Nkhani Zoona: Kukhala ndi Ulcerative Colitis

Ulcerative colitis (UC) imakhudza anthu pafupifupi 900,000 ku United States. Chaka chilichonse, pafupifupi 20% mwa anthuwa amakhala ndi matenda ochepa ndipo 1 mpaka 2% ali ndi matenda akulu, malinga ndi Crohn's and Colitis Foundation of America.

Ndi matenda osadziwika. Zizindikiro zimakonda kubwera ndikupita, ndipo nthawi zina zimapita patsogolo pakapita nthawi. Odwala ena amakhala kwazaka zambiri osakhala ndi zisonyezo, pomwe ena amakumana ndi zovuta pafupipafupi. Zizindikiro zimasiyanasiyana kutengera kukula kwa kutupa, komanso. Chifukwa cha izi, ndikofunikira kuti anthu omwe ali ndi UC azindikire momwe zimawakhudzira mosalekeza.

Nazi nkhani za zokumana nazo za anthu anayi ndi UC.

Kodi mudapezeka liti?

[Pafupifupi zaka zisanu ndi ziwiri] zapitazo.

Kodi mumathetsa bwanji matenda anu?

Chithandizo changa choyamba chinali ndi ma suppositories, omwe ndimavutika nawo kwambiri, ovuta kuwaika, komanso ovuta kuwagwira. Kwa chaka chotsatira ndi theka kapena apo ndidachiritsidwa ndi ma prednisone ndi mesalamine (Asacol). Izi zinali zoyipa. Ndinali ndi zovuta komanso zovuta ndi prednisone, ndipo nthawi iliyonse ndikayamba kumva bwino ndimadwalanso. Pamapeto pake ndinasinthitsa madokotala kupita kwa Dr. Phot Moolsintong ku St. Louis, omwe amandimvera ndikuthandizira vuto langa osati matenda anga okha. Ndikadali pa azathioprine ndi escitalopram (Lexapro), yomwe yakhala ikugwira ntchito bwino kwambiri.

Ndi mankhwala ena ati omwe akuthandizirani?

Ndinayesanso mankhwala angapo am'mimba, kuphatikiza zakudya zopanda thanzi, zopanda wowuma. Palibe zomwe zidandigwirira ntchito kupatula kusinkhasinkha ndi yoga. UC imatha kukhala yokhudzana ndi kupsinjika, yokhudzana ndi zakudya, kapena zonse ziwiri, ndipo mlandu wanga umakhudzana kwambiri ndi nkhawa.Komabe, kudya zakudya zopatsa thanzi ndikofunikanso. Ngati ndidya chakudya chosinthidwa, pasitala, ng'ombe, kapena nkhumba, ndimalipira.

Ndikofunikira kuti matenda aliwonse omwe amadzichitira okha azichita masewera olimbitsa thupi pafupipafupi, koma nditha kunena kuti ndizomwe zimafunikira matenda am'mimba. Ngati sindichepetsa kagayidwe kanga ka chakudya ndipo mtima wanga ukugunda, zimandivuta kupeza mphamvu yochitira chilichonse.

Ndi malangizo ati omwe mungapatse anthu ena omwe ali ndi UC?

Yesetsani kuti musachite manyazi kapena kupanikizika ndi zizindikilo zanu. Nditangoyamba kudwala, ndimayesetsa kubisa zisonyezo zanga zonse kwa anzanga komanso abale, zomwe zidangobweretsa chisokonezo, nkhawa, komanso kupweteka. Komanso, musataye chiyembekezo. Pali mankhwala ambiri. Kupeza njira zanu zochiritsira ndichofunikira, ndipo kuleza mtima ndi madotolo abwino akupititsani kumeneko.

Kodi mudapezeka liti?

Poyamba [ndinapezeka] ndi UC ndili ndi zaka 18. Kenako ndinapezeka ndi matenda a Crohn pafupifupi zaka zisanu zapitazo.

Zakhala zovuta bwanji kukhala ndi UC?

Zomwe zakhudza kwambiri zakhala zachikhalidwe. Ndili mwana, ndinkachita manyazi kwambiri ndi matendawa. Ndimacheza kwambiri koma panthawiyo, ndipo mpaka lero, ndimapewa magulu ambiri kapena zochitika zina chifukwa cha UC wanga. Tsopano popeza ndakula ndipo ndachitidwa opareshoni, ndiyenerabe kusamala za malo odzaza. Ndimasankha kusachita zinthu zamagulu nthawi zina chifukwa chotsatira zovuta za opareshoni. Komanso, nditakhala ndi UC, kuchuluka kwa prednisone kumandikhudza mwakuthupi komanso m'maganizo.

Kodi pali chakudya, mankhwala, kapena malingaliro aliwonse amoyo?

Khalani achangu! Ndicho chinthu chokhacho chomwe chidawongolera theka zanga. Kupitirira apo, kusankha zakudya ndicho chinthu chofunikira kwambiri kwa ine. Khalani kutali ndi zakudya zokazinga ndi tchizi wambiri.

Tsopano ndimayesetsa kukhala pafupi ndi zakudya za Paleo, zomwe zimawoneka kuti zikundithandiza. Makamaka odwala achichepere, ndinganene kuti musachite manyazi, mutha kukhala ndi moyo wokangalika. Ndayendetsa ma triathlons, ndipo tsopano ndine CrossFitter wokangalika. Si mathero adziko lapansi.

Ndi mankhwala ati omwe mudalandira?

Ndinali pa prednisone kwa zaka zambiri ndisanachite opaleshoni ya ileoanal anastomosis, kapena J-poch. Tsopano ndili pa certolizumab pegol (Cimzia), yomwe imapangitsa kuti Crohn yanga izikhala yolondola.

Kodi mudapezeka liti?

Anandipeza ndi UC mu 1998, mapasa anga atangobadwa, mwana wanga wachitatu ndi wachinayi. Ndinayamba kukhala wokangalika kwambiri moti sindinathe kuchoka panyumba panga.

Kodi mwamwa mankhwala ati?

Dokotala wanga wa GI nthawi yomweyo anandipatsa mankhwala, omwe anali osagwira ntchito, motero pamapeto pake adandipatsa prednisone, yomwe imangobisa zisonyezozo. Dokotala wotsatira adandichotsa pa prednisone koma adandiika pa 6-MP (mercaptopurine). Zotsatira zake zinali zoyipa, makamaka momwe zimakhudzira kuchuluka kwanga kwama cell oyera. Anandipatsanso kuneneratu koopsa komanso kutsika moyo wanga wonse. Ndinali wokhumudwa kwambiri ndipo ndinali ndi nkhawa kuti sindilera ana anga anayi.

Chinakuthandizani nchiyani?

Ndidachita kafukufuku wambiri, ndipo mothandizidwa ndidasintha zakudya zomwe ndidadya ndipo pamapeto pake ndimatha kudziletsa pamankhwala onsewa. Tsopano ndilibe gilateni ndipo ndimadya zakudya zopangidwa kuchokera ku zitsamba, ngakhale ndimadya nkhuku ndi nsomba zamtchire. Ndakhala ndikumwa mankhwala osokoneza bongo komanso kumwa mankhwala osokoneza bongo kwa zaka zingapo. Kuphatikiza pa kusintha kwa zakudya, kupumula mokwanira komanso kuchita masewera olimbitsa thupi ndikofunikira, komanso kuchepetsa nkhawa. Ndinabwerera kusukulu kukaphunzira zakudya kuti ndizitha kuthandiza ena.

Kodi mudapezeka liti?

Anandipeza pafupifupi zaka 18 zapitazo, ndipo nthawi zina zimakhala zovuta kwambiri. Vutoli limabwera pamene matendawa amayamba kugwira ntchito ndikusokoneza moyo watsiku ndi tsiku. Ngakhale ntchito zosavuta zimakhala kupanga. Kuonetsetsa kuti pali bafa kumakhalapo patsogolo pamutu mwanga.

Mumatani ndi UC wanu?

Ndimamwa mankhwala ambiri, koma nthawi zina ndimakumana ndi mavuto. Ndangophunzira "kuthana." Ndimatsata dongosolo lamakhalidwe okhwima kwambiri, lomwe landithandiza kwambiri. Komabe, ndimadya zinthu zomwe anthu ambiri omwe ali ndi UC amati sangadye, monga mtedza ndi maolivi. Ndimayesetsa kuthana ndi nkhawa momwe ndingathere ndikugona mokwanira tsiku lililonse, zomwe sizingatheke nthawi zina mdziko lathu lamisala lama-21!

Kodi muli ndi upangiri kwa anthu ena omwe ali ndi UC?

Langizo langa lalikulu ndi ili: Werengani madalitso anu! Ziribe kanthu momwe zinthu zimawonera kapena kumverera nthawi zina, ndimatha kupeza chilichonse choti ndithokoze. Izi zimapangitsa malingaliro anga ndi thupi langa kukhala lathanzi.