Malangizo Anga Pakudzilimbikitsa Nokha ndi Ankylosing Spondylitis

Zamkati

• Dziphunzitseni nokha za vutoli
• Lankhulani ndi anzanu komanso abale
• Sinthani malo anu
• Tengera kwina

Timaphatikizapo zinthu zomwe timaganiza kuti ndizothandiza kwa owerenga athu. Ngati mutagula maulalo omwe ali patsamba lino, titha kupeza ndalama zochepa. Nayi njira yathu.

Nditangopita kwa dokotala kukalankhula za zowawa zomwe ndimakhala nazo, anandiuza kuti zimangokhala "kukwiya ndi kukhudzana." Koma ndinali kumva kuwawa kwambiri. Ntchito za tsiku ndi tsiku zinali zovuta kwambiri, ndipo ndinali nditasiya kufuna kucheza ndi anthu. Zowonjezerapo, zimawoneka ngati palibe amene akumvetsa kapena kukhulupirira zomwe ndikukumana nazo.

Zinanditengera zaka zambiri ndisanapemphe dokotala kuti adziwe zomwe ndili nazo. Pofika nthawi imeneyo, zinali zitaipiraipira. Ndinali ndikumva kupweteka kwa msana, kupweteka kwa mafupa, kutopa kwambiri, komanso mavuto am'mimba. Dokotala anangondilangiza kuti ndizidya bwino komanso kuti ndizichita masewera olimbitsa thupi. Koma nthawi ino, ndidatsutsa. Pasanapite nthawi, ndinapezeka kuti ndili ndi ankylosing spondylitis (AS).

Posachedwapa ndalemba nkhani yokhudza momwe ndidakhalira ndi AS. Mu chidutswacho, chomwe chikhale gawo la nthano yotchedwa "Iwotche Pansi," Ndimatsegula mkwiyo womwe ndidamva pomwe ndidapezeka kuti ndili ndi vutoli. Ndinakwiya ndi madotolo omwe amawoneka kuti adanyalanyaza kuopsa kwa zisonyezo zanga, ndidakwiya kuti ndiyenera kupitiliza maphunziro akumva kuwawa, ndipo ndidakwiyira anzanga omwe samamvetsetsa.

Ngakhale kupita kuchipatala kunali ulendo wovuta, zovuta zazikulu zomwe ndidakumana nazo munjirayi zidandiphunzitsa kufunikira kodzilankhulira ndekha kwa anzanga, abale, madokotala, ndi aliyense amene akufuna kumvetsera.

Nazi zomwe ndaphunzira.

Dziphunzitseni nokha za vutoli

Ngakhale madotolo amadziwa bwino, ndikofunikira kuwerengera momwe mulili kuti mukhale ndi mphamvu zofunsa adotolo mafunso ndikukhala nawo pakupanga zisankho pamakonzedwe anu.

Onetsani ku ofesi ya dokotala wanu ndi nkhokwe ya zidziwitso. Mwachitsanzo, yambani kutsatira zomwe mwapeza polemba mu kope kapena pulogalamu ya Notes pa smartphone yanu. Komanso, funsani makolo anu za mbiri yawo yazachipatala, kapena ngati pali chilichonse m'banjamo chomwe muyenera kudziwa.

Pomaliza, konzekerani mndandanda wa mafunso omwe mungafunse dokotala wanu. Mukamakonzekera kukonzekera kusankhidwa kwanu koyamba, ndi bwino kuti dokotala wanu athe kudziwa bwino za matenda anu ndikupatseni mankhwala oyenera.

Nditachita kafukufuku wanga pa AS, ndidakhala wolimba mtima polankhula ndi dokotala wanga. Ndathetsa nkhawa zanga zonse, ndikunenanso kuti abambo anga ali ndi AS. Zomwe, kuwonjezera pa kupweteka kwamaso komwe kumakhalapo (vuto la AS lotchedwa uveitis), adachenjeza adotolo kuti andiyese HLA-B27 - cholembera chomwe chimagwirizana ndi AS.

Lankhulani ndi anzanu komanso abale

Zingakhale zovuta kuti ena amvetsetse zomwe mukukumana nazo. Ululu ndichinthu chapadera komanso chapadera. Zomwe mumakumana nazo ndikumva ululu zitha kukhala zosiyana ndi za munthu wotsatira, makamaka ngati alibe AS.

Mukakhala ndi matenda otupa ngati AS, zizindikilo zimatha kusintha tsiku lililonse. Tsiku lina mutha kukhala wodzaza ndi mphamvu ndipo tsiku lotsatira mwatopa ndipo simutha ngakhale kusamba.

Inde, kukwera ndi kutsika kumeneku kumatha kusokoneza anthu za matenda anu. Afunsanso momwe mungadwalire ngati mukuwoneka wathanzi kunja.

Pofuna kuthandiza ena kumvetsetsa, ndiyesa kupweteka komwe ndikumva pamlingo kuchokera pa 1 mpaka 10. Kuchulukanso kwa chiwerengerocho, ndikumapwetekanso mtima. Komanso, ngati ndapanga mapulani ochezera anthu omwe ndiyenera kuletsa, kapena ngati ndikufuna kusiya chochitika mwachangu, nthawi zonse ndimauza anzanga kuti ndichifukwa sindikumva bwino osati chifukwa chokhala ndi nthawi yoyipa. Ndimawauza kuti ndikufuna kuti azingondiitanira, koma kuti ndiyenera kuti azitha kusintha nthawi zina.

Aliyense amene samvera chisoni zosowa zanu mwina si munthu amene mumafuna m'moyo wanu.

Zachidziwikire, kuyimirira nokha kumatha kukhala kovuta - makamaka ngati mukusinthabe ku nkhani yokhudza matenda anu. Ndikuyembekeza kuthandiza ena, ndimakonda kugawana nawo zolembazi zokhudza matendawa, zizindikiro zake, ndi chithandizo chake. Tikukhulupirira, zimapatsa owonera kumvetsetsa kwamomwe zofooketsa AS zitha kukhalira.

Sinthani malo anu

Ngati mukufuna kusintha malo anu kuti akwaniritse zosowa zanu, chitani choncho. Mwachitsanzo, kuntchito, pemphani tebulo loyimirira kuchokera kwa woyang'anira ofesi yanu ngati alipo. Ngati sichoncho, lankhulani ndi manejala wanu kuti mupeze imodzi. Yambitsaninso zinthu patebulo lanu, kuti musafunikire kufikira kutali pazinthu zomwe mumafunikira.

Mukamakonzekera ndi anzanu, funsani kuti malowa akhale malo otseguka. Ndikudziwa za ine, kukhala mu bala yodzaza ndi matebulo ang'onoang'ono ndikukakamiza kupyola gulu la anthu kuti ndikafike ku bar kapena bafa kumatha kukulitsa zizindikilo (m'chiuno mwanga! Ouch!).

Tengera kwina

Moyo uwu ndi wanu ndipo palibe wina. Kuti mukhale ndi moyo wabwino kwambiri, muyenera kudzichitira umboni. Zingatanthauze kutuluka kumalo anu abwino, koma nthawi zina ndizo zinthu zabwino kwambiri zomwe tingadzipange tokha zomwe ndizovuta kwambiri. Zingawoneke zowopsa poyamba, koma mukapeza mwayi, kudzilankhulira nokha ndi chimodzi mwazinthu zolimbikitsa kwambiri zomwe mudachitapo.

Lisa Marie Basile ndi wolemba ndakatulo, wolemba "Light Magic for Dark Times," komanso mkonzi woyambitsa wa Luna Luna Magazine. Amalemba za kukhala bwino, kupwetekedwa mtima, chisoni, matenda osachiritsika, ndikukhala mwadala. Ntchito yake imapezeka mu New York Times ndi Sabat Magazine, komanso Narratively, Healthline, ndi zina zambiri. Amapezeka pa lisamariebasile.com, komanso Instagram ndi Twitter.