Upangiri Woyambira Kugwiritsa Ntchito Khadi Lopumulirako Mukakhala Ndi Matenda a Crohn

Zamkati

• Kodi lamulo lopeza chimbudzi ndi chiyani?
• Momwe imagwirira ntchito
• Kugwiritsa ntchito khadi yanu
• Bwanji ngati mwatembenuzidwa?

Ngati muli ndi matenda a Crohn, mukudziwa kuti mukumva kupsinjika pagulu. Kulakalaka mwadzidzidzi komanso koopsa kogwiritsa ntchito chimbudzi mukakhala kuti simuli panyumba kumatha kukhala kochititsa manyazi komanso kosasangalatsa, makamaka ngati muli kwinakwake kopanda bafa yapagulu.

Mwamwayi, chifukwa cha malamulo omwe aperekedwa m'maiko angapo, pali zomwe mungachite kuti mupeze zimbudzi za ogwira ntchito osafotokozera zakunja kwanu kwa mlendo. Pemphani kuti mudziwe momwe khadi yolowera kuchimbudzi ingasinthire masewerawa mukakhala ndi a Crohn's.

Kodi lamulo lopeza chimbudzi ndi chiyani?

Restroom Access Act, yomwe imadziwikanso kuti Ally's Law, imafuna malo ogulitsa kuti apatse makasitomala omwe ali ndi Crohn's ndi zina zamankhwala mwayi wopeza zipinda zawo zantchito.

Chiyambi cha Lamulo la Ally chimachokera ku chochitika chomwe wachinyamata wotchedwa Ally Bain adakanidwa kulowa mchimbudzi m'sitolo yayikulu. Zotsatira zake, adachita ngozi pagulu. Bain analumikizana ndi woimira boma kuderalo. Onsewa adalemba chikalata cholengeza kuti zimbudzi zokhazokha zantchito zitha kufikiridwa ndi aliyense amene akudwala mwadzidzidzi.

Dera la Illinois lidapereka lamuloli mogwirizana mu 2005. Kuyambira pamenepo, mayiko ena 16 atengera mtundu wawo wamalamulo. Mayiko omwe ali ndi malamulo olowera kuchimbudzi akuphatikizapo:

• Colorado
• Connecticut
• Zowonjezera
• Illinois
• Kentucky
• Maine
• Maryland, PA
• Massachusetts
• Michigan, PA
• Minnesota
• New York
• Ohio
• Oregon
• Tennessee, PA
• Texas
• Washington
• Wisconsin

Momwe imagwirira ntchito

Kuti mutenge mwayi wa Lamulo la Ally, muyenera kupereka fomu yolembedwa ndi wothandizira zaumoyo kapena khadi lodziwitsa lomwe limaperekedwa ndi bungwe lopanda phindu. Ena akuti - monga Washington - apanga mafomu olowera kuchimbudzi amapezeka pa intaneti. Ngati simukutha kupeza fomu yosindikizidwa, mutha kufunsa adotolo kuti akupatseni.

Crohn's & Colitis Foundation imapereka khadi la chimbudzi "Sindingadikire" mukakhala membala. Umembala umawononga $ 30 pamunsi. Kukhala membala kumakhala ndi maubwino owonjezera, monga nkhani zamakalata zanthawi zonse ndi ntchito zothandizila m'deralo.

Bladder & Bowel Community posachedwapa yatulutsa pulogalamu yaulere yaulere ya iOS yomwe imagwira ntchito mofanana ndi khadi yakuchimbudzi. Wotchedwa khadi ya chimbudzi ya "Just Can't Wait", imaphatikizaponso mapu omwe angakuthandizeni kupeza chipinda chosambiramo chapafupi. Zolinga zopanga mtundu wa Android pano zikugwira ntchito.

Kugwiritsa ntchito khadi yanu

Mukalandira chimbudzi chanu kapena fomu yosainidwa, ndibwino kuti muzisunga mkati mwa chikwama chanu kapena chikwama cha foni chifukwa chimakhala nanu nthawi zonse.

Ngati muli kwinakwake kopanda chimbudzi pagulu pakafika vuto, funsani modekha kuti muwone manejala ndikuwapatsa ndi khadi lanu. Makhadi ambiri am'chipinda amakhala ndi chidziwitso chofunikira chazolemba za Crohn, chifukwa chake simuyenera kufotokoza chifukwa chake muyenera kugwiritsa ntchito chimbudzi.

Ngati munthu yemwe mumamuwonetsa khadi yanu akukukanirani kuti mupite kuchimbudzi cha ogwira ntchito, khalani chete. Panikizani kuti ndizadzidzidzi. Ngati akukana, akumbutseni mwaulemu kuti akhoza kulandila chindapusa kapena kuweruzidwa ngati samvera.

Bwanji ngati mwatembenuzidwa?

Ngati mukukhala m'chigawo chimodzi mwa 17 chomwe chili pansi pa Lamulo la Ally ndipo mukuthamangitsidwa mukapereka chikhomo chanu chimbudzi, mutha kukapereka lipoti losagwirizana ndi oyang'anira zamalamulo kwanuko. Chilango chosatsatira chimasiyanasiyana malinga ndi mayiko, koma chimachokera pachindapusa cha $ 100 mpaka makalata ochenjeza ndi zolakwa zaboma.

Ngati mumakhala m'boma lopanda Lamulo la Ally, zitha kukhalabe zothandiza kunyamula nanu chimbudzi nthawi zonse. Ngakhale kuti mabizinesiwo safunika mwalamulo kukulolani kugwiritsa ntchito chimbudzi, kupereka khadiyo kumatha kuthandiza ogwira ntchito kumvetsetsa kufulumira kwazomwe zikuchitika. Itha kuwalimbikitsa kuti akupatseni mwayi wogwiritsa ntchito kuchapa kwawo.

Ndiyeneranso kulumikizana ndi woyimira boma lanu kuti akufunseni za kupita patsogolo kulikonse komwe akupanga posintha ndalama yofanana ndi Lamulo la Ally. Pang'ono ndi pang'ono, opanga malamulo pamaboma ayamba kuzindikira momwe khadi yosavuta ingathandizire moyo wa anthu omwe ali ndi matenda a Crohn.