Macheza Oyesera Matenda A shuga: Zomwe Mudaphonya

Zamkati

• 1. Pazaka khumi zapitazi, kodi kafukufuku wama shuga asintha bwanji miyoyo ya odwala?
• Kuchokera mdera lathu:
• 2. Kodi odwala amatenga gawo lanji pakufufuza zamankhwala ashuga? Nanga atenge mbali yanji?
• Kuchokera mdera lathu:
• 3. Titha kulumikizana bwanji bwino ndi vuto la kusowa koyeserera kuchipatala ndi odwala?
• Kuchokera mdera lathu:
• 4. Kodi mukuganiza kuti ndi ziti zomwe zimalepheretsa anthu kutenga mbali pokhudzana ndi mayesero? Kodi angathandize bwanji?
• Kuchokera mdera lathu:
• 5. Kodi timapangitsa bwanji kuti mayesero azachipatala azikhala okhazikika pa zosowa za odwala?
• Kuchokera mdera lathu:
• 6. Kodi ndingadziwe bwanji mayesero azachipatala omwe ndingachite nawo?
• 7. Kodi ndi zinthu ziti zomwe mumalimbikitsa kuti mudziwe zambiri zamayeso azachipatala?
• 8. Ndi njira ziti zomwe zingakuthandizeni kusangalala ndi matenda ashuga?
• Kuchokera mdera lathu:
• 9. Kodi mukuganiza kuti tili pafupi bwanji ndi matenda a shuga?
• Kuchokera mdera lathu:
• 10. Ndi chinthu chiti chomwe mukufuna kuti odwala adziwe zamayesero azachipatala?
• Kuchokera mdera lathu:
• 11. Kodi nthano yayikulu ndi iti yokhudza mayesero azachipatala?
• Kuchokera mdera lathu:

Mu Januwale, Healthline adapanga zokambirana pa Twitter (#DiabetesTrialChat) kuti akambirane zovuta zomwe anthu omwe ali ndi matenda a shuga 1 amapeza 'mayesero azachipatala omwe cholinga chake ndikupeza mankhwala atsopano, komanso mankhwala. Kutenga nawo gawo pazokambirana ndi:

• Sarah Kerruish, wamkulu wamaqhinga ndi wamkulu pa Antidote. (Tsatirani iwo @Antidote)
• Amy Tenderich, woyambitsa komanso mkonzi wamkulu wa DiabetesMine. (Tsatirani iwo @ DiabetesMine)
• Dr. Sanjoy Dutta, wachiwiri kwa wachiwiri kwa purezidenti wa zomasulira ku JDRF. (Tsatirani iwo @JDRF)

Pitirizani kuwerenga kuti muwone mavuto, ndi mayankho omwe angakhalepo, iwo ndi gulu lathu labwino adazindikira!

1. Pazaka khumi zapitazi, kodi kafukufuku wama shuga asintha bwanji miyoyo ya odwala?

Dr. Sanjoy Dutta: "Kuchulukitsa kuzindikira, kuchepa kwa katundu, kubwezera kuwunika kwa glucose kosalekeza (CGM), zotsatira zabwino pogwiritsa ntchito zida, ndi matenda am'mbuyomu."

Sarah Kerruish: "Zasintha zonse. Kuchokera pakuziika pachilumba kupita ku kapamba kapangidwe kake - kutukuka kwakukulu kwachitika ... Nkhaniyi ndiyikonda kwambiri kuchokera ku American Diabetes Association pazomwe zachitika mzaka 50 zapitazi. ”

Amy Tendrich: "Kafukufuku watipatsa CGM ndipo posachedwa kapamba, ndi Antidote kuti tidziwe zomwe zimayambitsa matenda ashuga - zodabwitsa!"

Kuchokera mdera lathu:

@alirezatalischioriginal: "Zipangizo zambiri zatsopano ndi zotsekemera zomwe mumamwetulira mu T1D… SENSOR yowonjezeredwa yopopera mankhwala imabwera m'maganizo. Kufanana kwa ma insulini kwathandiza ambiri, koma ma insulini anzeru amawoneka odabwitsa ”

@ aliraza0141: "Powona kuti kafukufuku wokhudzana ndi matenda ashuga ali pamwambapa zimandipatsa chiyembekezo kuti ndidzakhala ndi moyo wosangalala komanso wathanzi"

@JDRFQUEEN: “Kusintha kwakukulu. Ndinayamba kuvala Guardian Medtronic CGM mu 2007. Zinali zoyipa, 100-200 pts off. Tsopano AP woyenera. ”

2. Kodi odwala amatenga gawo lanji pakufufuza zamankhwala ashuga? Nanga atenge mbali yanji?

PA: "Odwala ayenera kukhala otanganidwa kwambiri pakupanga maphunziro! Onani VitalCrowd yatsopano. Onani Anna McCollisterSlip kukhazikitsa zithunzi pa VitalCrowd komwe anthu akugwiritsa ntchito mayesero azachipatala kuno. ”

Sd: "Odwala ayeneranso kugwira nawo ntchito popereka malingaliro ndi mayankho pakupanga mayesero ndi zotsatira zake."

Luso: “Inde! Kukopa kapangidwe ndikofunikira! Ayenera kutenga gawo LALIKULU! Odwala amatha kufotokoza bwino zosowa zawo, choncho ochita kafukufuku ayenera kumamvetsera mwatcheru. ”

Kuchokera mdera lathu:

@ Aliraza514: “Kuona mtima. Kukhala owona mtima pazomwe akuchita komanso osachita mogwirizana ndi ndondomeko zofufuza. ”

@ aliraza0141: "Ndikuganiza kuti odwala amapitiliza kafukufuku wa matenda a shuga kumapazi [mwawo] (mwa njira yabwino!) - Ntchito #wearenotwaiting ndi umboni wa izi"

@JDRFQUEEN: "Clinicaltrials.gov [ndi] poyambira pabwino kwa iwo omwe akufuna kuchita nawo kafukufuku!"

3. Titha kulumikizana bwanji bwino ndi vuto la kusowa koyeserera kuchipatala ndi odwala?

PA: "Ntchito yofananira kwa odwala matenda ashuga komanso ofufuza, monga Living BioBank."

Luso: “Maphunziro! Tikuyesetsa kufalitsa uthenga - Odwala 500,000 amafunikira mayesero a shuga ku U.S., koma 85% ya mayesero amachedwa kapena kulephera chifukwa cha nkhani zolembetsa. Imeneyi ndi nkhani yoipa kwa odwala NDI ofufuza. ”

Sd: “Tiyenera KUKHALA OCANDID pazakufunika kwa wodwala aliyense. Ndiwo akazembe a mayeserowa ndipo amapindulitsa onse okhala ndi matenda a shuga amtundu woyamba. Kutenga nawo gawo ndikofunikira! Osabweretsa wodwala kumayesero; kubweretsa mayesero kwa wodwalayo. ”

Luso: “INDE!”

Kuchokera mdera lathu:

@ aliraza0141: “Funsani a HCPs kuti agawane izi ndi odwala oyenera. Kafukufuku sanatchulidwepo kwa ine m'zaka 13.5! ”

@ Aliraza514: "Kufotokozera [ntchito] yonse ndi gawo lawo lofunikira. Ambiri samvetsetsa momwe mayesero amagwirira ntchito. "

@chimonac: “Gwiritsani ntchito mphamvu zapa TV! … Kafukufuku wambiri amavutika chifukwa [ndi] ochepa malo. ”

4. Kodi mukuganiza kuti ndi ziti zomwe zimalepheretsa anthu kutenga mbali pokhudzana ndi mayesero? Kodi angathandize bwanji?

Luso: "Kufikira! Zambiri kunja uko ndizofufuza, osati odwala - ndichifukwa chake tidapanga Match. Tiyenera kuyika odwala pakatikati pa kafukufuku. Chofunika kwa iwo ndi chiyani? Dave deBronkart anatiphunzitsa izi. ”

PA: "Nthawi zambiri anthu amatitumizira imelo ku Mgodi wa Shuga kutifunsa momwe iwo kapena ana omwe ali ndi matenda a shuga amtundu woyamba angalowere m'mayesero. Kodi kuli bwino kuwatumiza? Vuto ndiloti Clinicaltrials.gov ndi Yovuta KWAMBIRI kuyenda. ”

Sd: "Kutenga nawo mbali mwachindunji kapena mosapita m'mbali ndichofunikira, komanso kulumikizana momasuka. Makina othandizira othandizira & HCPs. Pakhoza kukhala kusakhulupirika kwa mayesero. Gawani chithunzithunzi chokulirapo ndikusuntha kuchoka pakuyesa-centricity kupita ku centricity ya odwala.

PA: “Lingaliro labwino! Kodi munganene kuti angachite bwanji izi? ”

Sd: “Ziyeso ZOYAMBA pa mayendedwe a wodwala. Kodi nchiyani chomwe chingapangitse kuti matenda awo ashuga amtundu wa 1 azitha kuyendetsedwa? Kodi amakonda ndi zolephera ziti? ”

Luso: “Ndizosavuta. Zambiri ndi mwayi. Anthu ambiri sadziwa zamayesero azachipatala. Tikuyesera kukonza izi. "

Kuchokera mdera lathu:

@davidcragg: "Chofunika kwa ine ndikuwona kudzipereka kuti ndithandizire kupeza njira zonse ndi zotsatira zake mosaganizira zotsatira zake."

@alirezatalischioriginal "Mayeso ambiri okonda kutenga nawo mbali amalimbikitsa kutenga nawo mbali. Wina amafuna kuti ndikhale malo osapitilira milungu iwiri… Sichinthu chovuta kwa [anthu odwala matenda ashuga] omwe ali ndi ntchito / sukulu / miyoyo. ”

@alirezatalischioriginal: “Zimatengera kapangidwe koyeserera. Zitha kukhala zinthu zingapo ... ndapereka nawo nawo kangapo, ndipo ndasaina kuti 'ndipezeke' koma ndikulembedwapo ndi chipatala changa. ”

@alirezatalischioriginal: “Kuthetsa malingaliro olakwika okhudza kutenga nawo mbali pamayesero. Chinyengo cha "guinea pig". "

@ aliraza0141: "Nthawi: ndiyenera kuchita nthawi yochuluka motani? Zotsatira: tidzawona zotsatira? Zofunikira: ukufuna chiyani kwa ine? ”

5. Kodi timapangitsa bwanji kuti mayesero azachipatala azikhala okhazikika pa zosowa za odwala?

Sd: "Pewani zovuta kuzimvetsetsa, ndipo zomwe wodwala akufuna ayenera kuzipanga akaganiza zopanga mankhwala."

Luso: “Pangani ndi odwala m'malingaliro! Ofufuzawo ayenera kuganiza ngati odwala ndikuonetsetsa kuti ndikosavuta kutenga nawo mbali pamayeso. Ndipo musachite mantha kufunsa! Odwala amadziwa zomwe zili zabwino kwa odwala, ndipo ofufuza akuyenera kugwiritsa ntchito mwayiwu. ”

PA: "Komanso, tikufunikira china chake monga matenda a shuga Research Connection kuti muwone momwe ntchito yanu ikuyendera."

Kuchokera mdera lathu:

@lwahlstrom: "Phatikizani odwala pamagawo aliwonse oyeserera - kupyola 'kuyesa poyesa.' Kuyika pagulu ndikofunikira!"

@ aliraza0141: “Chitani macheza ambiri pa tweet motere. Magulu owonetsetsa. Werengani ma blogs. Lankhulani nafe. Kudutsa ma HCP kuti mufikire odwala ”

@JDRFQUEEN: "Ndipo sikuti munthu amafunika kulipidwa ndalama zowononga ndalama, koma kubwezera nthawi ndi mafuta ndizolimbikitsa kwambiri [kwa] ophunzira."

6. Kodi ndingadziwe bwanji mayesero azachipatala omwe ndingachite nawo?

Sd: "Kuphatikiza pa kafukufuku wanu komanso zomwe wothandizira zaumoyo wanu wathandizira."

Luso: "Onani chida chathu chatsopano - yankhani mafunso angapo ndipo makina athu akupezerani mayeso!"

7. Kodi ndi zinthu ziti zomwe mumalimbikitsa kuti mudziwe zambiri zamayeso azachipatala?

Sd: "Clinicaltrials.gov, komanso JRDF.org"

Luso: "Anzathu a CISCRP amatipatsa zinthu zambiri zabwino. Ndipo anthu omwe ali ndi matenda a shuga ndi njira yabwino yophunzirira zokumana nazo. ”

8. Ndi njira ziti zomwe zingakuthandizeni kusangalala ndi matenda ashuga?

Luso: “Ambiri! Ndimachita chidwi kwambiri ndi kapamba opanga - ingoganizirani kuti ndi anthu angati omwe angasinthe. Ndikusangalalanso ndi kafukufuku watsopano wosintha maselo am'magazi kukhala maselo a pancreatic beta - akumva ngati kupita patsogolo kwakukulu! "

PA: “Kwambiri. Odwala ndi omwe adafunsidwa omwe adafunsidwa za nkhani [yathu] ya shuga ndi chamba akuti MAPHUNZIRO AMAFUNIKA. Ndife okondwa ndi maphunziro omwe amalola CGM kulowa m'malo mwa ndodo. ”

Sd: "Makina opanga kapamba, makina osinthira a beta (encapsulation), mayesero a matenda a impso ... Mankhwala osokoneza bongo kuti athe kuwongolera shuga, mayesero oteteza maselo a beta."

Luso: "Mayesero awiri akuluakulu, othandiza opangidwa ndi kapamba omwe abwera mu 2016 kudzera ku Harvard Research ndi UVA School of Medicine."

Kuchokera mdera lathu:

@OceanTragic: "OpenAPS zowona"

@ NanoBanano24: "AP ikuwoneka pafupi kwambiri! Ndine wokondwa kwambiri ndi izi. ”

9. Kodi mukuganiza kuti tili pafupi bwanji ndi matenda a shuga?

Luso: "Sindikudziwa kuti layandikira bwanji, koma dzulo, nkhaniyi yandipatsa chiyembekezo."

Kuchokera mdera lathu:

@delphinecraig: "Ndikuganiza kuti tidakali ndi ulendo wautali kuti tipite kuchipatala."

@davidcragg: “Osati m'moyo wanga. Nkhani zambiri zonena za machiritso omwe ali pafupi ndi za kupeza ndalama zofufuzira ”

@Mrs_Nichola_D: “Zaka 10? Ndikuseka pambali, sindikudziwa kwenikweni. Koma osati mwachangu momwe ndikufunira. "

@ NanoBanano24: “Pafupi kwambiri kuposa kale! Ndili ndi zaka 28, osatsimikiza kuti zili m'moyo wanga. AP yokongola ikhoza kukhala yazaka 10. Wochenjera kwambiri. ”

@alirezatalischioriginal "Adauzidwa kwa 38yrs kuti [matenda ashuga] azichiritsidwa zaka 5 mpaka 10. Ndikufuna zotsatira osati ziyerekezo ”

10. Ndi chinthu chiti chomwe mukufuna kuti odwala adziwe zamayesero azachipatala?

Sd: "Ndikulakalaka kuti odwala adziwe kufunikira kwake ... Odwala ndi omwe amatenga nawo mbali ndikuwongolera njira zothandiza kwambiri kwa iwo omwe ali ndi matenda ashuga amtundu woyamba."

Luso: "Nthawi zambiri, ndimayankha mafunso okhudzana ndi kupeza mayesero - odwala amabwera kwa ife atakhazikika, ndipo timawathandiza kupeza mayesero. Tili ndi gulu lodabwitsa lomwe lingakuthandizeni kupeza mayeso a shuga. Tilembetsa mayesero onse, motero palibe kukondera. ”

Kuchokera mdera lathu:

@lwahlstrom: "80% adalembetsa kuti ateteze ziwonetsero zofunikira ndipo onse omwe akutenga nawo mbali amalandira min. chithandizo chamankhwala choyenera. ”

11. Kodi nthano yayikulu ndi iti yokhudza mayesero azachipatala?

PA: "Ndinganene kuti nthano yayikulu ndikuti mayesero a shuga amangotsegulidwa kwa 'osankhika' ndipo sangathe kufikira onse. Tiyenera kufalitsa! ”

Sd: “Kukhazikika bwino pamavuto azachipatala ndi omwe alibe. Ena osinkhasinkha amaganiza kuti odwala amafanana ndi nyama za labu. Zimenezo si zoona. Opanga malingaliro angaganize kuti kuyesa kulikonse kuli ngati mankhwala. Izinso ndi zabodza. Kusintha moyenera sayansi, ziyembekezo, ndi chiyembekezo ndizomwe zimayesedwa. ”

Kuchokera mdera lathu:

@davidcragg: "Nthano yayikulu ndiyakuti mayesero onse adapangidwa bwino ndipo zambiri zimasindikizidwa nthawi zambiri - ambiri samasindikiza zomwe zimapangitsa kuti phindu likhale losafunikira ...

@delphinecraig: “Ndikuganiza kuti nthano. osalipidwa, osadandaula za mankhwala / zipatala / azachipatala, mtengo woti atenga nawo mbali. ”

@JDRFQUEEN: "'Kutumiza' zotsatira. Nthawi zonse mumakhala ndi ufulu wochoka ngati oyang'anira anu akuvutika. ”

Tithokze aliyense amene watengapo gawo! Kuti mudziwe zamtsogolo pa Twitter, titsatireni @Alireza!