Spina Bifida Sanayimitse Mkazi Uyu Kuthamanga Half Marathons ndi Crushing Spartan Race

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Misty Diaz adabadwa ndi myelomeningocele, mtundu woopsa kwambiri wa msana bifida, chilema chobadwa chomwe chimalepheretsa msana wanu kukula bwino. Koma izi sizinamulepheretse kutsutsa zovuta zake ndikukhala moyo wokangalika palibe amene amaganiza kuti zingatheke.

"Ndikukula, sindinkakhulupirira kuti pali zinthu zomwe sindingathe kuchita, ngakhale kuti madokotala anandiuza kuti ndizivutika kuyenda kwa moyo wanga wonse," akutero. Maonekedwe. "Koma sindinalole kuti zimenezo zindifikire. Ngati pakanakhala mpikisano wamamita 50 kapena 100, ndikanalembetsa, ngakhale zitatanthauza kuyenda ndi woyenda wanga kapena kuthamanga ndi ndodo zanga." (Zokhudzana: Ndine Wopunduka ndi Wophunzitsa-Koma Sindinapondapo Phazi Lolimbitsa Thupi Mpaka Ndili ndi Zaka 36)

Pomwe anali ndi zaka 20, Diaz anali atachitidwa opareshoni 28, chomaliza chomwe chidabweretsa zovuta. Iye anati: “Opaleshoni yanga ya 28 inakhala yosagwira ntchito. "Dokotala amayenera kudula mbali ina ya matumbo anga koma pamapeto pake adadya kwambiri. Zotsatira zake, matumbo anga amakankhira pafupi kwambiri ndi mimba yanga, yomwe imakhala yovuta kwambiri, ndipo ndimayenera kupeŵa zakudya zina."

Panthawiyo, Diaz amayenera kupita kunyumba tsiku la opaleshoniyo koma atatha masiku 10 ali m'chipatala. "Ndinali ndi ululu wopweteka ndipo adandipatsa morphine yomwe ndimayenera kumwa katatu patsiku," akutero. "Izi zidapangitsa kuti ndiyambe kumwa mapiritsi, zomwe zidanditengera miyezi yambiri kuti ndithane nawo."

Chifukwa cha mankhwala opweteka, Diaz adapezeka kuti ali ndi utsi wosalekeza ndipo samatha kusuntha thupi lake momwe amachitira. "Ndidamva kufooka kwakukulu ndipo sindinali wotsimikiza ngati moyo wanga udzakhalanso chimodzimodzi," akutero. (Zogwirizana: Chilichonse Chimene Muyenera Kudziwa Musanamwe Mankhwala Opatsirana)

Atamva zowawa, adakhala wokhumudwa kwambiri, ndipo nthawi zina, mpaka amaganiza zodzipha. "Ndinali nditangotha ​​kumene chisudzulo, sindimapeza ndalama zilizonse, ndimamira m'malipiro azachipatala, ndipo ndinayang'ana gulu lankhondo la Salvation kubwerera ndikulanda katundu wanga yense. Ndinayenera kuperekanso galu wanga wantchito chifukwa sindinatero anali ndi njira zowasamalirira, "akutero. "Zinafika poti ndidakayikira chifuno changa chokhala ndi moyo."

Chomwe chinapangitsa kuti zinthu zikhale zovuta ndikuti Diaz samadziwa wina aliyense yemwe anali atavala nsapato zake kapena munthu yemwe amamudziwa. "Palibe magazini kapena nyuzipepala panthawiyo yomwe inali kuwunikira anthu omwe ali ndi msana bifida omwe amayesera kukhala moyo wokangalika kapena wabwinobwino," akutero."Ndinalibe aliyense yemwe ndingalankhule naye kapena kufunsa upangiri. Kusowa kwa nthumwi kunandipangitsa kukhala wosatsimikiza pazomwe ndimayenera kuyembekezera, momwe ndimayenera kutsogolera moyo wanga, kapena zomwe ndiyenera kuyembekezera."

Kwa miyezi itatu yotsatira, Diaz sofa anasefukira, ndikupereka kubwezera abwenzi pogwira ntchito zapakhomo. Iye anati: “Pa nthawiyi n’kuti nditayamba kuyenda kwambiri kuposa mmene ndinkayendera. “Pamapeto pake, ndinazindikira kuti kusuntha thupi langa kunandithandizadi kumva bwino m’thupi ndi m’maganizo.”

Choncho Diaz anadziikira chonulirapo choti aziyenda mochulukira tsiku ndi tsiku pofuna kuthetsa maganizo ake. Anayamba ndi cholinga chaching'ono chongotsika panjira yopita ku bokosi la makalata. "Ndidafuna kuyambira penapake, ndipo zimawoneka ngati cholinga choti ndikwaniritse," akutero.

Munthawi imeneyi Diaz adayambanso kupita kumisonkhano ya AA kuti amuthandize kuti asakhale ndi nkhawa chifukwa amadzichotsa pamankhwala omwe adamupatsa. "Nditasankha kuti ndisiye kumwa zakumwa zanga zopweteketsa thupi, thupi langa lidayamba kusiya - zomwe ndizomwe zidandipangitsa kuti ndizindikire kuti ndayamba kumwa," akutero. "Kuti ndithane ndi izi, ndidaganiza zopita ku AA kuti ndikakambirane zomwe ndikukumana nazo ndikupanga njira yothandizira pomwe ndimayesetsa kuyanjananso." (Zokhudzana: Kodi Ndinu Woledzera Mwangozi?)

Pakadali pano, Diaz adamuyendetsa mtunda woyenda ndikuyenda mozungulira malowo. Posakhalitsa cholinga chake chinali kupita pagombe lapafupi. "Ndizoseketsa kuti ndidakhala m'mphepete mwa nyanja moyo wanga wonse koma sindinapite kukayenda kunyanja," akutero.

Tsiku lina, ali paulendo wake watsiku ndi tsiku, Diaz adazindikira kuti: "Moyo wanga wonse, ndakhala ndikumwa mankhwala amodzi," akutero. "Ndipo nditasiya kuyamwa morphine, kwa nthawi yoyamba, sindinkagwiritsa ntchito mankhwala osokoneza bongo. Chifukwa chake tsiku lina ndili m'mayendedwe anga, ndidazindikira utoto koyamba. Ndikukumbukira ndikuwona duwa la pinki ndikuzindikira momwe pinki Ndikudziwa kuti izi zikumveka zopusa, koma ndinali ndisanayamikirepo kukongola kwa dziko. Kusiya kumwa mankhwala kunandithandiza kuona zimenezo." (Zokhudzana: Momwe Mkazi Mmodzi Anagwiritsira Ntchito Mankhwala Osiyanasiyana Kuti Agonjetse Kudalira Kwa Opioid)

Kuyambira nthawi imeneyo, Diaz adadziwa kuti akufuna kuthera nthawi yake ali panja, akukangalika, ndikumakumana ndi moyo kwathunthu. Iye anati: “Ndinafika kunyumba tsiku lomwelo ndipo nthawi yomweyo ndinasainira mayendedwe achifundo omwe anali kuchitika mkati mwa sabata imodzi kapena kuposerapo. "Kuyenda kunanditsogolera kuti ndilembetse 5K yanga yoyamba, yomwe ndimayenda. Kenako koyambirira kwa 2012, ndidasaina Ronald McDonald 5K, yomwe ndidathamanga."

Kumva komwe Diaz adamva atamaliza mpikisanowu sikunafanane ndi chilichonse chomwe anali atamvapo kale. "Nditafika pamzere woyambira, aliyense anali wondichirikiza komanso wolimbikitsa," akutero. "Ndipo pomwe ndimayamba kuthamanga, anthu ochokera kumbali anali kundipusitsa. Anthu anali kutuluka m'nyumba zawo kuti adzandithandizire ndipo zidandipangitsa kumva kuti sindili ndekha. Kuzindikira kwakukulu ndikuti ngakhale ine Ndinali ndi ndodo zanga ndipo sindinali wothamanga, ndinayamba ndi kutsiriza pamodzi ndi anthu ambiri. Ndinazindikira kuti kulumala kwanga sikunafunikire kundiletsa. (Zokhudzana: Pro Adaptive Climber Maureen Beck Amapambana Mpikisano ndi Dzanja Limodzi)

Kuyambira pamenepo, Diaz adayamba kusaina ma 5Ks ambiri momwe angathere ndikuyamba kupanga zotsatirazi. "Anthu adatengera nkhani yanga," akutero. "Adafuna kudziwa zomwe zidandilimbikitsa kuti ndizithamanga komanso momwe ndidakwanitsira, kutengera kulumala kwanga."

Pang'ono ndi pang'ono, mabungwe adayamba kulemba a Diaz kuti adzayankhule pazochitika zapagulu ndikugawana zambiri za moyo wake. Pakadali pano, adapitilizabe kupitilira, ndikupitiliza kumaliza ma marathons ozungulira dziko lonselo. "Nditakhala ndi ma 5K angapo pansi pa lamba wanga, ndinali ndi njala yowonjezerapo," akutero. "Ndinkafuna kudziwa momwe thupi langa lingathere ngati ndingalimakanize mokwanira."

Pambuyo pazaka ziwiri akuyang'ana kuthamanga, Diaz adadziwa kuti anali wokonzeka kupititsa patsogolo zinthu. "Mmodzi mwa makochi anga ochokera ku theka lothamanga ku New York adati adaphunzitsanso anthu othamanga ku Spartan, ndipo ndidachita chidwi kupikisana nawo pamwambowu," akutero. "Anatinso sanaphunzitsepo aliyense wolumala wa Spartan m'mbuyomu, koma kuti ngati wina angathe kutero, anali ine."

Diaz adamaliza mpikisano wake woyamba ku Spartan mu Disembala 2014 - koma sizinali zabwino kwenikweni. "Sizinachitike mpaka nditamaliza mipikisano ingapo ya Spartan pomwe ndidamvetsetsa momwe thupi langa lingasinthire zovuta zina," akutero. "Ndikuganiza kuti m'pamene anthu olumala amafowoketsedwa. Koma ndikufuna adziwe kuti pamafunika nthawi yochuluka komanso kuchita masewera olimbitsa thupi kuti aphunzire zingwe. Ndinkafunika kukwera maulendo ambiri, kuchita masewera olimbitsa thupi, ndi kuphunzira kuyendetsa galimoto. Kulemera pamapewa anga ndisanafike poti sindinali munthu womaliza maphunzirowo. Koma ngati mulimbikira, mutha kufikira pamenepo. " (PS Maphunzirowa ophunzitsira zopinga adzakuthandizani kuti muphunzitse chochitika chilichonse.)

Masiku ano, Diaz watsiriza ma 200 5Ks, theka la marathon, ndi zochitika zolepheretsa padziko lonse lapansi-ndipo nthawi zonse amakhala pansi pazovuta zina. Posachedwa, adatenga nawo gawo pa Red Bull 400, mpikisano wothamanga kwambiri padziko lonse lapansi wa 400 mita. Iye anati: “Ndinapita m’mwamba momwe ndikanathera ndi ndodo zanga, kenako ndinazula thupi langa m’mwamba (monga kupalasa) osayang’ana m’mbuyo ngakhale kamodzi,” akutero. Diaz adamaliza mpikisanowu mphindi 25 zosangalatsa.

Kuyang'ana mtsogolo, Diaz nthawi zonse amayang'ana njira zatsopano zodzitsutsira pamene akulimbikitsa ena panthawiyi. "Panali nthawi yomwe ndimaganiza kuti sindidzakwanitsa kukalamba," akutero. "Tsopano, ndili bwino kwambiri m'moyo wanga ndipo ndikuyembekeza kuthetseratu malingaliro olakwika komanso zopinga zolimbana ndi anthu omwe ali ndi msana bifida."

Diaz wayamba kuona kuti kulumala ndi luso lodabwitsa. "Mutha kuchita chilichonse chomwe mungafune ngati mutayika," akutero. "Ngati mukulephera, yambirani. Pitilizani kupita patsogolo. Ndipo koposa zonse, sangalalani ndi zomwe muli nazo pakadali pano ndipo lolani kuti zikulimbikitseni, chifukwa simudziwa zomwe moyo ungakupatseni."

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