankhwala ati omwe amapezeka kuofesi yanu?
• Kodi ndikufunika phlebotomy?
• Ndi mankhwala ati omwe amathandizidwa ndi AHP?
• Kodi pali kusintha kwa moyo komwe kungathandize?
• Tengera kwina

Mankhwala a hepatic porphyria (AHP) amasiyana malinga ndi zizindikiritso zanu komanso thanzi lanu lonse. Kusamalira momwe zinthu zilili ndikofunikira popewa zovuta.

Komabe, ndikofunika kulankhula ndi dokotala ngati zizindikiro zanu zikukulirakulira kapena mukumenyedwa kwambiri kuposa masiku onse.

Ganizirani mafunso otsatirawa ngati poyambira mukamakambirana ndi dokotala za chithandizo cha AHP.

Nkaambo nzi ncotweelede kuzumanana kusyomeka?

Ngakhale ndondomeko yoyendetsera bwino, kuwukira kwa AHP ndikotheka.

Zizindikiro zimatha kuchitika nthawi iliyonse pomwe thupi lanu lilibe heme yokwanira yopanga mapuloteni a hemoglobin m'maselo anu ofiira. Mapuloteni omwewo amapezeka muminyewa yanu komanso mumtima mwanu.

Funsani dokotala wanu ngati pali zizindikilo zilizonse zomwe mungayang'anire zomwe zitha kuwonetsa AHP. Izi zingaphatikizepo:

• kukulitsa ululu
• kupweteka m'mimba
• nseru
• kusanza
• kuvuta kupuma
• kuthamanga kwa magazi ndi kugunda kwa mtima
• kusowa kwa madzi m'thupi
• kugwidwa

Kodi ndiyenera kupita kuchipatala?

Dokotala wanu angakulimbikitseni kupita kuchipatala ngati mukukumana ndi AHP. Zizindikiro zofatsa sizingapangitse kuti anthu azigonekedwa mokwanira.

Muyenera kupita kuchipatala ngati zasintha kwambiri kuthamanga kwa magazi kapena kugunda kwa mtima, khunyu, kapena kukomoka. Zowawa zazikulu zitha kuyankhulidwanso kuchipatala.

Mukakhala kuchipatala, mutha kupatsidwa chithandizo kudzera m'mitsempha kuti muchepetse msanga. Dokotala wanu amathanso kukuyang'anirani pazovuta zazikulu ndi impso kapena chiwindi.

Ngati simukudziwa ngati mukufuna kupita kuchipatala, itanani dokotala wanu kapena muwapemphe kuti akupatseni nambala yapa foni pambuyo pake yomwe mungayimbireni malangizo.

Ndi mankhwala ati omwe amapezeka kuofesi yanu?

Njira zambiri zochiritsira zadzidzidzi zomwe zimapezeka ku AHP kuchipatala zimapezekanso kuofesi ya dokotala wanu.

Izi nthawi zambiri zimaperekedwa m'mlingo wochepa ngati gawo la kukonza, m'malo mongolandira chithandizo mwadzidzidzi.

Mankhwalawa ndi awa:

• Mitsempha ya shuga: amathandiza kuchepetsa milingo ya shuga ngati simukupeza zokwanira kuti apange maselo ofiira
• mtedza wolowa: mtundu wa heme woperekedwa kangapo pamwezi kupewa AHP
• hemin jakisoni: mawonekedwe amtundu wa heme amalimbikitsidwa ngati thupi lanu likupanga ma porphyrin ochulukirapo komanso osakwanira heme
• phlebotomy: njira yochotsera magazi yomwe cholinga chake ndi kuchotsa chitsulo chochulukirapo mthupi
• gonadotropin-yotulutsa hormone agonist: mankhwala akuchipatala omwe amagwiritsidwa ntchito kwa azimayi atataya heme panthawi yomwe akusamba
• mankhwala amtundu: izi zimaphatikizaponso givosiran, yomwe imachepetsa kuchuluka kwa zopangidwa ndi poizoni zomwe zimapangidwa m'chiwindi

Kodi ndikufunika phlebotomy?

Phlebotomy imagwiritsidwa ntchito mu AHP ngati muli ndi chitsulo chochuluka m'magazi anu. Iron ndi yofunikira pakupanga ndikusamalira maselo ofiira, koma milingo yayikulu imatha kuyambitsa kuukira kwa AHP.

Phlebotomyamachepetsa malo ogulitsa zinthu zachitsulo, zomwe zimapangitsa kuti heme kaphatikizidwe ndikusokonezedwa ndi ferro-mediated inhibition ya uroporphyrinogen decarboxylase. Kuyezetsa magazi pafupipafupi kumathandizira kuti chitsulo chanu chikhale pamlingo woyenera.

Ngati mukufuna phlebotomy, itha kuchitidwa mopitilira kuchipatala. Mukamachita izi, dokotala wanu amachotsa magazi anu kuti athetse chitsulo chowonjezera.

Ndi mankhwala ati omwe amathandizidwa ndi AHP?

Ngati muli ndi shuga wochepa koma simufunikira shuga IV, adotolo angakulimbikitseni mapiritsi a shuga.

Ena mwa ma agonist amathandizanso azimayi omwe akusamba. Pa msambo, mutha kukhala pachiwopsezo chotaya heme wambiri.

Dokotala wanu akhoza kukupatsani leuprolide acetate, mtundu wa gonadotropin-wotulutsa hormone agonist. Izi zidzakuthandizani kupewa kutayika kwa heme nthawi yanu yakusamba, yomwe ingalepheretse kuukira kwa AHP.

Mankhwala a Gene monga givosiran (Givlaari) amathanso kulamulidwa kuti achepetse zotulutsa za chiwindi. Givosiran yovomerezeka mu Novembala 2019.

Kodi pali kusintha kwa moyo komwe kungathandize?

Zakudya, mankhwala, komanso kusankha moyo nthawi zina zimatha kuyambitsa AHP. Kuchepetsa izi zoyambitsa - kapena kuzipewa - zitha kuthandizira dongosolo lanu la chithandizo ndikuchepetsa chiopsezo.

Uzani dokotala wanu za mankhwala onse, zowonjezerapo, ndi zina zomwe mumagwiritsa ntchito.

Ngakhale zowonjezera zowonjezera zimatha kusokoneza chikhalidwe chanu. Zina mwazomwe zimayambitsa matendawa ndizomwe zimalowetsa m'malo mwa mahomoni ndi zowonjezera mavitamini.

Kusuta ndi kumwa kumatha kukulitsa AHP yanu. Kusuta kulikonse sikokwanira. Koma achikulire ena omwe ali ndi AHP atha kumwa pang'ono. Funsani dokotala ngati zili choncho kwa inu.

Yesetsani kukhala ndi chakudya chopatsa thanzi komanso dongosolo lochita masewera olimbitsa thupi. Ngati muli ndi AHP, kudya pang'ono kumatha kumaliza heme ndikuwonjezera zizindikiro zanu.

Ngati mukufuna kuchepa thupi, funsani dokotala kuti akuthandizeni kupanga mapulani ochepetsa thupi omwe sangakuletseni matenda anu.

Pomaliza, pangani dongosolo lothandizira kupsinjika ndi kuligwiritsa ntchito. Palibe moyo wa munthu wopanda nkhawa komanso kukhala ndi zovuta ngati AHP zomwe zingayambitse kupanikizika kwina. Mukapanikizika kwambiri, pamakhala chiopsezo chachikulu chakuukiridwa.

Tengera kwina

AHP ndi matenda osowa komanso ovuta. Pali zambiri zoti muphunzire za izi. Ndikofunika kuti muzilumikizana ndi dokotala wanu ndi kuwauza ngati simukuganiza kuti njira yanu yothandizira ikugwira ntchito.

Kulankhula ndi dokotala kumatha kuwathandiza kuti azindikire zomwe zikuchitika ndikukulimbikitsani kuti muthandizidwe.