Kodi MS Yoyambira Patsogolo Ndi Chiyani?

Zamkati

• Mitundu ina ya MS
• Kodi malingaliro a PPMS ndi ati?
• PPMS ndi SPMS
• PPMS vs. RRMS
• Zizindikiro za PPMS ndi ziti?
• Nchiyani chimayambitsa PPMS?
• Kodi PPMS imapezeka bwanji?
• Kodi PPMS imathandizidwa bwanji?
• Ndi kusintha kotani kwa moyo kumathandiza PPMS?
• Zosintha za PPMS
• Thandizo
• Chiwonetsero
• Tengera kwina

Multiple sclerosis (MS) ndi matenda osachiritsika omwe amakhudza mitsempha yamawonedwe, msana, ndi ubongo.

Anthu omwe amapezeka ndi MS nthawi zambiri amakhala ndi zokumana nazo zosiyana. Izi ndizowona makamaka kwa omwe amapezeka ndi primary progressive multiple sclerosis (PPMS), imodzi mwamitundu yovuta kwambiri ya MS.

PPMS ndi mtundu wapadera wa MS. Sizimaphatikizapo kutupa kochuluka monga mitundu ya MS yomwe imayambiranso.

Zizindikiro zazikulu za PPMS zimayambitsidwa ndi kuwonongeka kwa mitsempha. Zizindikirozi zimachitika chifukwa mitsempha imalephera kutumiza ndi kulandira mauthenga kwa wina ndi mnzake moyenera.

Ngati muli ndi PPMS, pali zochitika zambiri zolemala kuposa zizindikilo zina, poyerekeza ndi anthu omwe ali ndi mitundu ina ya MS.

PPMS siyofala kwambiri. Zimakhudza pafupifupi 10 mpaka 15 peresenti ya omwe amapezeka ndi MS. PPMS ikupita patsogolo kuyambira nthawi yomwe muwona zizindikiro zanu zoyambirira.

Mitundu ina ya MS imakhala ndi nthawi yobwereranso kwambiri ndikuchotsa. Koma zizindikiro za PPMS zimawoneka pang'onopang'ono koma pang'onopang'ono pakapita nthawi. Anthu omwe ali ndi PPMS amathanso kubwerera m'mbuyo.

PPMS imayambitsanso magwiridwe antchito kuchepa mwachangu kwambiri kuposa mitundu ina ya MS. Koma kuuma kwa PPMS ndi momwe imafulumira kumadalira mulimonsemo.

Anthu ena atha kukhala akupitiliza PPMS yomwe imakula kwambiri. Ena amatha kukhala ndi nthawi yolimba popanda kuwonekera kwa zizindikilo, kapena nthawi zosintha pang'ono.

Anthu omwe kale anapezeka ndi MS (PRMS) omwe amabwereranso pang'onopang'ono tsopano amawerengedwa kuti ndiwopitilira patsogolo.

Mitundu ina ya MS

Mitundu ina ya MS ndi iyi:

• matenda opatsirana (CIS)
• Kubwezeretsanso MS (RRMS)
• MS yachiwiri yopita patsogolo (SPMS)

Mitundu iyi, yotchedwanso maphunziro, imafotokozedwa ndi momwe zimakhudzira thupi lanu.

Mtundu uliwonse umakhala ndi mankhwala osiyanasiyana ndi njira zambiri zochiritsira. Kukula kwa zizindikiritso zawo komanso malingaliro anyengo yayitali nazonso zimasiyana.

CIS ndi mtundu watsopano wa MS. CIS imachitika mukakhala ndi nthawi imodzi yokha yazizindikiro zamitsempha zomwe zimatha pafupifupi maola 24.

Kodi malingaliro a PPMS ndi ati?

Kulosera kwa PPM ndikosiyana kwa aliyense ndipo sikungachitike.

Zizindikiro zimatha kuwonekera pakapita nthawi, makamaka mukamakalamba ndipo mumayamba kutaya ntchito zina m'ziwalo monga chikhodzodzo, matumbo, ndi ziwalo zoberekera chifukwa cha msinkhu ndi PPMS.

PPMS ndi SPMS

Nayi kusiyana kwakukulu pakati pa PPMS ndi SPMS:

• SPMS nthawi zambiri imayamba ngati matenda a RRMS omwe pamapeto pake amakhala ovuta pakapita nthawi popanda kuchotsera kapena kusintha kwa zizindikilo.
• SPMS nthawi zonse imakhala gawo lachiwiri la matenda a MS, pomwe RRMS ndiyomwe imadziwunika yokha.

PPMS vs. RRMS

Nayi kusiyana kwakukulu pakati pa PPMS ndi RRMS:

• RRMS ndi mtundu wofala kwambiri wa MS (pafupifupi 85% ya matenda), pomwe PPMS ndi imodzi mwazovuta kwambiri.
• RRMS imadziwika kawiri kuposa akazi mwa amuna.
• Magawo azizindikiro zatsopano amapezeka kwambiri mu RRMS kuposa PPMS.
• Mukakhululukidwa mu RRMS, mwina simungazindikire zizindikiro zilizonse, kapena mungakhale ndi zizindikilo zochepa zomwe sizowopsa.
• Nthawi zambiri, zotupa zambiri zamaubongo zimawonekera pamaubongo a MRIs ndi RRMS kuposa PPMS ngati sanalandire chithandizo.
• RRMS imakonda kupezeka kale m'moyo kuposa PPMS, m'ma 20s ndi 30s, mosiyana ndi 40s ndi 50s omwe ali ndi PPMS.

Zizindikiro za PPMS ndi ziti?

PPMS imakhudza aliyense mosiyanasiyana.

Zizindikiro zoyambirira za PPMS zimaphatikizapo kufooka m'miyendo mwanu komanso kuyenda movutikira. Zizindikirozi zimawonekera kwambiri kwazaka ziwiri.

Zizindikiro zina zomwe zimakhalapo ndi izi:

• kuuma kwa miyendo
• mavuto osamala
• ululu
• kufooka ndi kutopa
• vuto ndi masomphenya
• chikhodzodzo kapena matumbo operewera
• kukhumudwa
• kutopa
• dzanzi ndi / kapena kumva kulasalasa mbali zosiyanasiyana za thupi

Nchiyani chimayambitsa PPMS?

Zomwe zimayambitsa PPMS, ndi MS wamba, sizikudziwika.

Lingaliro lodziwika kwambiri ndilakuti MS imayamba pomwe chitetezo chamthupi chanu chimayamba kuwononga dongosolo lanu lamanjenje. Izi zimapangitsa kutayika kwa myelin, chophimba choteteza kuzungulira kwa mitsempha m'katikati mwa mitsempha yanu.

Ngakhale madotolo samakhulupirira kuti PPMS ikhoza kulandira cholowa, itha kukhala ndi chibadwa. Ena amakhulupirira kuti ikhoza kuyambitsidwa ndi kachilombo ka HIV kapena poizoni m'deralo omwe akaphatikizidwa ndi chibadwa chomwe chitha kuwonjezera chiopsezo chokhala ndi MS.

Kodi PPMS imapezeka bwanji?

Gwirani ntchito limodzi ndi dokotala wanu kuti muthandize kuzindikira mitundu iti ya MS yomwe mungakhale nayo.

Mtundu uliwonse wa MS uli ndi malingaliro osiyana ndi zosowa zosiyanasiyana zamankhwala. Palibe mayeso enieni omwe amapereka matenda a PPMS.

Madokotala nthawi zambiri amavutika kuzindikira PPMS poyerekeza ndi mitundu ina ya MS ndi zina zopita patsogolo.

Izi ndichifukwa choti vuto lamanjenje liyenera kuti lidapita patsogolo kwa zaka 1 kapena 2 kuti wina alandire matenda a PPMS.

Zina zomwe zili ndi zizindikilo zofanana ndi PPMS ndizo:

• mkhalidwe wobadwa nawo womwe umayambitsa miyendo yolimba, yofooka
• kusowa kwa vitamini B-12 komwe kumayambitsa zizindikiro zofananira
• Matenda a Lyme
• matenda opatsirana, monga T-cell leukemia virus type 1 (HTLV-1)
• mitundu ya nyamakazi, monga nyamakazi ya msana
• chotupa pafupi ndi msana

Kuti mupeze PPMS, dokotala wanu atha:

• onetsetsani zizindikiro zanu
• onaninso mbiri yanu yamitsempha
• Chitani kuyezetsa kwakuthupi kumayang'ana minofu yanu ndi mitsempha yanu
• Chitani kafukufuku wa MRI wa ubongo wanu ndi msana
• pangani lumbar kuti muwone ngati pali zizindikiro za MS mumtsempha wamtsempha
• Chitani zoyeserera zotheka (EP) kuzindikira mtundu wa MS; Mayeso a EP amalimbikitsa mitsempha yam'mimba kuti izindikire zamagetsi zamaubongo

Kodi PPMS imathandizidwa bwanji?

Ocrelizumab (Ocrevus) ndi mankhwala okhawo omwe amavomerezedwa ndi Food and Drug Administration (FDA) kuti athetse PPMS. Zimathandiza kuchepetsa kuchepa kwa mitsempha.

Mankhwala ena amatenga zizindikiro za PPMS, monga:

• kulimba kwa minofu
• ululu
• kutopa
• mavuto a chikhodzodzo ndi matumbo.

Pali mitundu yambiri yamankhwala osintha matenda (DMTs) ndi ma steroids omwe amavomerezedwa ndi FDA kuti abwererenso mtundu wa MS.

Ma DMTs samachiza mwachindunji PPMS.

Mankhwala atsopano akupangidwira PPMS kuti athandizire kuchepetsa kutupa komwe kumayambitsa misempha yanu.

Zina mwa izi zimathandizanso kuthana ndi kuwonongeka ndi kukonza njira zomwe zimakhudza mitsempha yanu. Mankhwalawa atha kuthandiza kubwezeretsa myelin pamitsempha yanu yowonongeka ndi PPMS.

Chithandizo chimodzi, ibudilast, chakhala chikugwiritsidwa ntchito ku Japan kwazaka zopitilira 20 kuchiza mphumu ndipo atha kuthana ndi kutupa mu PPMS.

Chithandizo china chotchedwa masitinib chimagwiritsidwa ntchito ngati chifuwa chachikulu poyang'ana maselo am'magazi omwe amakhudzidwa ndi zomwe zimachitika ndipo amawonetsa lonjezo ngati chithandizo cha PPMS, nawonso.

Ndikofunika kuzindikira kuti mankhwala awiriwa akadali koyambirira kwambiri pakukula ndi kafukufuku.

Ndi kusintha kotani kwa moyo kumathandiza PPMS?

Anthu omwe ali ndi PPMS amatha kuchepetsa zizolowezi zolimbitsa thupi ndikufikira ku:

• khalani osunthika momwe mungathere
• chepetsani kuchuluka kwa kulemera kwanu
• kuonjezera mphamvu

Nazi zina zomwe mungachite kuti muchepetse zizindikiro zanu za PPMS ndikukhalabe ndi moyo wabwino:

• Idyani chakudya chopatsa thanzi komanso chopatsa thanzi.
• Khalani pa ndandanda yanthawi zonse yogona.
• Pitani kuchipatala chakuthupi kapena pantchito, chomwe chingakuphunzitseni njira zokulitsira kuyenda ndikuwongolera zizindikilo.

Zosintha za PPMS

Zosintha zinayi zimagwiritsidwa ntchito polemba PPMS pakapita nthawi:

• Yogwira ntchito ndikupita patsogolo: PPMS yokhala ndi zizindikiro zowonjezereka ndikubwereranso kapena ndi zochitika zatsopano za MRI; kukulirakulira kudzachitikanso
• Yogwira popanda kupita patsogolo: PPMS ndikubwereranso kapena zochitika za MRI, koma palibe kulemala kowonjezeka
• Osagwira ntchito ndikukula: PPMS osabwereranso kapena zochitika za MRI, koma ndikulemala kowonjezeka
• Osagwira ntchito popanda kupita patsogolo: PPMS osabwereranso, zochitika za MRI, kapena kulumala

Chofunikira kwambiri cha PPMS ndikusowa kwa kuchotseredwa.

Ngakhale munthu yemwe ali ndi PPMS awona zizindikiro zake zikuchepa - kutanthauza kuti samakumana ndi zovuta zomwe zikuwonjezeka chifukwa cha matenda kapena kuwonjezeka kwaulemala - zizindikiro zawo sizikusintha kwenikweni. Ndi mtundu uwu wa MS, anthu sabwezeretsanso ntchito mwina ataya.

Thandizo

Ngati mukukhala ndi PPMS, ndikofunikira kupeza magwero othandizira. Pali zosankha zoti mupeze chithandizo payekha kapena pagulu lonse la MS.

Kukhala ndi matenda osachiritsika kumatha kukupweteketsani mtima. Ngati mukumva zachisoni, mkwiyo, chisoni, kapena zovuta zina, dziwitsani dokotala wanu. Atha kukutumizirani kwa akatswiri azaumoyo omwe angakuthandizeni.

Muthanso kuyang'ana katswiri wazachipatala nokha. Mwachitsanzo, American Psychological Association imapereka chida chofufuzira kuti mupeze akatswiri amisala ku United States. MentalHealth.gov imaperekanso foni yothandizira othandizira.

Mutha kupeza zothandiza kuyankhula ndi anthu ena omwe akukhala ndi MS. Ganizirani kuyang'ana m'magulu othandizira, pa intaneti kapena mwa-maso.

National Multiple Sclerosis Society imapereka chithandizo kukuthandizani kupeza magulu othandizira mdera lanu. Alinso ndi pulogalamu yolumikizirana ndi anzawo yomwe imayendetsedwa ndi odzipereka omwe amakhala ndi MS.

Chiwonetsero

Fufuzani ndi dokotala wanu pafupipafupi ngati muli ndi PPMS, ngakhale mutakhala kuti simunakhale ndi zizindikilo kwakanthawi ndipo makamaka mukakhala ndi zosokoneza zowonekera m'moyo wanu ndi gawo lazizindikiro.

N'zotheka kukhala ndi moyo wapamwamba ndi PPMS bola ngati mukugwira ntchito ndi dokotala kuti mupeze mankhwala abwino kwambiri komanso kusintha kwa moyo ndi zakudya zomwe zikukuthandizani.

Tengera kwina

Palibe mankhwala a PPMS, koma chithandizo chimathandiza. Ngakhale kuti vutoli likupita patsogolo, anthu amatha kukhala ndi nthawi pomwe zizindikiro sizikuipiraipira.

Ngati mukukhala ndi PPMS, dokotala wanu amalangiza dongosolo lamankhwala kutengera zizindikilo zanu komanso thanzi lanu.

Kukulitsa zizolowezi za moyo wathanzi ndikukhala olumikizidwa ndi magwero othandizira kungakuthandizeninso kukhala ndi moyo wabwino komanso moyo wabwino.