Kupeza Thandizo Paintaneti: Mabulogu angapo a Myeloma, Mabwalo, ndi Ma board

Zamkati

• Msonkhano ndi chiyani?
• Mabwalo angapo a myeloma ndi board board
• Mabulogu angapo a myeloma
• Tengera kwina

Multiple myeloma ndi matenda osowa. Ndi m'modzi yekha mwa anthu 132 omwe amatenga khansa nthawi yonse ya moyo wawo. Ngati mwapezeka kuti muli ndi myeloma yambiri, ndizomveka kuti mukhale osungulumwa kapena othedwa nzeru.

Ngati mulibe wina woti ayankhe mafunso anu a tsiku ndi tsiku kapena wina yemwe amagawana mantha anu komanso zokhumudwitsa zanu, zimatha kudzipatula. Njira imodzi yodziwira ndi kuthandizidwa ndikuchezera angapo myeloma kapena gulu lonse lothandizira khansa. Ngati kulibe magulu othandizira komwe mumakhala kapena simukufuna kuyenda, mutha kupeza chitonthozo ndi gulu lomwe mukufuna pa intaneti.

Msonkhano ndi chiyani?

Msonkhano ndi gulu lazokambirana pa intaneti kapena bolodi pomwe anthu amatumiza mauthenga okhudza mutu wina. Mauthenga onse ndi mayankho ake amakhala m'magulu amacheza amodzi. Izi zimatchedwa ulusi.

Patsamba la myeloma angapo, mutha kufunsa funso, kugawana nkhani zaumwini, kapena kupeza nkhani zaposachedwa pazithandizo za myeloma. Mitu imagawika m'magulu. Mwachitsanzo, fungo la myeloma, mafunso a inshuwaransi, kapena zolengeza zamagulu othandizira.

Macheza amasiyana ndi malo ochezera chifukwa mauthengawo amasungidwa. Ngati simuli pa intaneti wina atalemba funso kapena kuyankha limodzi mwamafunso anu, mutha kuliwerenga nthawi ina.

Mabwalo ena amakulolani kuti musadziwike. Ena amafuna kuti mutsegule ndi imelo ndi imelo. Nthawi zambiri, wowongolera amayang'anira zomwe zili kuti zitsimikizike kuti ndizoyenera komanso zotetezeka.

Mabwalo angapo a myeloma ndi board board

Nawa ma forum angapo abwino a myeloma omwe mungayendere:

• Network Opulumuka Khansa. American Cancer Society imapereka zokambirana izi kwa anthu omwe ali ndi myeloma angapo ndi mabanja awo.
• Odwala Anzeru.Pulogalamu yapaintaneti iyi ndi njira yothandiza kwa anthu omwe amakhudzidwa ndimatenda osiyanasiyana, kuphatikiza myeloma angapo.
• Chingwe cha Myeloma. Tsambali, lomwe limasindikizidwa ndi bungwe lopanda phindu ku Pennsylvania, lakhala likupereka zidziwitso ndi chithandizo kwa anthu omwe ali ndi myeloma angapo kuyambira 2008.
• Odwala Monga Ine. Tsambali limafotokoza zaumoyo pafupifupi 3,000 ndipo lili ndi oposa 650,000 omwe akugawana nawo zambiri.

Mabulogu angapo a myeloma

Bulogu ndi tsamba lofanana ndi magazini pomwe munthu, bungwe lopanda phindu, kapena kampani amatumiza zolemba zazifupi mwachidule. Mabungwe a khansa amagwiritsa ntchito ma blogs kuti azidwalitsa odwala awo za chithandizo chatsopano ndi othandizira ndalama. Anthu omwe ali ndi myeloma angapo alemba ma blogs ngati njira yogawana zomwe akumana nazo, komanso kupereka chidziwitso ndi chiyembekezo kwa omwe angopezedwa kumene.

Nthawi zonse mukawerenga blog, kumbukirani kuti mwina sizowunikiridwa kuti ndi zolondola zamankhwala. Aliyense akhoza kulemba blog. Kungakhale kovuta kudziwa ngati zomwe mukuwerengazi ndizothandiza.

Mudzakhala ndi mwayi wopeza zambiri zolondola pa blog kuchokera ku bungwe la khansa, kuyunivesite, kapena akatswiri azachipatala monga dokotala kapena namwino wa khansa kuposa yemwe waikidwa ndi munthu. Koma mabulogu anu amatha kupereka chitonthozo ndi chifundo.

Nawa ma blogs angapo operekedwa ku angapo a myeloma:

• Mayiko a Myeloma Foundation. Ili ndiye bungwe lalikulu kwambiri la myeloma, lomwe lili ndi mamembala oposa 525,000 m'maiko 140.
• Angapo Myeloma Research Foundation (MMRF). MMRF imapereka blog yolembedwa ndi wodwala patsamba lake.
• Khamu la Myeloma. Wopanda phindu woyendetsedwa ndi odwalawa ali ndi tsamba la blog lomwe limakhala ndi nkhani zonena za zochitika zingapo zandalama za myeloma ndi nkhani zina.
• Kuzindikira kochokera kwa Dana-Farber. Mmodzi mwa malo omwe amatsogolera khansa mdziko muno amagwiritsa ntchito bulogu yake kugawana zankhani zakupita patsogolo kwa kafukufuku ndi njira zochiritsira.
• MyelomaBlogs.org. Tsambali limaphatikiza ma blogs ochokera kwa anthu osiyanasiyana omwe ali ndi myeloma yambiri.
• Kona ya Margaret. Pabuloguyi, Margaret amafotokoza zovuta za tsiku ndi tsiku komanso kupambana pakukhala ndi fungo la myeloma. Iye wakhala akulemba mwachangu kuyambira 2007.
• NthawiYakeBlog. Mwamuna wake, Tim, atapezeka kuti ali ndi myeloma yambiri, mkazi ndi mayi uyu adasankha kulemba za miyoyo yawo "pa MM rollercoaster."
• Imbani M wa Myeloma. Blog iyi idayamba ngati njira yolembetsera kuti achibale ndi abwenzi azikhala ndi nthawi, koma idatha kukhala chida kwa anthu omwe ali ndi khansa iyi padziko lonse lapansi.

Tengera kwina

Ngati mwakhala mukusungulumwa kuyambira pomwe matenda anu a myeloma amapezeka, kapena mukungofunika zina zokuthandizani kuti muzitha kulandira chithandizo chamankhwala, mupeza pa umodzi mwamabwalo ndi mabulogu omwe amapezeka pa intaneti. Mukamayang'ana masamba awa, kumbukirani kutsimikizira chilichonse chomwe mungapeze pa blog kapena pa forum ndi dokotala wanu.