Kulumikizana Kwapakati pa Exocrine Pancreatic Insufficiency ndi Cystic Fibrosis

Zamkati

• Nchiyani chimayambitsa cystic fibrosis?
• Kodi ndi chiopsezo chotani cha cystic fibrosis?
• Kodi EPI ndi cystic fibrosis zimagwirizana bwanji?
• Kodi ndi mankhwala amtundu wanji omwe alipo a EPI?
• Chotengera

Cystic fibrosis ndi matenda obadwa nawo omwe amachititsa kuti madzi amthupi akhale olimba komanso omata mmalo mowonda komanso othamanga. Izi zimakhudza kwambiri mapapu ndi dongosolo lakugaya chakudya.

Anthu omwe ali ndi cystic fibrosis ali ndi vuto lakupuma chifukwa ntchofu zimatseka mapapu awo ndikuwapangitsa kukhala pachiwopsezo cha matenda. Mamina owongoka amatsekeretsanso kapamba ndipo amalepheretsa kutulutsa ma michere am'mimba. Pafupifupi 90 peresenti ya anthu omwe ali ndi cystic fibrosis amakhalanso ndi vuto la pancreatic insufficiency (EPI).

Pitirizani kuwerenga kuti mudziwe zambiri za ubale pakati pa zinthu ziwirizi.

Nchiyani chimayambitsa cystic fibrosis?

Cystic fibrosis imayambitsidwa ndi vuto mu jini la CFTR. Kusintha kwa jini kumeneku kumapangitsa kuti maselo apange madzi amadzimadzi. Anthu ambiri omwe ali ndi cystic fibrosis amapezeka ali aang'ono.

Kodi ndi chiopsezo chotani cha cystic fibrosis?

Cystic fibrosis ndi matenda amtundu. Ngati makolo anu ali ndi matendawa kapena ngati ali ndi jini lopunduka, muli pachiwopsezo chachikulu chotenga matendawa. Munthu amene ali ndi cystic fibrosis amayenera kulandira majini awiri osinthika, m'modzi kuchokera kwa kholo lililonse. Mukangokhala ndi mtundu umodzi wokha wa jini, simudzakhala ndi cystic fibrosis koma ndinu wonyamula matendawa. Ngati onyamula majini awiri ali ndi mwana, pali 25% mwayi kuti mwana wawo adzakhala ndi cystic fibrosis. Pali mwayi wa 50 peresenti kuti mwana wawo azinyamula jini koma alibe cystic fibrosis.

Cystic fibrosis imakhalanso yofala kwa anthu ochokera ku Northern Europe.

Kodi EPI ndi cystic fibrosis zimagwirizana bwanji?

EPI ndi vuto lalikulu la cystic fibrosis. Cystic fibrosis ndiye chifukwa chachiwiri chodziwika kwambiri cha EPI, atadwala kapamba. Zimachitika chifukwa mamasukidwe akuthwa m'matumba anu amatseka ma michere am'mimba kuti asalowe m'matumbo ang'onoang'ono.

Kuperewera kwa michere ya pancreatic kumatanthauza kuti gawo lanu logaya limayenera kupereka chakudya chosagayidwa pang'ono. Mafuta ndi mapuloteni ndizovuta kwambiri kwa anthu omwe ali ndi EPI kupukusa.

Kugaya chakudya pang'ono komanso kuyamwa chakudya kumatha kubweretsa ku:

• kupweteka m'mimba
• kuphulika
• kudzimbidwa
• kutsegula m'mimba
• ndowe zamafuta ndi zotayirira
• kuonda
• kusowa kwa zakudya m'thupi

Ngakhale mutadya chakudya chokwanira, cystic fibrosis imatha kukupangitsani kukhala kovuta kuti mukhale wathanzi.

Kodi ndi mankhwala amtundu wanji omwe alipo a EPI?

Kukhala ndi moyo wathanzi komanso kudya zakudya zabwino kungakuthandizeni kuyang'anira EPI yanu. Izi zikutanthauza kuchepetsa kumwa mowa, kupewa kusuta, komanso kudya zakudya zopatsa thanzi ndi masamba ambiri ndi mbewu zonse. Anthu ambiri omwe ali ndi cystic fibrosis amatha kudya zakudya zoyenera pomwe 35 mpaka 45 peresenti ya zopatsa mphamvu zimachokera ku mafuta.

Muyeneranso kumwa m'malo mwa ma enzyme pazakudya zanu zonse ndi zokhwasula-khwasula kuti mukhale ndi chimbudzi. Kugwiritsa ntchito kowonjezera kungathandize kupanga mavitamini omwe EPI imalepheretsa thupi lanu kuti lisamwe.

Ngati mukulephera kukhala ndi thanzi labwino, dokotala wanu atha kupereka lingaliro loti mugwiritse ntchito chubu chodyetsera usiku kuti mupewe kuperewera kwa zakudya m'thupi kuchokera ku EPI.

Ndikofunika kuti dokotala wanu aziyang'anira ntchito yanu ya kapamba, ngakhale simunachepetse ntchito chifukwa imatha kuchepa mtsogolo. Kuchita izi kudzakuthandizani kuti muzitha kusamalira odwala komanso kuti muchepetse vuto lanu.

Chotengera

M'mbuyomu, anthu omwe anali ndi cystic fibrosis anali ndi chiyembekezo chochepa kwambiri chamoyo. Masiku ano, 80 peresenti ya anthu omwe ali ndi cystic fibrosis amakula. Izi ndichifukwa cha kupita patsogolo kwakukulu kwamankhwala ndi kasamalidwe kazizindikiro. Kotero pamene kulibe mankhwala a cystic fibrosis, pali chiyembekezo chambiri.