Matenda a Ehlers-Danlos: ndi chiyani, zizindikiro ndi chithandizo

Zamkati

• Zizindikiro zake ndi ziti
• Zomwe zingayambitse
• Mitundu yanji
• Kodi matendawa ndi ati?
• Momwe mankhwalawa amachitikira

Matenda a Ehlers-Danlos, omwe amadziwika kuti matenda otanuka aamuna, amadziwika ndi zovuta zamtundu zomwe zimakhudza khungu lolumikizana, mafupa ndi makoma amitsempha yamagazi.

Nthawi zambiri, anthu omwe ali ndi vutoli amakhala ndi malo olumikizirana mafupa, makoma amitsempha yamagazi ndi khungu lomwe limafutukuka kuposa momwe limakhalira komanso limakhala lofooka kwambiri, popeza ndi minyewa yolumikizira yomwe imagwira ntchito yolimbitsa thupi komanso kusinthasintha, ndipo nthawi zina imakhala ndi mitsempha yayikulu kuwonongeka kumachitika.

Matendawa omwe amapita kuchokera kwa makolo kupita kwa ana alibe mankhwala koma amatha kuchiritsidwa kuti achepetse zovuta. Chithandizochi chimakhala ndi kuperekera mankhwala a analgesic ndi antihypertensive, mankhwala opatsirana komanso nthawi zina, opaleshoni.

Zizindikiro zake ndi ziti

Zizindikiro zomwe zimatha kupezeka mwa anthu omwe ali ndi matenda a Ehlers-Danlos ndizowonjezereka pamalumikizidwe, zomwe zimabweretsa mayendedwe ochulukirapo kuposa ululu wamba wam'deralo komanso zomwe zimachitika kuvulala, kufutukuka kwa khungu komwe kumapangitsa kukhala kosalimba komanso kosavuta ndi mabala osazolowereka.

Kuphatikiza apo, pamavuto ovuta kwambiri, pomwe matenda a Ehlers-Danlos amakhala ndi minyewa, anthu atha kukhala ndi mphuno yopyapyala ndi milomo yakumtunda, maso otchuka komanso khungu lowonda lomwe limavulala mosavuta. Mitsempha ya m'thupi imakhalanso yofooka kwambiri ndipo mwa anthu ena mitsempha ya aortic ingakhalenso yofooka kwambiri, yomwe imatha kuphulika ndikupita ku imfa. Makoma a chiberekero ndi matumbo nawonso ndi owonda kwambiri ndipo amatha kuthyoka mosavuta.

Zizindikiro zina zomwe zingachitike ndi izi:

• Kusokonezeka pafupipafupi komanso kupindika, chifukwa chokhazikika kwamalumikizidwe;
• Kusokonezeka kwa minofu;
• Kutopa kosatha;
• Arthrosis ndi nyamakazi akadali achichepere;
• Minofu kufooka;
• Kupweteka kwa minofu ndi mafupa;
• Kulimbana kwambiri ndi ululu.

Nthawi zambiri, matendawa amapezeka muubwana kapena unyamata chifukwa chosokonekera pafupipafupi, kupindika komanso kukokomeza kwakukulu komwe odwala amakhala nako, komwe kumatha kuyambitsa chidwi cha banja komanso dokotala wa ana.

Zomwe zingayambitse

Matenda a Ehlers-Danlos ndi matenda obadwa nawo omwe amabwera chifukwa cha kusintha kwa majini omwe amaphatikiza mitundu yambiri ya collagen kapena michere yomwe imasintha collagen, ndipo imatha kufalikira kuchokera kwa makolo kupita kwa ana.

Mitundu yanji

Matenda a Ehlers-Danlos amagawidwa m'mitundu itatu, kukhala mtundu 3, kapena hypermobility, wofala kwambiri, womwe umadziwika ndi mayendedwe osiyanasiyana, wotsatiridwa ndi mtundu 1 ndi 2, kapena wakale, yemwe kusintha kwake kumapereka mtundu wa collagen I ndi mtundu wachinayi ndipo zimakhudza khungu kwambiri.

Mtundu wachinayi kapena mitsempha ndiwosowa kwambiri kuposa wakale ndipo umachitika chifukwa cha kusintha kwa mtundu wachitatu wa collagen womwe umakhudza mitsempha ndi ziwalo, zomwe zimatha kuphulika mosavuta.

Kodi matendawa ndi ati?

Kuti mupeze matendawa, ingoyesani thupi ndikuyesa momwe zimalumikizirana. Kuphatikiza apo, adotolo amathanso kuyesa zowunika ndi khungu kuti azindikire kupezeka kwa ulusi wa collagen.

Momwe mankhwalawa amachitikira

Matenda a Ehlers-Danlos alibe mankhwala, koma chithandizo chitha kuthandiza kuthana ndi zovuta komanso kupewa zovuta zamatendawa. Dokotala amatha kupereka mankhwala opha ululu, monga paracetamol, ibuprofen kapena naproxen, mwachitsanzo, kuti athetse ululu ndi mankhwala ochepetsa kuthamanga kwa magazi, popeza makoma amitsempha yamagazi ndi ofooka ndipo ndikofunikira kuchepetsa mphamvu yomwe magazi amadutsa.

Kuphatikiza apo, physiotherapy ndiyofunikanso, chifukwa imathandizira kulimbitsa minofu ndikukhazikika kwamafundo.

Pazochitika zowopsa kwambiri, momwe zimayenera kukonzetsera cholumikizira chowonongeka, momwe chotupa chamagazi kapena chiwalo chimaphulika, opaleshoni imafunika.