Kodi Kuphulika kwa Mapapo Kungachiritse Fibrosis Ya Cystic?

Zamkati

• Kodi maubwino opindulira m'mapapu ndi ati?
• Kodi ndi zoopsa ziti zomwe zingachitike ndikulowetsa mapapu?
• Ndani ali woyenera kupatsidwa mapapu?
• Nchiyani chomwe chimakhudzidwa pakupinduka kwamapapu?
• Kodi kuchira kuli bwanji?
• Maganizo ake ndi otani?
• Malangizo olankhula ndi dokotala wanu

Cystic fibrosis ndi mapapo amaika

Cystic fibrosis ndi matenda amtundu omwe amachititsa kuti ntchentche zimangidwe m'mapapu anu. Popita nthawi, kutupa ndi matenda kobwerezabwereza kumatha kuwononga mapapo kwamuyaya. Matenda anu akamakula, zimavuta kupuma ndikuchita nawo zomwe mumakonda.

Kuika mapapo kumagwiritsidwa ntchito kwambiri pochizira cystic fibrosis. Mu 2014, odwala 202 omwe ali ndi cystic fibrosis ku United States adalandira mapapu, malinga ndi Cystic Fibrosis Foundation (CFF).

Kuthira bwino m'mapapo kumatha kusiyanitsa momwe mumamvera tsiku ndi tsiku. Ngakhale siyachiritso ya cystic fibrosis, imatha kukupatsirani mapapo athanzi. Izi zitha kukulolani kuti muchite zina zambiri komanso kutalikitsa moyo wanu.

Pali zinthu zambiri zofunika kuziganizira musanabadwe m'mapapo. Pitirizani kuwerenga kuti mudziwe zambiri za zomwe zingakhale zabwino komanso zoopsa za opaleshoni yopanga mapapo.

Kodi maubwino opindulira m'mapapu ndi ati?

Ngati muli ndi cystic fibrosis ndipo mapapu anu sakugwira ntchito bwino, mutha kukhala oyenera kupatsidwa mapapo. Mwina mukuvutika kupuma komanso kukhala kunja kwa zinthu zomwe mumakonda.

Kuthira bwino m'mapapo kumatha kusintha moyo wanu m'njira zooneka.

Gulu latsopano lamapapu athanzi limapangitsa kuti kupuma kuzikhala kosavuta. Izi zitha kukuthandizani kutenga nawo gawo pazambiri zomwe mumakonda.

Kodi ndi zoopsa ziti zomwe zingachitike ndikulowetsa mapapu?

Kuika m'mapapo ndi njira yovuta. Zina mwaziwopsezo zazikulu ndi izi:

• Kukanidwa kwa thupi: Chitetezo chamthupi chanu chidzawona mapapu anu omwe akupatsani ngati akunja ndikuyesera kuwawononga, pokhapokha mutamwa mankhwala osokoneza bongo. Ngakhale kukanidwa kwa ziwalo kumatha kuchitika mkati mwa miyezi isanu ndi umodzi yoyambirira mutachitidwa opareshoni, muyenera kumwa mankhwala ochepetsa mphamvu kuti muchepetse chitetezo chanu cha mthupi kwa moyo wanu wonse.
• Kutenga: Mankhwala opatsirana pogwiritsira ntchito amalepheretsa chitetezo chanu cha mthupi, kuwonjezera mwayi wanu wopatsirana.
• Matenda ena: Chifukwa mankhwala ochepetsa kutsitsa chitetezo chamthupi, mudzakhalanso pachiwopsezo chachikulu cha khansa, matenda a impso, ndi zina.
• Mavuto ndi momwe mumayendera panjira yanu: Nthawi zina, magazi amayenda kuchokera kumpweya wanu kupita kumapapu anu omwe amakupatsani akhoza kutsekedwa. Vutoli lingathe kudzichiritsa lokha, koma ngati sichoncho, lingathe kuchiritsidwa.

Amuna, mankhwala oletsa antirejection amatha kupangitsa ana awo kupunduka. Azimayi omwe adalemba mapapu atha kukhala pachiwopsezo chazovuta panthawi yapakati.

Ndani ali woyenera kupatsidwa mapapu?

Sikuti aliyense ali woyenera kupatsidwa mapapo. Dokotala wanu adzafunika kuyesa mwayi womwe mungapindule nawo ndikutha kutsatira dongosolo lanu la mankhwala. Zitha kutenga milungu kuti muunike mlandu wanu ndikuwona ngati ndinu woyenera.

Izi zitha kuphatikizira:

• Kuyesa kwakuthupi, kuphatikiza kuyesa kuyesa mapapo, mtima, ndi impso. Izi zitha kuthandiza dokotala kuti awone zosowa zanu zokhala ndi mapapo, komanso chiwopsezo chanu chazovuta.
• Kuyesa kwamaganizidwe, kuphatikiza kufunsa ndi wogwira ntchito kapena wothandizira. Dokotala wanu, wogwira ntchito yothandiza anthu, kapena wothandizira atha kufunanso kukumana ndi anzanu ndi abale anu kuti awonetsetse kuti muli ndi njira yabwino yothandizira komanso kuthana ndi chisamaliro cha post-op.
• Kuwunika kwachuma kuti muwone momwe mungapezere chithandizo chamankhwala ndikuthandizani kudziwa momwe mungalipire ndalama zogulira mthumba, munthawi yochepa komanso yayitali.

Ngati dokotala akuwona kuti ndinu woyenera, mudzawonjezedwa pamndandanda wopatsira m'mapapo. Mudzalangizidwa momwe mungakonzekerere opaleshoni yanu. Mutha kulandira foni kuti mapapu opereka amapezeka nthawi iliyonse.

Mapapu opereka amachokera kwa anthu omwe amwalira posachedwa. Amagwiritsidwa ntchito pokhapokha akapezeka kuti ali ndi thanzi labwino.

Nchiyani chomwe chimakhudzidwa pakupinduka kwamapapu?

Kuti muike mapapu awiriawiri, gulu lanu laopangapanga limapanga cheke m'munsi mwa mabere anu. Adzachotsa mapapu anu owonongeka ndikuwasintha ndi mapapu opereka. Adzalumikiza mitsempha yamagazi ndi mayendedwe apakati pakati pa thupi lanu ndi mapapu anu opereka. Nthawi zina, amatha kugwiritsa ntchito makina odutsa m'mapapo kuti mpweya uziyenda mthupi lanu nthawi imeneyi.

Gulu lanu lochita opaleshoni lidzatseka chifuwa chanu pogwiritsa ntchito zokopa kapena zofunikira. Adzavala chovulala chanu, ndikusiya machubu angapo kuti alole madzi. Machubu amenewa ndi akanthawi. Mudzakhalanso ndi chubu chopumira chomwe chidzaikidwa mpaka mutha kupuma popanda icho.

Pambuyo poti mwachitidwa opareshoni, mudzayang'aniridwa kuti mupume, kugunda kwa mtima, kuthamanga kwa magazi, komanso kuchuluka kwama oxygen. Zonse zikamagwira ntchito mokhutiritsa, mudzasamutsidwa kuchipatala. Mupitiliza kuyang'aniridwa kwambiri mukamachira. Muyesedwa magazi nthawi ndi nthawi kuti mudziwe momwe mapapo anu, impso, ndi chiwindi zimagwirira ntchito.

Kukhala kwanu kuchipatala kumatha sabata limodzi kapena awiri, kutengera momwe mukugwirira ntchito. Musanatulutsidwe, gulu lanu laopaleshoni liyenera kukupatsani mayendedwe amomwe mungasamalire kuchepa kwanu ndikulimbikitsa kuti mupezeke kunyumba.

Kodi kuchira kuli bwanji?

Kuika m'mapapo ndi opaleshoni yayikulu. Zitha kutenga miyezi kuti mupezenso bwino.

Gulu lanu la opareshoni liyenera kupereka malangizo athunthu osamalira kwanu. Mwachitsanzo, akuyenera kukuphunzitsani momwe mungapangire kuti chimbudzi chanu chikhale choyera komanso chowuma mpaka zitachotsedwa. Ayeneranso kukuphunzitsani momwe mungazindikire zizindikiro za matenda.

Mudzakhala pachiwopsezo chachikulu chotenga matenda chifukwa cha mankhwala opatsirana omwe muyenera kumwa kutsatira kupatsidwa mapapo. Ngati muli ndi zizindikiro izi, pitani kuchipatala nthawi yomweyo:

• malungo a 100.4 ° F kapena kupitilira apo
• madzimadzi omwe amatuluka pakucheka kwanu
• kukulitsa zowawa patsamba lanu
• kupuma movutikira kapena kupuma movutikira

Muyenera kupita kuma dokotala pafupipafupi mchaka chotsatira opaleshoni yanu yopanga mapapu. Dokotala wanu amatha kuyitanitsa mayeso kuti awone momwe mukuchira, monga:

• kuyesa magazi
• kuyesa kwamapapu
• X-ray pachifuwa
• bronchoscopy, kuwunika kwanu komwe kumagwiritsa ntchito chubu chochepa kwambiri

Ngati kusintha kwanu kwamapapu kukuyenda bwino, mudzakhala ndi mapapu atsopano omwe amagwira ntchito bwino kuposa mapapu anu akale, koma mudzakhalabe ndi cystic fibrosis. Izi zikutanthauza kuti muyenera kupitiliza dongosolo lanu lamankhwala a cystic fibrosis ndikuyendera dokotala wanu pafupipafupi.

Maganizo ake ndi otani?

Maganizo anu adzadalira msinkhu wanu komanso momwe thupi lanu limasinthira ndikukula kwanu.

Ku United States, oposa 80 peresenti ya anthu omwe ali ndi cystic fibrosis omwe amaikidwa mapapu amakhala amoyo patatha chaka kutsatira njira yawo, inatero CFF. Oposa theka amapulumuka zaka zoposa zisanu.

Kafukufuku waku Canada wofalitsidwa mu 2015 mu Journal of Heart and Lung Transplantation adapeza kuti zaka zisanu zapulumuka kwa cystic fibrosis odwala kutsatira kupatsidwa mapapo anali 67 peresenti. Makumi asanu peresenti amakhala zaka 10 kapena kupitilira apo.

Kuika bwino m'mapapo kumatha kusintha moyo wanu pochepetsa zizindikilo zanu ndikulolani kuti mukhale achangu.

Malangizo olankhula ndi dokotala wanu

Mukamaganiza zopanga mapapo, funsani dokotala ngati njira zina zonse zafufuzidwa kaye. Afunseni kuti akuthandizeni kumvetsetsa zaubwino ndi zoopsa zomwe zimachitika ndikubzala. Funsani zomwe mungayembekezere ngati simukufuna kumuika.

Mukakhala omasuka ndi lingaliro lodzala m'mapapo, ndi nthawi yoti mudziwe zambiri zamtsogolo. Mukakhala pamndandanda wokaikira anthu, muyenera kukhala okonzeka kuyimba foni kuti mapapu anu opereka ndalama afika, ziribe kanthu kuti abwera liti.

Nawa mafunso angapo kuti muyambe kukambirana ndi dokotala:

• Kodi ndiyenera kudziwa chiyani ndikuchita ndikakhala pagulu la odikirira?
• Kodi ndiyenera kukonzekera zotani mapapu akayamba kupezeka?
• Ndani apange gulu lakuika m'mapapo ndipo akumana ndi zotani?
• Ndiyenera kuyembekeza kuti ndidzakhala nthawi yayitali bwanji kuchipatala pambuyo pa opareshoni?
• Ndi mankhwala ati omwe ndiyenera kumwa ndikamachita opaleshoni?
• Nditatha opaleshoni, ndi zisonyezo ziti zomwe zikutanthauza kuti ndiyenera kukaonana ndi dokotala?
• Ndifunika kutsatira kangati ndikayesedwa kotani?
• Kodi kuchira kudzakhala bwanji ndipo ndimawona bwanji kwakanthawi?

Lolani mayankho a dokotala anu akutsogolereni ku mafunso ozama kwambiri.