Pulayimale-Progressive MS (PPMS): Zizindikiro ndi Kuzindikira

Zamkati

• Kodi PPMS imasiyana bwanji ndi mitundu ina ya MS?
• Nchiyani chimayambitsa PPMS?
• Zizindikiro za PPMS ndi ziti?
• Minofu yolimba
• Kutopa
• Kufooka / kumva kulasalasa
• Mavuto ndi masomphenya
• Nkhani zokhala ndi kuzindikira
• Chizungulire
• Mavuto a chikhodzodzo ndi matumbo
• Matenda okhumudwa
• Kodi PPMS imapezeka bwanji?
• Njira zothandizira
• Chiwonetsero

Kodi PPMS ndi chiyani?

Multiple sclerosis (MS) ndi matenda ofala kwambiri amanjenje. Zimayambitsidwa ndi chitetezo chamthupi chomwe chimawononga myelin sheath, kapena zokutira pamitsempha.

Primary progressive multiple sclerosis (PPMS) ndi amodzi mwamitundu inayi ya MS. Mitundu ina itatu ya MS ndi iyi:

• matenda opatsirana (CIS)
• kukonzanso kubwereranso (RRMS)
• kupita patsogolo kwachiwiri (SPMS)

PPMS ndi imodzi mwamitundu yodziwika kwambiri, yomwe imakhudza pafupifupi 10 peresenti ya anthu omwe amapezeka ndi MS.

Kodi PPMS imasiyana bwanji ndi mitundu ina ya MS?

Anthu ambiri omwe akhudzidwa ndi MS amakhala ndi ziwopsezo zazikulu, zotchedwa kubwereranso, komanso miyezi kapena zaka zopanda zizindikilo, zotchedwa kuchotsera.

PPMS ndiyosiyana. Matendawa amakula pomwe zizindikiritso zimayamba kuwonekera, motero dzinalo limangopita patsogolo. Pakhoza kukhala nthawi zopita patsogolo ndiyeno nthawi zina zosasintha za zizindikilo ndikulemala.

Kusiyana kumodzi pakati pa PPMS ndi mawonekedwe obwereranso ndikuti ngakhale kupita patsogolo kwantchito kumatha kuyima kwakanthawi, zizindikirazo sizimatha. Mwa mitundu yobwereranso, zizindikirazo zitha kusintha kapena kubwerera pafupi ndi pomwe zinali zisanayambike kumene.

Kusiyana kwina ndikuti palibe kutupa kochuluka mu PPMS poyerekeza ndi mawonekedwe obwereranso. Chifukwa cha izi, mankhwala ambiri omwe amagwiritsa ntchito mafomu obwereranso sagwira ntchito ku PPMS kapena SPMS. Kukula kwa zizindikilo kumatha kukulirakulira kwa miyezi ingapo kapena zaka zingapo.

PPMS nthawi zambiri imapezeka mwa anthu azaka za m'ma 40 ndi 50. RRMS, mbali inayi, nthawi zambiri imakhala mwa anthu azaka zapakati pa 20 ndi 30. PPMS imakhudzanso amuna ndi akazi mofanana, pomwe RRMS imakhudza azimayi awiri kapena atatu kuposa amuna.

Nchiyani chimayambitsa PPMS?

PPMS imayambitsidwa ndi kuwonongeka kwapang'onopang'ono kwa mitsempha komwe kumaletsa mitsempha kutumiza maimelo wina ndi mnzake. Mitundu inayi yonse ya MS imakhudza kuwonongeka kwa zoteteza (myelin) zamitsempha yapakatikati, yotchedwa kuchotsa magazi, komanso kuwonongeka kwa mitsempha.

Zizindikiro za PPMS ndi ziti?

Zizindikiro za PPMS ndizofanana ndi zizindikiro za SPMS. Inde, zomwe zokumana nazo za munthu wina zidzakhala zosiyana ndi wina.

Zizindikiro za PPMS zitha kuphatikizira izi:

Minofu yolimba

Kupindika kosalekeza kwa minofu ina kumatha kuyambitsa kuuma ndi kulimba, komwe kumakhudza kuyenda. Izi zitha kukupangitsani kukhala kovuta kuyenda, kugwiritsa ntchito masitepe, ndikukopa gawo lanu lonse lazomwe mukuchita.

Kutopa

Pafupifupi 80 peresenti ya omwe ali ndi PPMS amatopa. Izi zitha kukhudza kwambiri moyo watsiku ndi tsiku ndikupangitsa kuti zikhale zovuta kugwira ntchito ndikumaliza ntchito zanthawi zonse. Omwe amapezeka ndi PPMS atha kukhala otopa kwambiri ndi zochitika zosavuta. Mwachitsanzo, ntchito yophika chakudya chamadzulo imatha kuwathera ndikufuna kuti agone pang'ono.

Kufooka / kumva kulasalasa

Chizindikiro china choyambirira cha PPMS ndikufooka kapena kumenyedwa m'malo osiyanasiyana, monga nkhope, manja, ndi mapazi. Izi zitha kumangokhala gawo limodzi la thupi lanu, kapena kupita mbali zina.

Mavuto ndi masomphenya

Izi zitha kuphatikizira masomphenya awiri, kusawona bwino, kulephera kuzindikira mitundu ndi kusiyanasiyana, komanso kupweteka mukamayendetsa maso anu.

Nkhani zokhala ndi kuzindikira

Ngakhale PPMS imakhudza kuyenda, anthu ena amatha kuchepa kuzindikira. Izi zitha kusokoneza kukumbukira ndi kukonza zambiri, kuthetsa mavuto, kuyang'ana, ndikuphunzira chilichonse chatsopano.

Chizungulire

Omwe ali ndi PPMS atha kukhala ndimankhwala ozunguza mutu komanso opepuka. Ena atha kukhala ndi vertigo, kumverera kuti akupota ndikulephera kuchita bwino.

Mavuto a chikhodzodzo ndi matumbo

Mavuto a chikhodzodzo ndi matumbo amatha kuyambira pakudziletsa, mpaka pakufunika kupita, kudzimbidwa. Izi zitha kubweretsa mavuto azakugonana, monga kutsika pagalimoto, zovuta kukhala ndi erection, komanso kutengeka pang'ono kumaliseche.

Matenda okhumudwa

Pafupifupi theka la anthu omwe ali ndi MS adzakumana ndi vuto limodzi lokhumudwitsa. Ngakhale ndizofala kukwiya kapena kukwiya chifukwa cha kulemala komwe kukuwonjezeka, kusintha kwamasinthidwewa kumatha nthawi. Matenda a kukhumudwa, kumbali inayo, samatha ndipo amafuna chithandizo.

Kodi PPMS imapezeka bwanji?

PPMS ili ndi zizindikiro zofananira ndi mitundu ina ya MS, komanso mavuto ena amanjenje. Zotsatira zake, zimatha kutenga zaka zitatu kuti munthu adziwe matenda a PPMS kuposa matenda a RRMS.

Kuti mupeze matenda a PPMS, muyenera:

• khalani ndi chaka chowonjezeka pang'onopang'ono cha ntchito yamitsempha
• khalani ndi mfundo ziwiri izi:
  • chotupa chaubongo chofala ku MS
  • zotupa ziwiri kapena zingapo mumtsempha wanu
  • kupezeka kwa mapuloteni otchedwa immunoglobulins

Dokotala wanu atha kukayezetsa mbiri ya zachipatala ndikukufunsani za zochitika zam'mbuyo zam'mbuyomu. Amatha kufunsa kuti abale awo azikhala nawo, chifukwa amatha kupereka zomwe akumana nazo ndi zizindikilo zakale. Dokotala wanu amatha kuyeserera bwino, makamaka kuwona minyewa yanu ndi minofu yanu.

Dokotala wanu adzaitanitsa sikani ya MRI kuti ayang'ane zotupa muubongo ndi msana. Akhozanso kuyitanitsa mayeso omwe atulutsidwa (EP) kuti awone ngati magetsi ali muubongo. Pomaliza, dokotala wanu azigwiritsira ntchito tampu ya msana kuti ayang'ane zizindikiro za MS mumtsempha wamtsempha.

Njira zothandizira

Palibe mankhwala a PPMS. Mankhwala amodzi, ocrelizumab (Ocrevus), amavomerezedwa ku PPMS komanso mitundu yobwereranso ya MS. Ma immunosuppressants amagwiritsidwa ntchito mobwerezabwereza mitundu, komabe, chifukwa amachepetsa kutupa. PPMS ilibe kutupa kambiri, chifukwa chake ma immunosuppressants mwina sangalimbikitsidwe kukhala othandiza. Kafufuzidwe ka mankhwala othandiza sikupitilira.

Chiwonetsero

Ngakhale kulibe mankhwala a PPMS, omwe amapezeka ndi PPMS sayenera kutaya chiyembekezo. Mothandizidwa ndi madokotala, akatswiri azachipatala, akatswiri olankhula, komanso akatswiri azaumoyo, pali njira zothanirana ndi matendawa. Izi zitha kuphatikizira mankhwala omwe amathandizira kuthetsa zizindikilo, monga kupumula kwa minofu ya minofu, komanso kudya zakudya zopatsa thanzi, kuchita masewera olimbitsa thupi, komanso kugona moyenera.