Mungapite Kuti Kodi Madokotala Sangakupeze?

Zamkati

• Ndipamene adapita pa intaneti, ndikupeza anthu masauzande ambiri ali ndi zizindikilo zofananira
• Tsopano akugawana nkhani yake, chifukwa safuna kuti anthu ena azimvetsetsa momwe adapangira
• Zokambirana ngati izi ndizoyambira zofunikira kusintha mabungwe athu ndi chikhalidwe chathu - {textend} ndikukweza miyoyo ya anthu omwe ali ndi matenda osamvetsetseka komanso osafufuzidwa

Mzimayi wina akugawana nkhani yake kuthandiza ena mamiliyoni ambiri.

“Uli bwino.”

Zonsezi zili m'mutu mwako. ”

"Ndiwe hypochondriac."

Izi ndi zinthu zomwe anthu ambiri olumala ndi matenda akumva adamva - {textend} komanso wogwirizira zaumoyo, director of the documentary "Unrest" ndi mnzake wa TED a Jen Brea amva zonsezi.

Zonsezi zinayamba pomwe anali ndi malungo a madigiri a 104 ndipo adawachotsa. Anali ndi zaka 28 ndipo anali wathanzi, ndipo monga anthu ambiri amsinkhu wake, amaganiza kuti ndi wosagonjetseka.

Koma pasanathe milungu itatu, adachita chizungulire kotero kuti samatha kuchoka panyumba pake. Nthawi zina samatha kujambula mbali yakumanja ya bwalo, ndipo nthawi zina amalephera kuyenda kapena kuyankhula konse.

Adawona aliyense wamankhwala: rheumatologists, psychiatrists, endocrinologists, cardiologists. Palibe amene anazindikira vuto lake. Anakhala atagona pabedi kwa zaka pafupifupi ziwiri.

“Kodi dokotala wanga anazindikira bwanji izi?” akudabwa. Ndinaganiza kuti ndili ndi matenda osowa, omwe madokotala anali asanawonepo. ”

Ndipamene adapita pa intaneti, ndikupeza anthu masauzande ambiri ali ndi zizindikilo zofananira

Ena mwa iwo anali atagona pabedi ngati iye, ena amangogwira ganyu.

"Ena anali odwala kwambiri kotero kuti amakhala mumdima wathunthu, osatha kupirira mawu amunthu kapena kugwira kwa wokondedwa," akutero.

Pomaliza, anapezeka ndi myalgic encephalomyelitis, kapena monga amadziwika, matenda otopa kwambiri (CFS).

Chizindikiro chofala kwambiri cha matenda otopa ndi kutopa komwe kumakhala kokwanira kusokoneza zochitika zanu zatsiku ndi tsiku, zomwe sizimayenda bwino ndikupuma, ndipo zimatha pafupifupi miyezi isanu ndi umodzi.

Zizindikiro zina za CFS zitha kuphatikiza:

• post-exertional malaise (PEM), pomwe zizindikiro zanu zimawonjezeka mukamachita masewera olimbitsa thupi
• kutayika kukumbukira kapena kusamalira
• kumva osapumula pambuyo pogona tulo
• kusowa tulo (ndi mavuto ena ogona)
• kupweteka kwa minofu
• mutu wambiri
• zophatikizika zophatikizika popanda kufiira kapena kutupa
• zilonda zapakhosi pafupipafupi
• Ma lymph node ofewa komanso otupa m'khosi mwanu ndi m'khwapa

Monga anthu ena masauzande ambiri, zinatenga zaka kuti Jen adziwe.

Malinga ndi Institute of Medicine, pofika mu 2015, CFS imapezeka pafupifupi aku America aku 836,000 mpaka 2.5 miliyoni. Akuyerekeza kuti, 84 mpaka 91% sanapezekebe.

"Ndi ndende yabwino kwambiri," akutero a Jen, pofotokoza momwe ngati mwamuna wake atathamanga, atha kukhala wopweteka kwa masiku angapo - {textend} koma ngati ayesa kuyenda theka, atha kukhala pabedi kwa sabata.

Tsopano akugawana nkhani yake, chifukwa safuna kuti anthu ena azimvetsetsa momwe adapangira

Ndicho chifukwa chake akumenyera matenda otopa kuti azindikiridwe, kuphunzira, ndikuchiritsidwa.

"Madokotala satichitira ndipo sayansi satiphunzira," akutero. “[Matenda a matenda otopa kwambiri] ndi ena mwa matenda amene amalandira ndalama zochepa kwambiri. Ku U.S. chaka chilichonse, timagwiritsa ntchito pafupifupi $ 2,500 pa wodwala Edzi, $ 250 pa wodwala wa MS, komanso $ 5 pachaka pa wodwala [CFS] aliyense. ”

Atayamba kufotokoza za zomwe adakumana nazo ndi matenda otopa, anthu ammudzi mwake adayamba kuyesetsa. Anapezeka kuti ali m'gulu la azimayi azaka za m'ma 20 omwe anali ndi matenda akulu.

Iye anati: “Chimene chinali chodabwitsa ndi kuchuluka kwa mavuto omwe tinali nawo chifukwa chofuna kutipeputsa.

Mzimayi wina yemwe ali ndi scleroderma adauzidwa kwazaka zambiri kuti zonse zili m'mutu mwake, mpaka kummero kwake kudawonongeka kotero kuti sadzathanso kudya.

Wina yemwe ali ndi khansa ya m'mimba adauzidwa kuti akungoyamba kumene kusamba. Chotupa cha mnzake ku koleji sichimadziwika kuti ndi nkhawa.

Jen akuti: "Nayi gawo labwino, ngakhale ndili ndi chiyembekezo, ndili ndi chiyembekezo."

Amakhulupirira kupirira komanso kugwira ntchito molimbika kwa anthu omwe ali ndi matenda otopa. Kudzera pakudzilankhulira okha ndikubwera limodzi, adye kafukufuku yemwe wapezeka ndipo adatha kubwezera miyoyo yawo.

Iye anati: “Pamapeto pa tsiku labwino, ndinatha kuchoka panyumba.

Akudziwa kuti kugawana nawo nkhani yake komanso nkhani za ena kupangitsa kuti anthu ambiri adziwe, ndipo atha kufikira munthu yemwe sanazindikire CFS - {textend} kapena aliyense amene akuyesetsa kuti adzilimbikitsire okha - {textend} amene akufuna mayankho.

Zokambirana ngati izi ndizoyambira zofunikira kusintha mabungwe athu ndi chikhalidwe chathu - {textend} ndikukweza miyoyo ya anthu omwe ali ndi matenda osamvetsetseka komanso osafufuzidwa

Iye anati: “Matendawa andiphunzitsa kuti sayansi ndi mankhwala ndi zochita za anthu. "Madokotala, asayansi, komanso opanga mfundo nawonso ali ndi malingaliro ofanana omwe amakhudza tonsefe."

Chofunika koposa: "Tiyenera kukhala okonzeka kunena kuti: Sindikudziwa. 'Sindikudziwa' ndichinthu chokongola. 'Sindikudziwa' ndi komwe kupeza kumayambira. ”

Alaina Leary ndi mkonzi, woyang'anira media, komanso wolemba waku Boston, Massachusetts. Pakadali pano ndiwothandizira mkonzi wa Equally Wed Magazine komanso mkonzi wazama TV ku bungwe lopanda phindu lomwe timafunikira.