App Yatsopano ya Healthline Imathandizira Kulumikiza Omwe Ali ndi IBD

Zamkati

• Khalani pagulu
• Pezani chitonthozo m'mawerengero ndi magulu
• Zitsanzo zamitu yakukambirana pagulu
  
• Pezani zolemba zothandiza komanso zotchuka
• Malo okhalira ndi chiyembekezo komanso chiyembekezo

IBD Healthline ndi pulogalamu yaulere ya anthu omwe ali ndi matenda a Crohn kapena ulcerative colitis. Pulogalamuyi imapezeka pa App Store ndi Google Play.

Kupeza abwenzi ndi abale omwe amamvetsetsa ndikuthandizira IBD yanu ndi chuma. Kulumikizana ndi iwo omwe amadzionera nokha ndikosasinthika.

Cholinga cha pulogalamu yatsopano ya IBD ya Healthline ndikupereka malo olumikizirana.

Wopangidwa kuti azikhala ndi anthu omwe ali ndi matenda a Crohn's kapena ulcerative colitis (UC), pulogalamu yaulere imapereka chithandizo cha m'modzi m'modzi ndi upangiri wamagulu kuchokera kwa anthu omwe amamvetsetsa zomwe mukukumana nazo, ngakhale mutapezeka kumene kapena muli ndi vet.

Natalie Hayden, yemwe anapezeka ndi matenda a Crohn ali ndi zaka 21 anati: "Zikutanthauza kuti dziko lapansi lizitha kulumikizana ndi munthu yemwe" amalandira. "

Iye anati: “Atandipeza ndi matenda a Crohn’s mu 2005, ndinamva ngati ndili ndekha komanso ndekha. "Ndikadapatsa chilichonse kuti ndikwanitse kufikira mwachindunji anthu omwe ali ndi IBD ndikugawana nawo zomwe ndimaopa, nkhawa, komanso zovuta zanga popanda kuwopa kuweruzidwa. Ndizothandiza ngati [pulogalamuyi] zomwe zimatipatsa mphamvu ngati odwala komanso kutisonyeza momwe moyo umapitilira, ngakhale mutakhala ndi matenda osachiritsika. "

Khalani pagulu

Pulogalamu ya IBD ikufanana nanu ndi mamembala ochokera mdera tsiku lililonse nthawi ya 12 koloko masana. Pacific Standard Nthawi kutengera:

• Mtundu wa IBD
• chithandizo
• zokonda

Muthanso kusakatula mbiri yamembala ndikupempha kulumikizana ndi wina nthawi yomweyo. Ngati wina akufuna kufanana nanu, mumadziwitsidwa nthawi yomweyo. Akalumikizidwa, mamembala amatha kutumiza mauthenga kwa wina ndi mnzake ndikugawana zithunzi.

"Zomwe ndimasewera tsiku lililonse zimandilimbikitsa kufikira anthu omwe sindingalumikizane nawo, ngakhale nditawona mbiri zawo pazakudya," akutero a Alexa Federico, omwe akhala ndi matenda a Crohn kuyambira ali ndi zaka 12. “Kukhala wokhoza kucheza ndi wina nthawi yomweyo kumathandiza aliyense amene akufuna upangiri wa ASAP. Zimaphatikizanso [chitonthozo] kudziwa kuti [pali] gulu la anthu oti mungalankhule nawo. "

Natalie Kelley, yemwe adapezeka ndi UC mu 2015, akuti ndizosangalatsa kudziwa kuti apeza masewera atsopano tsiku lililonse.

"Ndikosavuta kumva ngati kuti palibe amene akumvetsa zomwe mukukumana nazo, koma ndikuzindikira kuti tsiku lililonse mumapeza 'kukumana' ndi munthu amene amachita ndichidziwitso chapadera kwambiri," akutero Kelley. "Nthawi yomwe mumalankhula ndi womenyera wina wa IBD ndikukhala ndi nthawi ya" Undipeza! "Ndi matsenga. Kukhala ndi munthu woti mungamutumizire mameseji kapena kutumizirana mameseji usiku mutagona ndi nkhawa za IBD kapena kumva kuti simukusangalala ndi maulendo ena chifukwa cha IBD ndizolimbikitsa. "

Mukapeza machesi abwino, pulogalamu ya IBD imaphwanya ayezi poyankha munthu aliyense kuti ayankhe mafunso kuti athandize kukambirana.

Hayden akuti izi zidapangitsa kuti kukwera bwato kukhala kosavuta komanso kolandiridwa.

"Gawo lomwe ndimakonda linali funso lothana ndi ayezi, chifukwa zidandipangitsa kuti ndiyime kaye ndikuganiza zaulendo wanga wodwala komanso momwe ndingathandizire ena," akutero.

Pezani chitonthozo m'mawerengero ndi magulu

Ngati mumakonda kucheza ndi anthu angapo nthawi imodzi m'malo mochita limodzi, pulogalamuyi imapereka zokambirana pagulu tsiku lililonse sabata. Wotsogozedwa ndi chitsogozo cha IBD, zokambirana zamagulu zimakhazikitsidwa pamitu ina.

Zitsanzo zamitu yakukambirana pagulu

• chithandizo ndi zotsatirapo zake
• moyo
• ntchito
• maubale ndi abale ndi abwenzi
• akupezeka kumene
• zakudya
• zamaganizidwe ndi malingaliro
• kuyendetsa chithandizo chamankhwala
• kudzoza

"Mbali ya 'Magulu' ndi imodzi mwazinthu zofunikira kwambiri pulogalamuyi. Mosiyana ndi gulu la Facebook pomwe aliyense angafunse za chilichonse, [maupangiri] amasunga zokambirana pamutu, ndipo mitu yake imafotokoza zosiyanasiyana, "akutero Federico.

Hayden akuvomereza. Amanenanso kuti izi zimapangitsa kuti pulogalamuyi izikhala bwino chifukwa mutha kuyika mitu yomwe ikugwirizana ndi zosowa zanu. Amawona magulu a "Community Community" komanso "Inspiration" ali ofananira kwambiri.

"Ndili ndi mwana wazaka ziwiri komanso mwana wamwamuna wazaka 4, motero ndimawona kuti ndizothandiza kulumikizana ndi makolo anzanga a IBD omwe amamvetsetsa zenizeni zanga za tsiku ndi tsiku. Ndili ndi njira yabwino kwambiri yothandizira mabanja ndi abwenzi, koma kukhala ndi anthuwa kumandithandiza kufikira anthu omwe akudziwa bwino momwe zimakhalira ndikakhala ndi matendawa, "a Hayden akutero.

Kwa Kelley, magulu azakudya ndi njira zina zamankhwala, thanzi lam'mutu ndi malingaliro, komanso kudzoza kumalimbikitsidwa kwambiri.

"Pokhala mphunzitsi wathanzi, ndikudziwa mphamvu ya zakudya ndipo ndawona momwe kusintha kwa kadyedwe kandithandizira zilonda zanga zam'mimba, chifukwa chake ndimakonda kuuza ena izi. Ndimaganiziranso kuti thanzi la m'maganizo ndi m'maganizo la IBD ndi mutu womwe sunakambidwe mokwanira.

"Ndikudziwa kuti zidali zovuta kuti ndiyambe kufotokoza zamavuto anga atadwala IBD. Koma pozindikira momwe alumikizirana komanso kumva kuti ali ndi mphamvu zoyankhulapo, ndikuwonetsa ena kuti sali okha ngati akumva choncho ndi gawo lalikulu la ntchito yanga, "akutero Kelley.

Awonjezeranso kuti monga blogger wathanzi, cholinga chake tsiku lililonse ndikulimbikitsa ena.

“Makamaka omwe ali ndi IBD. Kukhala ndi gulu lonse [mu pulogalamuyi] lodzipereka kudzoza ndikulimbikitsa modabwitsa, ”akutero.

Pezani zolemba zothandiza komanso zotchuka

Mukakhala ndi chidwi chowerenga ndikuphunzira m'malo mokambirana ndikukambirana, mutha kupeza zaumoyo wosankhidwa ndi nkhani za IBD zowunikiridwa ndi gulu la akatswiri azachipatala a Healthline.

Mu tabu lomwe mwasankha, mutha kuwona nkhani zokhudzana ndi matenda, chithandizo chamankhwala, thanzi, kudzisamalira, thanzi lam'mutu, ndi zina zambiri, komanso nkhani zaumwini komanso maumboni ochokera kwa anthu omwe ali ndi IBD. Muthanso kuwona zoyeserera zamankhwala komanso kafukufuku waposachedwa wa IBD.

"Gawo la 'Discover' ndilabwino chifukwa ndi nkhani zowona zomwe mungagwiritse ntchito. Zili ngati nkhani yolozera ku IBD, "akutero a Hayden. "Nthawi zonse ndimayesetsa kudziphunzitsa ndekha za matenda anga komanso zokumana nazo za ena [anthu] kuti ndikhoze kukhala wodwalayo wodwala wodekha ndekha komanso wa ena mderalo."

Kelley amamvanso chimodzimodzi.

"Ndimafufuza pafupipafupi za IBD ndi m'matumbo thanzi chifukwa cha ine ndekha komanso chifukwa cha makasitomala anga komanso gulu la Instagram ndi tsamba langa," akutero. "Kutha kungodina pa 'Discover' ndikupeza zolemba zonse zodalirika zokhudzana ndi IBD zimapangitsa njirayi kukhala yosavuta kwambiri.

“Ndikuganiza kuti maphunziro ndiopatsa mphamvu, makamaka pankhani yakukhala ndi matenda osatha. Poyamba sindinkafufuza chifukwa zimandipangitsa kuti ndizivutika maganizo, koma tsopano ndazindikira kuti ndikamadziwa zambiri za matenda angawa, ndikulakalaka. ”

Malo okhalira ndi chiyembekezo komanso chiyembekezo

Ntchito ya IBD Healthline ndikupatsa mphamvu anthu kuti azikhala kupitirira IBD yawo mwachifundo, chithandizo, komanso chidziwitso. Kuphatikiza apo, zikuwoneka kuti zimapereka malo otetezeka kuti mupeze ndikulandila upangiri, kufunafuna ndi kupereka chithandizo, ndikupeza nkhani zaposachedwa kwambiri za IBD ndi kafukufuku wopangidwira inu nokha.

"Ndimakonda momwe anthu amathandizira kale kale. Ndidayesapo kujowina magulu ena othandizira kapena malo ochezera kale ndipo nthawi zonse ndimakhala ngati atatembenukira kumalo olakwika mwachangu, "akutero Kelley.

"Aliyense amene ali mu pulogalamuyi ndi wolimbikitsa komanso amasamala moona mtima zomwe tonse tikugawana. Kutha kudalirana wina ndi mnzake muulendo wathu wa IBD kumapangitsa mtima wanga kukhala wosangalala kwambiri, ”akuwonjezera.

Cathy Cassata ndi wolemba pawokha wodziwikiratu pa nkhani zathanzi, thanzi lam'mutu, komanso machitidwe amunthu. Ali ndi luso lolemba ndi kutengeka komanso kulumikizana ndi owerenga mwanzeru komanso moyenera. Werengani zambiri za ntchito yake Pano.