Myelofibrosis: Kulosera zamtsogolo komanso chiyembekezo cha moyo

Zamkati

• Kusamalira zowawa zomwe zimatsagana ndi MF
• Zotsatira zoyipa za chithandizo cha MF
• Matenda a MF
• Njira zothetsera mavuto

Kodi myelofibrosis ndi chiyani?

Myelofibrosis (MF) ndi mtundu wa khansa ya m'mafupa. Matendawa amakhudza momwe thupi lanu limapangira maselo amwazi. MF ndi matenda omwe amapita patsogolo omwe amakhudza munthu aliyense mosiyanasiyana. Anthu ena amakhala ndi zizindikilo zoyipa zomwe zimakula msanga. Ena akhoza kukhala zaka zambiri osawonetsa chilichonse.

Werengani kuti mudziwe zambiri za MF, kuphatikiza mawonekedwe a matendawa.

Kusamalira zowawa zomwe zimatsagana ndi MF

Chimodzi mwazizindikiro zodziwika bwino ndi zovuta za MF ndikumva kuwawa. Zomwe zimayambitsa zimasiyanasiyana, ndipo zimatha kuphatikiza:

• gout, zomwe zingayambitse kupweteka kwa mafupa ndi mafupa
• kuchepa kwa magazi m'thupi, komwe kumadzetsanso kutopa
• zoyipa zamankhwala

Ngati mukumva kuwawa kwambiri, kambiranani ndi dokotala wanu za mankhwala kapena njira zina zowasungira. Kuchita masewera olimbitsa thupi mopepuka, kutambasula, ndi kupumula kokwanira kumathandizanso kuthana ndi ululu.

Zotsatira zoyipa za chithandizo cha MF

Zotsatira zoyipa zamankhwala zimadalira pazinthu zosiyanasiyana. Sikuti aliyense adzakhala ndi zovuta zomwezo. Zomwe zimachitika zimadalira zosintha monga msinkhu wanu, chithandizo, ndi kuchuluka kwa mankhwala. Zotsatira zanu zoyipa zimathanso kukhudzana ndi matenda ena omwe mudakhala nawo m'mbuyomu.

Zina mwazotsatira zoyipa zamankhwala ndi monga:

• nseru
• chizungulire
• kupweteka kapena kumva kulasalasa m'manja ndi m'mapazi
• kutopa
• kupuma movutikira
• malungo
• kumeta tsitsi kwakanthawi

Zotsatira zoyipa zimatha pambuyo pomaliza mankhwala anu. Ngati mukuda nkhawa ndi zovuta zanu kapena mukuvutika kuzilamulira, kambiranani ndi dokotala za zina zomwe mungachite.

Matenda a MF

Kuneneratu za MF ndizovuta ndipo zimadalira pazinthu zambiri.

Ngakhale njira yogwiritsira ntchito poyeserera imagwiritsa ntchito kuyeza kuopsa kwa mitundu ina yambiri ya khansa, palibe njira yokhazikitsira MF.

Komabe, madokotala ndi ofufuza apeza zinthu zina zomwe zingathandize kudziwiratu momwe munthu angawonere. Izi zimagwiritsidwa ntchito mu zomwe zimatchedwa international prognosis score system (IPSS) kuthandiza madotolo kulosera zaka zapakati pa moyo.

Kuthana ndi chimodzi mwazinthu zomwe zili pansipa zikutanthauza kuti kuchuluka kwa anthu opulumuka ndi zaka zisanu ndi zitatu. Kukumana ndi zitatu kapena kupitilira apo kumatha kutsitsa chiyembekezochi mpaka zaka ziwiri. Izi ndi monga:

• kukhala wazaka zopitilira 65
• kukumana ndi zizindikilo zomwe zimakhudza thupi lanu lonse, monga kutentha thupi, kutopa, komanso kuchepa thupi
• kukhala ndi kuchepa kwa magazi m'thupi, kapena kuchuluka kwama cell ofiira ofiira
• kukhala ndi kuchuluka kwama cell oyera oyera modabwitsa
• kukhala ndi kuphulika kwa magazi (maselo amwazi oyera osakhwima) opitilira 1 peresenti

Dokotala wanu angaganizirenso zovuta za majini am'magazi kuti akuthandizeni kudziwa momwe mumaonera.

Anthu omwe sakwaniritsa chilichonse mwazomwe tafotokozazi, kupatula zaka, amadziwika kuti ali pachiwopsezo ndipo amakhala ndi moyo wazaka zopitilira 10.

Njira zothetsera mavuto

MF ndi matenda osatha, osintha moyo. Kulimbana ndi matendawa ndi chithandizo kungakhale kovuta, koma dokotala ndi gulu lanu la zaumoyo lingathandize. Ndikofunika kulankhulana nawo momasuka. Izi zingakuthandizeni kukhala omasuka ndi chisamaliro chomwe mukulandira. Ngati muli ndi mafunso kapena nkhawa, lembani momwe mukuganizira kuti mukambirane ndi madotolo ndi manesi anu.

Kupezeka ndi matenda opitilira ngati MF kumatha kubweretsa zovuta zina m'maganizo ndi m'thupi lanu. Onetsetsani kuti mukudzisamalira. Kudya moyenera ndikuchita masewera olimbitsa thupi ngati kuyenda, kusambira, kapena yoga kukuthandizani kukhala ndi mphamvu. Zingathandizenso kuchotsa malingaliro anu kupsinjika kokhala ndi MF.

Kumbukirani kuti zili bwino kufunafuna chithandizo paulendo wanu. Kulankhula ndi abale anu komanso anzanu kumatha kukuthandizani kuti musamadzipatule komanso kuti muthandizidwe. Zithandizanso anzanu ndi abale anu kuphunzira momwe angakuthandizireni. Ngati mukufuna thandizo lawo pa ntchito za tsiku ndi tsiku monga ntchito zapakhomo, kuphika, kapena zoyendera - kapena kungokumverani - ndibwino kufunsa.

Nthawi zina mwina simungafune kugawana chilichonse ndi anzanu kapena abale anu, ndipo ndichoncho. Magulu ambiri othandizira am'deralo komanso paintaneti amatha kukuthandizani kulumikizana ndi anthu ena omwe akukhala ndi MF kapena zofananira. Anthuwa amatha kudziwa zomwe mukukumana nazo ndikupereka upangiri komanso chilimbikitso.

Ngati mukuyamba kuda nkhawa chifukwa cha matenda anu, lingalirani kukambirana ndi akatswiri azaumoyo ngati mlangizi kapena zamaganizidwe. Amatha kukuthandizani kuti mumvetsetse ndikuthana ndi matenda anu a MF mozama.