Madokotala Ananyalanyaza Zizindikiro Zanga Kwa Zaka Zitatu Ndisanandipeze Ndi Gawo 4 Lymphoma

Zamkati

• Amadziwika Nthawi Zonse
• The Breaking Point
• Pomaliza Kupeza Mayankho
• Moyo Pambuyo pa Khansa
• Onaninso za

Kumayambiriro kwa chaka cha 2014, ndinali mtsikana wanu wazaka za m’ma 20 wa ku America amene ndinkagwira ntchito yokhazikika, ndikukhala moyo wanga popanda nkhawa padziko lapansi. Ndinadalitsidwa ndi thanzi labwino ndipo nthawi zonse ndimapanga zolimbitsa thupi ndikudya bwino. Kupatulapo kununkhiza apa ndi apo, sindikanapita ku ofesi ya dokotala moyo wanga wonse. Zonsezi zinasintha nditakhala ndi chifuwa chodabwitsa chomwe sichinathe.

Amadziwika Nthawi Zonse

Ndinaonana ndi dokotala koyamba pamene chifuwa changa chinayamba kuchita bwino. Sindinakumanepo ndi chilichonse chonga icho, ndipo kukhala wogulitsa, kuwononga chimphepo nthawi zonse sikunali koyenera. Dokotala wanga woyang'anira woyamba anali woyamba kundichotsa, ndikunena kuti zinali chabe ziwengo. Ndinapatsidwa mankhwala oletsa ziwengo pa kauntala ndi kutumizidwa kunyumba.

Miyezi idadutsa, ndipo chifuwa changa chidakulirakulira. Ndinaonana ndi dokotala mmodzi kapena awiri ndipo anandiuza kuti panalibe vuto lililonse, ndinapatsidwa mankhwala owonjezera a ziwengo, ndipo ndinabwerera. Zinafika poti kutsokomola kunakhala chikhalidwe chachiwiri kwa ine. Madokotala angapo anali atandiuza kuti palibe chomwe ndikudandaula nacho, chifukwa chake ndidaphunzira kunyalanyaza chizindikiro changa ndikupitilizabe ndi moyo wanga.

Patadutsa zaka ziwiri, ndinayambanso kukhala ndi matenda ena. Ndinayamba kudzuka usiku uliwonse chifukwa cha thukuta usiku. Ndinataya mapaundi 20, osasintha moyo wanga. Ndinali ndi ululu wam'mimba, wam'mimba.Zinandionekeratu kuti m’thupi mwanga muli chinachake sichili bwino. (Zokhudzana: Ndinali Wonenepa Mwamanyazi Ndi Dokotala Wanga Ndipo Tsopano Ndikuzengereza Kubwerera)

Pofunafuna mayankho, ndidapitiliza kubwerera kwa dokotala wanga wamkulu, yemwe adanditsogolera kwa akatswiri osiyanasiyana omwe anali ndi malingaliro awo pazomwe zingakhale zolakwika. Wina adati ndili ndi zotupa m'mimba. Ultrasound mwachangu unamutsekera uja. Ena amati ndichifukwa ndimagwira ntchito kwambiri - kuchita masewera olimbitsa thupi ndikusokoneza kagayidwe kanga kapena kuti ndangotulutsa minofu. Kuti ndikhale womveka, ndinali pa Pilates kwambiri panthawiyo ndipo ndinkaphunzira masiku 6-7 sabata. Ngakhale ndinali wolimbikira kuposa ena omwe anali pafupi nane, sindinkawachita mopitirira muyeso mpaka kudwala. Komabe, ndinatenga zotsitsimutsa minofu, ndi mankhwala opweteka omwe madokotala adandiuza ndikuyesera kuti ndipitirize. Ululu wanga sunathe, ndinapita kwa doc wina, yemwe adati ndi asidi Reflux ndipo adandipatsa mankhwala osiyanasiyana. Koma ngakhale nditamvera malangizo a ndani, ululu wanga sunathe. (Zokhudzana: Kuvulaza Khosi Langa Kunali Kudzisamalira Kodzidzimutsa Sindikudziwa Kuti Ndikufunika)

Pazaka zitatu, ndinawona madokotala ndi akatswiri osachepera 10: madokotala, ma ob-gyns, gastroenterologists, ndi ENT akuphatikizidwa. Anandipatsa magazi amodzi komanso ultrasound imodzi nthawi yonseyi. Ndidapempha mayeso enanso, koma aliyense amawawona ngati osafunikira. Nthawi zonse ndinkauzidwa kuti ndinali wamng'ono komanso wathanzi kwambiri kuti ndisakhale ndi chinachake kwenikweni cholakwika ndi ine. Sindidzaiwala nditabwerera kwa dokotala wanga wamkulu nditatha zaka ziwiri ndikumwa mankhwala osokoneza bongo, pafupifupi misozi, ndidakali ndi chifuwa chokhazikika, ndikupempha thandizo ndipo adangondiyang'ana ndikuti: "Sindikudziwa. zoti ndikuuze. Uli bwino. "

Pambuyo pake, thanzi langa linayamba kusokoneza moyo wanga wonse. Anzanga amaganiza kuti mwina ndinali hypochondriac kapena ndinali wofunitsitsa kukwatiwa ndi dokotala popeza ndimapita kokafufuzidwa sabata iliyonse. Ngakhale ine ndinayamba kumva ngati ndapenga. Anthu ophunzira kwambiri komanso ovomerezeka akakuwuza kuti palibe cholakwika ndi iwe, ndizachilengedwe kuyamba kudzidalira. Ndinayamba kuganiza kuti, 'Kodi zonsezi zili m'mutu mwanga?' 'Kodi ndikungowonjezera matenda angawa?' Sipanapatsidwe mpaka nditadzipeza ndili mu ER, ndikumenyera moyo wanga pomwe ndidazindikira kuti zomwe thupi langa limandiuza zinali zoona.

The Breaking Point

Kutatsala tsiku limodzi kuti ndipite ku Vegas kukakumana ndi malonda, ndinadzuka ndikumva ngati sindingathe kuyenda. Ndinali nditagwira thukuta, m'mimba mwanga munali ndi ululu wopweteka, ndipo ndinali wofooka kwambiri mwakuti sindinathe ngakhale kugwira ntchito. Apanso, ndinapita kumalo osamalira anthu mwamsanga kumene anakapereka magazi ndi kutenga mkodzo. Nthawi ino, adazindikira kuti ndili ndi miyala ya impso yomwe imatha kudzidutsa yokha. Sindingachitire mwina koma kumva ngati aliyense pachipatalachi akufuna kuti ndizilowa ndikutuluka, mosasamala kanthu momwe ndimamvera. Pomaliza, nditatayika, ndikusowa mayankho, ndidatumiza zotsatira zanga kwa amayi anga, omwe ndi namwino. M’mphindi zochepa chabe, anandiimbira foni n’kundiuza kuti ndipite kuchipinda chodzidzimutsa chapafupi kwambiri ASAP ndi kuti anali kukwera ndege kuchokera ku New York. (Zokhudzana: Zizindikiro za 7 Zomwe Simuyenera Kuzinyalanyaza

Anandiuza kuti kuchuluka kwanga kwama cell oyera anali kupyola padenga, kutanthauza kuti thupi langa linali kuukiridwa ndipo likuchita zonse zotheka kuti ndithane nalo. Palibe ku chipatala amene anamugwira. Pokhumudwitsidwa, ndidapita pagalimoto kuchipatala choyandikira kwambiri, ndikumenya zotsatira zanga zakuyesa pa desiki yolandirira ndikungowafunsa kuti andikonze-ngati izi zitanthauza kundipatsa mankhwala azachipatala, maantibayotiki, zilizonse. Ndimangofuna kuti ndikhale bwino ndipo zomwe ndimaganiza ndikangoganiza kuti ndiyenera kukhala pa ndege tsiku lotsatira. (Zogwirizana: 5 Nkhani Zaumoyo Zomwe Zimakhudza Akazi Mosiyanasiyana)

Pamene doc ER pa ndodo anayang'ana pa mayesero anga, anandiuza ine sindikupita kulikonse. Nthawi yomweyo adandilola ndikutumizidwa kukayezetsa. Kupyolera mu ma X-ray, ma CAT scan, magazi, komanso ma ultrasound, ndimapitilirabe ndikutuluka. Kenako, pakati pausiku, ndinauza manesi anga kuti sindingathe kupuma. Apanso, anandiuza kuti mwina ndinali ndi nkhawa ndi kupsinjika maganizo chifukwa cha zonse zomwe zinkachitika, ndipo nkhawa zanga zinachotsedwa. (Zokhudzana: Madokotala Aakazi Ndiabwino Kuposa Ma Doc Amuna, Ziwonetsero Zatsopano Zofufuza)

Patatha mphindi 45, ndinayamba kulephera kupuma. Sindikukumbukira chilichonse pambuyo pake, kupatula podzuka kwa amayi anga pafupi nane. Anandiuza kuti amayenera kukhetsa kotala lita yamadzimadzi m'mapapo anga ndikundipanga biopsy kuti atumize kukayezetsa zambiri. Panthawi imeneyo, ndinaganiza kuti ndiye maziko anga. Tsopano, aliyense amayenera kunditenga mozama. Koma ndidakhala masiku 10 otsatira ku ICU ndikudwala kwambiri masana. Zomwe ndimapeza panthawiyi zinali mankhwala opweteka komanso kuthandizira kupuma. Ndinauzidwa kuti ndinali ndi matenda amtundu wina, ndipo ndikhala bwino. Ngakhale madokotala atabwera kudzaonana naye, anandiuza kuti ndilibe khansa ndipo iyenera kukhala ina. Ngakhale samanena, ndimamva kuti amayi anga amadziwa chomwe chinali cholakwika, koma ndimachita mantha kuti ndinene.

Pomaliza Kupeza Mayankho

Nditatsala pang'ono kukhala pachipatalachi, monga a Tikuoneni Mary, ananditumiza kuti akandipime PET. Zotsatira zake zidatsimikizira kuti amayi anga amawopa kwambiri: Pa February 11, 2016, ndinauzidwa kuti ndili ndi Stage 4 Hodgkin Lymphoma, khansa yomwe imayamba mu lymphatic system. Zinafalikira ku chiwalo chilichonse cha thupi langa.

Mtima wamtendere komanso mantha akulu adasefukira pondipeza. Potsirizira pake, pambuyo pa zaka zonsezi, ndinadziŵa chimene chinali cholakwika ndi ine. Ndinadziwa tsopano kuti thupi langa lakhala likukweza mbendera zofiira, kundichenjeza, kwa zaka zambiri, kuti chinachake sichinali cholondola. Koma panthawi imodzimodziyo, ndinali ndi khansa, inali paliponse, ndipo sindinkadziwa kuti ndithetse bwanji.

Kuchipatala komwe ndinakhala kunalibe ndalama zokwanira zondichiritsira, ndipo ndinalibe mphamvu zoti ndisamukire ku chipatala china. Pakadali pano, ndinali ndi njira ziwiri: kukhala pachiwopsezo ndikuyembekeza kuti ndapulumuka paulendo wopita kuchipatala chabwino kapena kukhala komweko ndikufa. Mwachilengedwe, ndidasankha woyamba. Panthaŵi yomwe ndinaloledwa kupita ku Sylvester Comprehensive Cancer Center, ndinali nditasweka kwambiri, m'maganizo ndi mwakuthupi. Koposa zonse, ndimadziwa kuti nditha kufa ndipo ndiyeneranso kupereka moyo wanga m'manja mwa madotolo ambiri omwe akundilephera kangapo. Mwamwayi, nthawi ino, sindinakhumudwe. (Zokhudzana: Amayi Amakhala Ndi Mtima Wopwetekedwa Mtima Ngati Dokotala Wawo Ndi Mkazi)

Kuyambira pomwe ndidakumana ndi ma oncologists anga, ndidadziwa kuti ndili m'manja abwino. Anandilola Lachisanu madzulo ndipo anandiika chemotherapy usiku womwewo. Kwa iwo omwe mwina sangadziwe, imeneyo si njira yokhazikika. Odwala nthawi zambiri amayembekezera masiku asanayambe kulandira chithandizo. Koma ndimadwala kwambiri kotero kuti kuyamba kulandira chithandizo ASAP kunali kofunika kwambiri. Popeza khansa yanga inali itafalikira kwambiri, ndinakakamizidwa kupita kuchipatala chomwe amachitcha kuti salvage chemotherapy, yomwe ndi mankhwala ochiritsira omwe amagwiritsidwa ntchito ngati zosankha zina zonse zalephera kapena zovuta zili ngati zanga. M'mwezi wa Marichi, nditatha kupereka chemo ziwirizo ku ICU, thupi langa lidayamba kukhululuka pang'ono pasanathe mwezi umodzi nditapezeka. Mu Epulo, khansara idabweranso, nthawi ino ndili pachifuwa. M'miyezi isanu ndi itatu yotsatira, ndidakhala ndi magawo asanu ndi limodzi a chemo ndi magawo 20 a chithandizo cha radiation ndisanalengedwe kuti ndilibe khansa - ndipo ndakhala ndikuchita kuyambira pamenepo.

Moyo Pambuyo pa Khansa

Anthu ambiri amanditenga mwayi. Mfundo yoti ndinapezeka mochedwa kwambiri pamasewerawa ndikutuluka wamoyo ndi chozizwitsa. Koma sindinachoke paulendo wopanda chiwopsezo. Kuwonjezera pa kusokonezeka kwakuthupi ndi m'maganizo komwe ndinakumana nako, chifukwa cha kuchitidwa nkhanza koteroko ndi kutentha komwe kunayamwa ndi dzira langa, sindingathe kukhala ndi ana. Ndinalibe nthawi yoti ndiganizirenso kuzizira mazira anga ndisanathamangire kuchipatala, ndipo chemo ndi radiation zidawononga thupi langa.

Sindingachitire mwina koma kumva kuti ngati wina watero kwenikweni adandimvera, osandichotsa, ngati mkazi wachichepere, wowoneka wathanzi, akadatha kuyika zizindikiro zanga zonse pamodzi ndikugwiranso khansara kale. Dokotala wanga wa zachipatala ku Sylvester ataona zotsatira za mayeso anga, anali kukuwa kwambiri kuti zinamutengera zaka zitatu kuti azindikire chinthu chomwe chikanatha kuwonedwa ndi kuchizidwa mosavuta. Koma ngakhale nkhani yanga ikuwoneka yodabwitsa ndipo ikuwoneka, ngakhale kwa ine, ngati ikhoza kukhala kuchokera mu kanema, sizovuta. (Zokhudzana: Ndine Wachinyamata, Woyenerera Spin Mlangizi-ndipo Watsala pang'ono Kumwalira ndi Matenda a Mtima)

Nditalumikizana ndi odwala khansa kudzera pazithandizo zamankhwala, ndazindikira kuti achichepere ambiri (azimayi, makamaka) amachotsedwa kwa miyezi ndi zaka ndi madotolo omwe samazindikira matenda awo. Ndikayang'ana mmbuyo, ngati ndikanatha kubwerezanso, ndikanapita ku ER posachedwa, kuchipatala chosiyana. Mukapita ku ER, amayenera kukayezetsa mayeso omwe chipatala chazachangu sichitha. Ndiye mwina, mwina, ndikadayamba kulandira chithandizo msanga.

Ndikayang’ana m’tsogolo, ndimaona kuti thanzi langa ndi labwino, koma ulendo wanga wasinthiratu mmene ndilili. Kuti ndigawane nkhani yanga ndikudziwitsa anthu zaumoyo wanu, ndidayamba blog, ndidalemba buku ndipo ndidapangitsanso Chemo Kits za achinyamata omwe akuchita chemo kuwathandiza kumva kuti amathandizidwa ndikuwadziwitsa kuti sali okha.

Pamapeto pa tsiku, ndikufuna kuti anthu adziwe kuti ngati mukuganiza kuti pali vuto ndi thupi lanu, mwina mukulondola. Ndipo mwatsoka momwe ziliri, tikukhala m'dziko lomwe muyenera kukhala ochirikiza thanzi lanu. Osandilakwitsa, sindikunena kuti dokotala aliyense padziko lapansi sayenera kudalirika. Sindikadakhala komwe ndili lero kukanapanda akatswiri anga odabwitsa azachipatala ku Sylvester. Koma mukudziwa zomwe zili zathanzi lanu. Musalole wina aliyense kukukhulupirirani.

Mutha kupeza nkhani zambiri ngati izi za azimayi omwe akhala akuvutika kuti madandaulo awo awatengere mozama madokotala pawayilesi ya Health.com ya Misdiagnosed.

Onaninso za