Funsani Katswiri: Momwe Mungadzitetezere Nokha ndi Endometriosis

Zamkati

• 1. Chifukwa chiyani kuli kofunika kudzichirikiza wekha ngati uli ndi endometriosis?
• 2. Ndi nthawi ziti zomwe mungafunike kuti mudzilimbikitse? Mungapereke zitsanzo?
• 3. Kodi ndi maluso otani kapena njira ziti zodzilimbikitsira ndekha ndipo ndingazitambasule bwanji?
• 4. Kodi kafukufuku wofufuza amathandizira bwanji pakudziyimira pawokha? Kodi ndi zinthu ziti zomwe mumakonda pofufuza za endometriosis?
• 5. Pankhani yakukhala ndi endometriosis ndikudziyimira pawokha, ndi liti pamene mwakumana ndi zovuta zazikulu?
• 6. Kodi kukhala ndi dongosolo lamphamvu lothandizira kumathandizira pakudziyimira pawokha? Kodi ndingatani kuti ndikule ndikuthandizira?
• 7. Munayamba mwadzilankhulapo pa zochitika zomwe zimakhudza banja lanu, abwenzi, kapena okondedwa anu, ndi zisankho zomwe mumafuna kupanga pankhani zothana ndi vuto lanu?
• 8. Ngati ndiyesa kudzilimbikitsa koma ndikumva ngati sindikupita kulikonse, nditani? Masitepe anga otsatira ndi ati?

1. Chifukwa chiyani kuli kofunika kudzichirikiza wekha ngati uli ndi endometriosis?

Kudzinenera nokha ngati mukukhala ndi endometriosis sizomwe mungasankhe - moyo wanu umadalira. Malinga ndi EndoWhat, bungwe lolimbikitsa anthu omwe ali ndi endometriosis komanso othandizira azaumoyo, matendawa amakhudza azimayi pafupifupi 176 miliyoni padziko lonse lapansi, komabe zitha kutenga zaka 10 kuti adziwe.

Ndichoncho chifukwa chiyani? Chifukwa matendawa sanafufuzidwe kwambiri ndipo, mwa lingaliro langa, madokotala ambiri sanasinthe chidziwitso chawo pankhaniyi. National Institutes of Health (NIH) imapereka ndalama zambiri kuposa kafukufuku wamankhwala pazinthu zosiyanasiyana - koma mu 2018, endometriosis inangolandira $ 7 miliyoni.

Zinanditengera zaka zinayi kuti ndipeze matenda, ndipo ndimawerengedwa kuti ndine m'modzi mwa omwe ali ndi mwayi. Kusaka kosavuta kwa Google pa endometriosis mwina kumabweretsa zolemba zambiri zomwe zili ndi zakale kapena zolakwika.

Mabungwe ambiri samapeza tanthauzo lenileni la matendawa. Kuti zidziwike bwino, endometriosis imachitika pomwe minofu yofanana ndi chiberekero cha chiberekero imawoneka m'malo amthupi kunja kwa chiberekero. Sizofanana kwenikweni, zomwe ndizolakwika zomwe ndazindikira kuti mabungwe ambiri amapanga. Chifukwa chake, tingakhulupirire bwanji kuti chilichonse chomwe mabungwewa amatipatsa ndicholondola?

Yankho lalifupi ndilo: sitiyenera. Tiyenera kuphunzitsidwa. M'malingaliro mwanga, moyo wathu wonse umadalira izi.

2. Ndi nthawi ziti zomwe mungafunike kuti mudzilimbikitse? Mungapereke zitsanzo?

Kungodziwa chabe kumatenga kudziyimira pawokha. Amayi ambiri amachotsedwa ntchito chifukwa chakumva kuwawa kwakanthawi. Chifukwa chake, amasiyidwa kuti akhulupirire kuti akuchita mopambanitsa kapena kuti zonse zili m'mutu mwawo.

Zowawa zofooketsa sizachilendo. Ngati dokotala wanu - kapena wothandizira zaumoyo aliyense - akuyesera kukutsimikizirani kuti si zachilendo, muyenera kudzifunsa ngati ali munthu wabwino kwambiri wosamalira.

3. Kodi ndi maluso otani kapena njira ziti zodzilimbikitsira ndekha ndipo ndingazitambasule bwanji?

Choyamba, phunzirani kudzidalira. Chachiwiri, dziwani kuti mumalidziwa bwino thupi lanu kuposa wina aliyense.

Luso lina lofunika ndikuphunzira kugwiritsa ntchito mawu anu kufotokoza nkhawa zanu ndikufunsa mafunso zinthu zikawoneka kuti sizikuphatikizana kapena sizikudziwika bwinobwino. Ngati mukusokonezeka kapena mukuchita mantha ndi madokotala, lembani mndandanda wa mafunso omwe mukufuna kufunsa pasadakhale. Izi zimakuthandizani kuti musasokonezedwe kapena kuiwala chilichonse.

Lembani manotsi panthawi yomwe mwasankhidwa ngati simukuganiza kuti mudzakumbukira zonsezi. Bweretsani winawake ku msonkhano wanu kuti mudzakhale ndi makutu ena mchipinda.

4. Kodi kafukufuku wofufuza amathandizira bwanji pakudziyimira pawokha? Kodi ndi zinthu ziti zomwe mumakonda pofufuza za endometriosis?

Kufufuza ndikofunikira, koma gwero lomwe kafukufuku wanu amachokera ndilofunika kwambiri. Pali zambiri zabodza zomwe zimafalikira za endometriosis. Zingamveke zovuta kudziwa zomwe zili zolondola komanso zomwe sizili. Ngakhale namwino wodziwa zambiri zakufufuza, zidandivuta kwambiri kudziwa magwero omwe ndingadalire.

Zomwe ndimakonda komanso zodalirika za endometriosis ndi izi:

• Nancy's Nook pa Facebook
• Pulogalamu ya Endometriosis Care
• Kutani?

5. Pankhani yakukhala ndi endometriosis ndikudziyimira pawokha, ndi liti pamene mwakumana ndi zovuta zazikulu?

Limodzi mwa mavuto anga akulu lidadza ndikuyesera kuti ndipeze matenda anga. Ndili ndi zomwe zimawoneka ngati mtundu wosowa wa endometriosis, komwe umapezeka pachikopa changa, chomwe ndi minofu yomwe imakuthandizani kupuma. Zinali zovuta kwambiri kutsimikizira madokotala anga kuti kupuma pang'ono komanso kupweteka pachifuwa komwe ndikadakumana nako kumakhudzana ndi msambo wanga. Ndinapitilizabe kuuzidwa kuti "ndizotheka, koma ndizochepa kwambiri."

6. Kodi kukhala ndi dongosolo lamphamvu lothandizira kumathandizira pakudziyimira pawokha? Kodi ndingatani kuti ndikule ndikuthandizira?

Kukhala ndi dongosolo lamphamvu lothandizira ndi kotero zofunika kudziteteza. Ngati anthu omwe amakudziwani bwino amachepetsa kupweteka kwanu, kukhala ndi chidaliro chogawana zomwe mwakumana nazo ndi madotolo kumakhala kovuta kwambiri.

Ndizothandiza kuwonetsetsa kuti anthu m'moyo wanu akumvetsetsa zomwe mukukumana nazo. Izi zimayamba ndikuwonekera poyera komanso kuwakhulupirika. Zimatanthauzanso kugawana nawo zinthu zomwe zingawathandize kumvetsetsa matendawa.

EndoWhat ili ndi zolemba zosaneneka zothandiza ndi izi. Ndatumizira anzanga ndi abale anga onse chifukwa kuyesa kufotokoza mokwanira za matendawa kumatha kukhala kovuta kufotokoza.

7. Munayamba mwadzilankhulapo pa zochitika zomwe zimakhudza banja lanu, abwenzi, kapena okondedwa anu, ndi zisankho zomwe mumafuna kupanga pankhani zothana ndi vuto lanu?

Zingamveke zodabwitsa, koma ayi. Nditayenera kuchoka ku California kupita ku Atlanta kukachitidwa opaleshoni kuti ndikachiritse endometriosis, abale anga ndi abwenzi adakhulupirira lingaliro langa kuti iyi inali njira yabwino kwambiri kwa ine.

Kumbali inayi, nthawi zambiri ndimamva ngati ndiyenera kufotokoza kupweteka kwanga komwe ndakhala ndikumva. Nthawi zambiri ndimamva, "Ndimadziwa choncho ndipo ndani ali ndi endometriosis ndipo ali bwino." Endometriosis si matenda amtundu umodzi.

8. Ngati ndiyesa kudzilimbikitsa koma ndikumva ngati sindikupita kulikonse, nditani? Masitepe anga otsatira ndi ati?

Zikafika kwa madotolo anu, ngati mukumva kuti simukumveredwa kapena kupatsidwa chithandizo kapena mayankho othandiza, pezani lingaliro lachiwiri.

Ngati dongosolo lanu lamankhwala silikugwira ntchito, gawanani izi ndi dokotala mukazindikira izi. Ngati sakufuna kumvera nkhawa zanu, ndiye mbendera yofiira yomwe muyenera kuganizira zopeza dokotala watsopano.

Ndikofunika kuti nthawi zonse muzimva kuti ndinu mnzanu m'manja mwanu, koma mutha kukhala mnzake wofanana ngati mumachita homuweki yanu ndikudziwitsidwa bwino. Pakhoza kukhala kudalirana kosaneneka pakati pa inu ndi dokotala wanu, koma musalole kuti kudaliraku kukupangitseni kukhala otenga nawo mbali pazisamaliro zanu. Uwu ndi moyo wanu. Palibe amene adzalimbane nayo molimbika monga momwe mungafunire.

Lowani m'magulu azigawo za azimayi ena omwe ali ndi endometriosis. Popeza pali akatswiri ochepa enieni a endometriosis, kugawana zomwe akumana nazo ndi zofunikira ndiye mwala wapangodya wopeza chisamaliro chabwino.

Jenneh Bockari, wazaka 32, akukhala ku Los Angeles. Wakhala namwino kwa zaka 10 akugwira ntchito zosiyanasiyana. Pakadali pano ali mu semester yake yomaliza yomaliza maphunziro, kutsatira Master's in Nursing Education. Kupeza "dziko la endometriosis" kuli kovuta kuyenda, Jenneh adapita ku Instagram kuti agawane zomwe akumana nazo ndikupeza zofunikira. Ulendo wake wokha ungapezeke @alirezatalischioriginal. Powona kusowa kwazidziwitso zomwe zilipo, chidwi cha a Jenneh cholimbikitsa ndi maphunziro chidamupangitsa kuti apeze Mgwirizano wa Endometriosis ndi Natalie Archer. Ntchito ya Endo Co ndikudziwitsa anthu, kulimbikitsa maphunziro odalirika, ndikuwonjezera ndalama zofufuzira za endometriosis.